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Started my Clinical Trial
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Started my Clinical Trial

› Forums › General Melanoma Community › Started my Clinical Trial

  • Post
    • December 24, 2017 at 5:30 pm
    Nick C
    Participant

      Merry Christmas to you all!

      I started my trial on Monday (12 hours) with Keytruda and MGA271. No serious side effects, although I did get the chills (that went away with some hot tea) that could have been caused by a cool infusion. Returned 24 hours later for EKG and blood draws and 48 hours later for blood draws. I will receive a combo every three weeks and mono every week. First cycle is 42 days and cycles 2-6 are 63 days with a CT scan after each cycle. The nice thing is that we found this trial 10-15 minutes from home.

      This is my new normal for the next year. I have adjusted my work schedule to 4 days a week ( about 6 months earlier than I planned anyway). Other than infusion related, the main side effect tends to be fatigue. So far, so good on that one. They did take me off some of the supplements I was taking, so we are now looking at other alternatives, such as juicing.

      I know this is just the beginning, but I had the same concerns a year ago when I started Keytruda and never experienced any side effects. Hoping the same holds true this time.

      I appreciate hearing how others are doing on their treatments, like Tex and Mike. It gives us all hope in our respective fights.

      Stay strong and have a wonderful and joyful Christmas.

      Nick

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    • Replies
        • December 24, 2017 at 6:02 pm
        Bubbles
        Participant

          Glad things have gotten started, Nick.  Hope the enoblituzumab with pembro does the trick.  I'll let you know if I find any more data out there.  Hang tough!  Ratties are amazing.  Wishing you and yours a great Christmas!  Celeste

            • December 24, 2017 at 7:20 pm
            Nick C
            Participant

              Thank you Celeste. You have been a wealth of information (saw your post on this trial back July 2016). Merry Christmas to you and yours. May 2018 be the year!  Nick

            • December 24, 2017 at 6:45 pm
            BillB
            Participant

              Hi Nick, good luck with the trial. I have completed 7 Keytruda infusions and overall the side effects have been very mild especially since infusions #6 and 7 and I did have a response.  So far I’ve been scanned once and the five lesions on my lung resolved prior to infusion #4. Fatigue has been the biggest side effect since infusion #6. Some of the mild joint issues have gone away. Next scans will be the 3rd week of January. Bill

                • December 24, 2017 at 7:24 pm
                Nick C
                Participant

                  Hey Bill,thank you.  Iwas on keytruda for 11 months and had no side effects. Hope the fatigue eases up for you. Hoping the best with your scans. Have a Meery Christmas!     Nick

                  • December 24, 2017 at 7:25 pm
                  Nick C
                  Participant

                    Hey Bill,thank you.  I was on keytruda for 11 months and had no side effects. Hope the fatigue eases up for you. Hoping the best with your scans. Have a Meery Christmas!     Nick

                  • December 25, 2017 at 4:25 am
                  TexMelanomex
                  Participant

                    Right on Nick! Take the fight to the enemy brother. I look forward to hearing about the good results! I had some serious chills on a few rounds of the Pembro but those seem to have went away this last round, so hopefully they will be short lived for you too. Merry Christmas and here's to kicking some Melanoma arse in 2018!

                     

                    • December 27, 2017 at 4:59 am
                    MelanomaMike
                    Participant

                      Hay Nick, well i feel like a dumbass, i just wrote you & asked you what treatment yer taking now, and here i find you explaining to us what it is!! hha..anywho, we can BEAT THIS CRAP! as you know, im 2 rounds into Pembro, 3rd bag is Jan 3rd….Stay strong Warrior Nick, yer a funny dude ya know that?…

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