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Stage IV, Still NED – 3 years, 8 mos.
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Stage IV, Still NED – 3 years, 8 mos.

› Forums › General Melanoma Community › Stage IV, Still NED – 3 years, 8 mos.

  • Post
    • March 20, 2014 at 8:37 pm
    Kim K
    Participant

      Just had PET/CT, brain MRI.  Still all clear.  I am still haning onto the long term follow up study of IL-2 responders paper.  No recurrance after 30 months, no one in the study recurred.  I am now well past that mark.

      The next conversation is finding the sweet spot of close monitoring yet reducing my exposure to radiation from all these scans.  I have had at least 9 PET/CT and too many CT scans to count.  I don't want to start another cancer trying to stay free from this one.

      My docs will discuss that next seeing as so few of us make it this far.  In a way, it is a nice problem to have :).

      Wishing all well.

      VATS wedge resection & 23 bags if IL-2 in 2010.  I only had a small lung met and a smaller muscle met in my chest wall.

      Aloha,

      Kim

    Viewing 20 reply threads
    • Replies
        • March 20, 2014 at 11:30 pm
        Fen
        Participant

          Wonderful news, Kim!  Thanks for posting.  

          • March 20, 2014 at 11:30 pm
          Fen
          Participant

            Wonderful news, Kim!  Thanks for posting.  

            • March 20, 2014 at 11:30 pm
            Fen
            Participant

              Wonderful news, Kim!  Thanks for posting.  

              • March 21, 2014 at 2:18 am
              jag
              Participant

                Great news Kim!

                John

                • March 21, 2014 at 2:18 am
                jag
                Participant

                  Great news Kim!

                  John

                  • March 21, 2014 at 2:18 am
                  jag
                  Participant

                    Great news Kim!

                    John

                      • March 21, 2014 at 11:54 am
                      Carole K
                      Participant

                        You go Girl!!!! I can't wait to see you .  I am so excited.  I will call you later today.  I will try to stay up late.. lol   Big Hugs.

                        Love and Light

                        Carole

                        • March 21, 2014 at 11:54 am
                        Carole K
                        Participant

                          You go Girl!!!! I can't wait to see you .  I am so excited.  I will call you later today.  I will try to stay up late.. lol   Big Hugs.

                          Love and Light

                          Carole

                          • March 21, 2014 at 11:54 am
                          Carole K
                          Participant

                            You go Girl!!!! I can't wait to see you .  I am so excited.  I will call you later today.  I will try to stay up late.. lol   Big Hugs.

                            Love and Light

                            Carole

                          • March 21, 2014 at 6:47 pm
                          buffcody
                          Participant

                            Congratulations, Kim, and thanks for posting.  We all are encouraged by this good news!

                            • March 21, 2014 at 6:47 pm
                            buffcody
                            Participant

                              Congratulations, Kim, and thanks for posting.  We all are encouraged by this good news!

                              • March 21, 2014 at 6:47 pm
                              buffcody
                              Participant

                                Congratulations, Kim, and thanks for posting.  We all are encouraged by this good news!

                                • March 22, 2014 at 12:05 am
                                Kelly Smith
                                Participant

                                  AMAZING!!! So happy for you.

                                  • March 22, 2014 at 12:05 am
                                  Kelly Smith
                                  Participant

                                    AMAZING!!! So happy for you.

                                    • March 22, 2014 at 12:05 am
                                    Kelly Smith
                                    Participant

                                      AMAZING!!! So happy for you.

                                      • March 22, 2014 at 12:20 am
                                      kab07011
                                      Participant

                                        AWESOME news!

                                        • March 22, 2014 at 12:20 am
                                        kab07011
                                        Participant

                                          AWESOME news!

                                          • March 22, 2014 at 12:20 am
                                          kab07011
                                          Participant

                                            AWESOME news!

                                            • March 22, 2014 at 12:51 am
                                            Jahendry12
                                            Participant

                                              So happy for you!  Excellent news. 

                                               

                                              • March 22, 2014 at 12:51 am
                                              Jahendry12
                                              Participant

                                                So happy for you!  Excellent news. 

                                                 

                                                • March 22, 2014 at 12:51 am
                                                Jahendry12
                                                Participant

                                                  So happy for you!  Excellent news. 

                                                   

                                                  • March 22, 2014 at 6:18 pm
                                                  Bubbles
                                                  Participant

                                                    That's fabulous, Kim!!  Way to go.  Thanks for sharing! Yours, c

                                                    • March 22, 2014 at 6:18 pm
                                                    Bubbles
                                                    Participant

                                                      That's fabulous, Kim!!  Way to go.  Thanks for sharing! Yours, c

                                                      • March 22, 2014 at 6:18 pm
                                                      Bubbles
                                                      Participant

                                                        That's fabulous, Kim!!  Way to go.  Thanks for sharing! Yours, c

                                                    Viewing 20 reply threads
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