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Stage 3 Treatment in Canada
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Stage 3 Treatment in Canada

› Forums › General Melanoma Community › Stage 3 Treatment in Canada

  • Post
    • March 9, 2017 at 3:47 pm
    NSNewf
    Participant

      As an update I am awaiting path for neck dissection (possibly 4 weeks). I met with oncologist prior to surgery and my options  are limited to HDI. 

      Other than through a trial have other Stage 3 Canadians been offered other treatments?

       

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    • Replies
        • March 9, 2017 at 5:01 pm
        jennunicorn
        Participant

          Nothing good available other than trial, which is the best option. Trial could offer a new drug that actually has a chance of working. If you don't want to go into a trial, watch and wait is the best option, getting regular scans and seeing your doctor. Latest studies proven that Interferon is no better than watch and wait. And with watch and wait there are no side effects.

            • March 9, 2017 at 5:47 pm
            NSNewf
            Participant

              Thanks there is a trial available in another province 2 hours away. I am interested in participating however I am concerned my oncologist is not pushing for me. My next oncologist appointment is April 13. I had my dissection on March 3. I know there are only three spots left and have called and emailed my oncologist, my plastics, my dermatologist for a referral and I am not getting a response.   I am considering going to media for help. The trial offers patient/physician choice of HDI/IPI versus Keytruda. 

              I will not take HDI but I would take one of the other meds. 

              • March 9, 2017 at 6:34 pm
              debwray
              Participant

                OK.. So interested in trial.. You can find details of sponsor via clinical trials.gov. If you contact sponsor co and trial co ordinator you might be able to get some movement from local team ?

                You really want details of coordinator for that trial in that state and it should be listed on the locations list of trial details.

                Hope it helps

                Deb

                • March 9, 2017 at 6:34 pm
                Mark_DC
                Participant

                  I think the trial is a good plan – i would definitely go for it

                  good luck, Mark

                  • March 10, 2017 at 11:35 pm
                  Delores T.
                  Participant

                    I am stage 3c,had neck dissection in June  2016, 2 tumors removed successfully. Onc recommended interferon as treatment option  but we found the MEK trail online in moncton, NB.  Luck was on my side received keytruda instead of interfeon. 7 injection so far – fatigue,dry skin, minor headaches,upset stomach are my side effects. Currently I am NED and coping Well. If you can find a trail it is a good option, each trail has different conditions  for entry, but it worth checking out.  Good luck

                    • March 10, 2017 at 11:38 pm
                    Delores T.
                    Participant

                      I am stage 3c,had neck dissection in June  2016, 2 tumors removed successfully. Onc recommended interferon as treatment option  but we found the MEK trail online in moncton, NB.  Luck was on my side received keytruda instead of interfeon. 7 injection so far – fatigue,dry skin, minor headaches,upset stomach are my side effects. Currently I am NED and coping Well. If you can find a trail it is a good option, each trail has different conditions  for entry, but it worth checking out.  Good luck

                      • March 10, 2017 at 11:39 pm
                      Delores T.
                      Participant

                        I am stage 3c,had neck dissection in June  2016, 2 tumors removed successfully. Onc recommended interferon as treatment option  but we found the MEK trail online in moncton, NB.  Luck was on my side received keytruda instead of interfeon. 7 injection so far – fatigue,dry skin, minor headaches,upset stomach are my side effects. Currently I am NED and coping Well. If you can find a trail it is a good option, each trail has different conditions  for entry, but it worth checking out.  Good luck

                        • March 13, 2017 at 5:59 pm
                        NSNewf
                        Participant

                          Thanks Deloris

                          I am waiting for my path from neck. Trying to stay positive. Spoke with oncologist this morning and let her know HDI is not an option. Hoping for negative results from path. Pet was confirmed negative

                          All the best

                          D

                           

                           

                           

                           

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