Stage 3B nivo success stories?
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Stage 3B nivo success stories?

› Forums › General Melanoma Community › Stage 3B nivo success stories?

  • Post
    • December 6, 2019 at 8:00 pm
    caitkastrati
    Participant
      Hi everyone,

      Looking for some hope!

      My husband was diagnosed with Stage 3b melanoma at the end of September. It was a few days after our 3 year wedding anniversary and our newborn turning 3 months. Really took us by surprise!

      He had a CLND in mid October. 2 nodes came back positive and unknown primary. The tumors were also BRAF positive. He will be starting his first nivo treament in 2 weeks.

      I am looking forward to hearing some positive, encouraging stories of others who may have had a similar journeys. I don’t know if it’s the holidays coming up but I have been sick in stomach and constantly worrying about him.

      Thank you!

      Caitlin

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        • December 6, 2019 at 9:29 pm
        Threefitty
        Participant
          I believe I am an “old 3B”; diagnosed 3/17. Nivo from 6/17-6/18. 2.5mm, lacerated, 3 dirty nodes after right only axilary CLNR.
          Now this would be 3c.

          I always described my situation as “a coin toss, and then a second one, and I need to win one of them”. Imprecise but talking stats gets old fast.

          So far, so good. Mentally emerging to almost never think about it, and not obsess after scans. That took yr 2 to get there.

          For me, it is a positive to say that however long the duration, I have a set of experiences and responses I never would have imagined and that I have no interest in returning to the person I was before this experience.

          My heart breaks every time I read a progression story here. And there, but for either the grace of medical science or just a lucky draw, goethe I.

          Never to know which it is.

          I fervently hope.

          May you also have lots of hope left in the quiver

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