› Forums › Cutaneous Melanoma Community › Stage IIIB NED for 1.5 years, now possible spleen mets?
- This topic has 3 replies, 3 voices, and was last updated 6 years, 9 months ago by
AZSoCal.
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- July 30, 2018 at 8:42 pm
Hey y'all. I need your help – this is all I can do not to "lose it"!
Just got scan results back from my 21 month anniversary – and showing 7mm spot on my spleen. A review of CT done 3 months ago revealed spot that has almost doubled in size. Docs are making me hold out another 8 weeks for a PET due to the size. All I can do to not go absolutely bonkers in the next two months, try as I might to "ignore" the possibilities and stick to my usual, positive self. Sent a request for ultrasound if maybe that will confirm something other than melanoma mets. Any helpful info or a supporting note is super appreciated. Extending my love and support to all in your continued journey.
Ever grateful to be here, Sara.
History: I was diagnosed with Stage 3b Melanoma in late September 2016, two weeks after celebrating my 31st birthday. The cancer was found after that mysterious lump turned out to be a 3cm metastasis to the lymph nodes. About a week later, the dermatologist reported the culprit was a small mole found on my lower leg.
After undergoing surgery to remove 15 lymph nodes in my groin and another golf-ball sized chunk of my calf, I began drug treatment in January 2017 (immunotherapy) under the Keytruda clinical trial program at UCSD Moore’s Cancer Center. While the trial was supposed to last a year, I made it through treatment until the end of April 2017, when my liver decided the toxicity from the drug was affecting my body too strongly.
Since then, I've been on a holistic regimen of an anti-inflammatory diet, yoga, travel and basically anything to be out enjoying life and keeping stress levels low. I receive scans every 3 months (brain MRI and chest/abd/pelvis CT), and a PET once a year.
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- July 31, 2018 at 2:10 am
Sara-I’m a fellow 3ber from feb 2013 (3cm tumor in armpit). Was getting pet every 3 months then every 6 then yearly. Well about 3.5 years NED they found a spot near my appendix. Did 3 PETS after that and each time it grew and by the 3rd PET it had more than doubled in size. I thought oh great here we go stage 4 here I come. I had my pity party for.a while and prepared myself for surgery. I asked they wait another 3 months (giving me Christmas) and give me a pet. Doc was good with it. Well I had surgery scheduled for the day after the next pet. I went in they did the pet and poof the spot was gone and since it was my 5 year anniversary I was done-never had to go back. I credit it to a good diet (my wife brews her own kombucha) exercise, prayers, and my 5 and 6 year olds. When I left the oncs office all the staff lined the hallways of mayo and gave me a standing ovation. My daughter thought it was for my birthday! Ha! Greatest feeling in the world. My hope is that your spot goes poof!
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- August 2, 2018 at 8:41 pm
Sara,
So sorry you have to go through this again!
I can only imagine how stressful it must be, particularly having to wait another 2-months.Just wanted to throw you some quick support your way and say that I really admire your positive attitude.
Lots of people can go through challenging times and let it be the excuss that destroys them. It's clear youy've take a different, more empowering and insipring attitude.There are a lot of people on this board I admire for similar reasons… I think it's what gets us all through theses difficult times — seeing others go through these challenges and watching them come out the other side stronger and probably even becoming a better human.
Stay positive and keep doing what you're doing. It helps all of us! 🙂
– Aaron
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Tagged: cutaneous melanoma
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