Stage IV, on ipi, good news today
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Stage IV, on ipi, good news today

› Forums › General Melanoma Community › Stage IV, on ipi, good news today

  • Post
    • May 29, 2014 at 8:33 pm
    laura b
    Participant

      My dad was diagnosed as stage IV (BRAF -) in March with several mets in his lungs. Radiation and surgery were not an option. I tried to get him in a couple of PD1 trials but was unsuccessful. He began Yervoy/ipi treatments on 4/17 and had his third of four infusions today. Before the infusion today, he had his first CT to check for progression. We had been warned that there would most likely be growth at this stage since it takes a while for Yervoy to activate. However, we received some unexpected good news! The scans showed no new growth and no new masses. It even appeared that some of the tumors were thinner, and the radiologist thought he could see the beginning signs of necrosis. We’re still cautiously optimistic, but I wanted to share his experience for all those out there who may just be starting their journey, like my dad. 

      This board has helped me so much with information, options, and encouragement that I have in turn shared with my family. It all felt so dark before I found this community. Thank you to everyone. Wishing you all health, strength and positivity. God bless!

      Laura 

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    • Replies
        • May 29, 2014 at 8:46 pm
        ed williams
        Participant

          When my Oncologist uses the words no change or new tumours from your scans, it puts a big smile on my face!!!  I hope the Ipi kicks in soon and shrinks the cancer. Stage 4 patient in Ottawa Canada.

          • May 29, 2014 at 8:46 pm
          ed williams
          Participant

            When my Oncologist uses the words no change or new tumours from your scans, it puts a big smile on my face!!!  I hope the Ipi kicks in soon and shrinks the cancer. Stage 4 patient in Ottawa Canada.

              • May 29, 2014 at 10:09 pm
              laura b
              Participant

                I agree! We had smiles all around. 🙂 Best wishes to you!

                • May 29, 2014 at 10:09 pm
                laura b
                Participant

                  I agree! We had smiles all around. 🙂 Best wishes to you!

                  • May 29, 2014 at 10:19 pm
                  Ginger8888
                  Participant

                    Great news, i start Yervoy in a few weeks..How were the side effects??

                    • May 29, 2014 at 10:19 pm
                    Ginger8888
                    Participant

                      Great news, i start Yervoy in a few weeks..How were the side effects??

                      • May 29, 2014 at 10:19 pm
                      Ginger8888
                      Participant

                        Great news, i start Yervoy in a few weeks..How were the side effects??

                        • May 29, 2014 at 10:09 pm
                        laura b
                        Participant

                          I agree! We had smiles all around. 🙂 Best wishes to you!

                        • May 29, 2014 at 8:46 pm
                        ed williams
                        Participant

                          When my Oncologist uses the words no change or new tumours from your scans, it puts a big smile on my face!!!  I hope the Ipi kicks in soon and shrinks the cancer. Stage 4 patient in Ottawa Canada.

                          • May 29, 2014 at 11:37 pm
                          BrianP
                          Participant

                            Awesome report Laura.  Sounds very encouraging.  Thanks for sharing.

                            • May 29, 2014 at 11:37 pm
                            BrianP
                            Participant

                              Awesome report Laura.  Sounds very encouraging.  Thanks for sharing.

                              • May 29, 2014 at 11:37 pm
                              BrianP
                              Participant

                                Awesome report Laura.  Sounds very encouraging.  Thanks for sharing.

                                • May 30, 2014 at 4:11 am
                                Swanee
                                Participant

                                  Laura,

                                  Sending continued positive thoughts and healing to your Dad.  Yervoy has helped so many people and hopefully your Dad is just one more and experiences a complete remission!

                                  You are so very right about this websight, a real life saver, regardless of whether you post or just read and learn from everyone else!! 

                                  Swanee

                                   

                                  • May 30, 2014 at 4:11 am
                                  Swanee
                                  Participant

                                    Laura,

                                    Sending continued positive thoughts and healing to your Dad.  Yervoy has helped so many people and hopefully your Dad is just one more and experiences a complete remission!

                                    You are so very right about this websight, a real life saver, regardless of whether you post or just read and learn from everyone else!! 

                                    Swanee

                                     

                                    • May 30, 2014 at 4:11 am
                                    Swanee
                                    Participant

                                      Laura,

                                      Sending continued positive thoughts and healing to your Dad.  Yervoy has helped so many people and hopefully your Dad is just one more and experiences a complete remission!

                                      You are so very right about this websight, a real life saver, regardless of whether you post or just read and learn from everyone else!! 

                                      Swanee

                                       

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