The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Stage IV – Brain Mets & Ipi/Yervoy – Good News

Forums General Melanoma Community Stage IV – Brain Mets & Ipi/Yervoy – Good News

  • Post
    Patina
    Participant

      Hi Everyone,

      We got a second round of good news after treatment for my Mom.  She's had really good results with both ipi/Yervoy and gamma knife radiation so far.  Today her doctor reported that she had no new brain mets and that all the CT scans look terrific.  – The 18 tumors on her scalp are pretty much gone. Just a speck left really. When this started I'd estimate that if you had to measure the total volume of the masses on her head and neck that it would be about 1/6 of a cup. Maybe more…   – I could have strangled her when I found out what was going on. She didn't tell me! Stubborn lady!

      The long and short of it is that this is another story of someone who's had a great response and things looked really grim a few times.  

      Melanoma treatment has come a long way in the last few years and is only getting better. I hope in my lifetime melanoma won't be so hard to fight and that there is a cure soon. – Baring that, longterm treatment and management that give everyone the quality of life they want…

       

      HISTORY:

      My Mom was diagnosed in November of 2013 (age 77) and after seeing 4 specialists (one of which diagnosed her with brain mets that a radiologist "overlooked") and thinking about the options she opted to go with gamma knife radiation and ipi 4 days later.  

      In short she had: 2 infusions, got colitis and thrush, had a few hospitalizations due to colitis, finally got the 3rd infusion, got colitis again and then a new radiologist (3rd) treated 16 new tumors in April…   

      —Terrific tretment at USC in Los Angeles with Dr. Wong and Dr. Chang.  And many thanks to Dr. Peter Bosoberg at the Los Angeles Clinic. – He found the undiagnosed brain mets. 

       

    Viewing 5 reply threads
    • Replies
        DZnDef
        Participant

          Patina!  Excellent news!  Thank you so much for sharing!  Encouraging results give all of us hope.  Progress against The Beast.  There's nothing better.  Congratulations to both you and your Mom.

          Best,

          Maggie

          DZnDef
          Participant

            Patina!  Excellent news!  Thank you so much for sharing!  Encouraging results give all of us hope.  Progress against The Beast.  There's nothing better.  Congratulations to both you and your Mom.

            Best,

            Maggie

            DZnDef
            Participant

              Patina!  Excellent news!  Thank you so much for sharing!  Encouraging results give all of us hope.  Progress against The Beast.  There's nothing better.  Congratulations to both you and your Mom.

              Best,

              Maggie

              Bubbles
              Participant

                That's wonderful, Patina. Wishing continued success for you and your mom! Celeste

                  madhatter84
                  Participant

                    Great news Patina and long may it continue for you and your family!

                     

                    I've read your mother's history and it sounds like I'm a similar level as her in terms of Ipi, brain mets and also Gamma knife so this is really inspirational for me!!

                     

                    Andrew

                    madhatter84
                    Participant

                      Great news Patina and long may it continue for you and your family!

                       

                      I've read your mother's history and it sounds like I'm a similar level as her in terms of Ipi, brain mets and also Gamma knife so this is really inspirational for me!!

                       

                      Andrew

                      Patina
                      Participant

                        Awesome to hear.   Congradulations!

                        Patina
                        Participant

                          Awesome to hear.   Congradulations!

                          Patina
                          Participant

                            Awesome to hear.   Congradulations!

                            madhatter84
                            Participant

                              Great news Patina and long may it continue for you and your family!

                               

                              I've read your mother's history and it sounds like I'm a similar level as her in terms of Ipi, brain mets and also Gamma knife so this is really inspirational for me!!

                               

                              Andrew

                            Bubbles
                            Participant

                              That's wonderful, Patina. Wishing continued success for you and your mom! Celeste

                              Bubbles
                              Participant

                                That's wonderful, Patina. Wishing continued success for you and your mom! Celeste

                            Viewing 5 reply threads
                            • You must be logged in to reply to this topic.
                            About the MRF Patient Forum

                            The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                            The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                            Popular Topics