› Forums › Cutaneous Melanoma Community › starting to hate weekends
- This topic has 33 replies, 6 voices, and was last updated 13 years, 2 months ago by
JC.
- Post
-
- June 30, 2012 at 10:41 pm
Hi, I am new here and fairly new to melanoma.
Hi, I am new here and fairly new to melanoma.
7 weeks ago I had an axillary dissection and my recovery had been going great. I went in for my scans to begin a research trial and my chest CT showed " something " … that something is a hard lump that over the past 2 days has gotten slightly bigger and today noticed my skin is a light purplish color over the lump. The lump is located just above my scar from the dissection. Starting to hate weekends because I cant call my doctor to ask so thought maybe joining here would help. Could a tumor grow that quickly ? What about the change in skin color literally overnight ? My hand and wrist on the same arm is slightly swollen, so am wondering if it could be sercoma and not such a quick reoccurrence. I havent even gotten the chance to start a treatment, was still recovering from surgery and even my nurse said it would be a quick return. My dr didnt read my scans, the nurse did and am now waiting for a PET scan. I guess I am hoping for some peace of mind or to know yes I should accept its back so soon and just face it.
little background – primary was a mole on my left hand, had the mole all my life then a year ago it started to fill with blood. Apr of this year, I noticed a swelling under my armpit (left). Had mole biopsy'd, told it was melanoma. Had surgery, wide excersion mole removal, skin graft done and all the lymphnodes removed under my arm…5 out of 15 were cancer.Surgery was May 14th.
- Replies
-
-
- June 30, 2012 at 11:40 pm
Well, I'm certainly no expert and I'm new here too. My husband was diagnosed in April of malignant melanoma of the nasal cavity and he, too, is awaiting treatment pending another biospy of a different lesion and more surgery after that. But to answer your question, it MIGHT be inadequate lymph drainage or a serum build up that will resolve on it's own. After having neck lymph nodes removed, my husband noticed a swelling above the incision area and we were very concerned. It turned out to be serum and did resolve on its own in a week or so. You should consult with your doctor as quickly as possible but try to stay hopeful until you find out what it is.
-
- June 30, 2012 at 11:40 pm
Well, I'm certainly no expert and I'm new here too. My husband was diagnosed in April of malignant melanoma of the nasal cavity and he, too, is awaiting treatment pending another biospy of a different lesion and more surgery after that. But to answer your question, it MIGHT be inadequate lymph drainage or a serum build up that will resolve on it's own. After having neck lymph nodes removed, my husband noticed a swelling above the incision area and we were very concerned. It turned out to be serum and did resolve on its own in a week or so. You should consult with your doctor as quickly as possible but try to stay hopeful until you find out what it is.
-
- June 30, 2012 at 11:40 pm
Well, I'm certainly no expert and I'm new here too. My husband was diagnosed in April of malignant melanoma of the nasal cavity and he, too, is awaiting treatment pending another biospy of a different lesion and more surgery after that. But to answer your question, it MIGHT be inadequate lymph drainage or a serum build up that will resolve on it's own. After having neck lymph nodes removed, my husband noticed a swelling above the incision area and we were very concerned. It turned out to be serum and did resolve on its own in a week or so. You should consult with your doctor as quickly as possible but try to stay hopeful until you find out what it is.
-
- July 1, 2012 at 4:34 am
Thanks for replying, thats what I am hoping it is too. Just since posting this, the color had gotten more noticable, it looks like a bruise but i know it wasnt bruised so not sure whats going on. I'm calling monday morning to tell them the quick change over the weekend.
-
- July 1, 2012 at 4:34 am
Thanks for replying, thats what I am hoping it is too. Just since posting this, the color had gotten more noticable, it looks like a bruise but i know it wasnt bruised so not sure whats going on. I'm calling monday morning to tell them the quick change over the weekend.
-
- July 1, 2012 at 4:34 am
Thanks for replying, thats what I am hoping it is too. Just since posting this, the color had gotten more noticable, it looks like a bruise but i know it wasnt bruised so not sure whats going on. I'm calling monday morning to tell them the quick change over the weekend.
-
- July 1, 2012 at 2:53 pm
I'm sorry that no one can give you a specific answer as to what that lump is near your scar from the dissection. We get this diagnosis that has such fright attached to it. It takes your mind wandering and worrying at such a rapid pace. I'm sure your doctor will want to see you to address the issue of that lump and, hopefully, it will turn out to be something that is accumulating after the surgery. Of course, if there is indication of any discharge, redness, or you feel like are getting sick (fever=infection), then you should contact someone. It is not uncommon for any of us to have had immediate concerns after WLE's or LND's, happening at the most inconvenient time (weekends, holidays). Try to take a deep breath. You only have this day, and then you can talk to your doctor.
I am no expert by any means—-but I am concerned that there could be some confusion here with the nurse reading your scans. Is this who told you that the chest CT showed "something" and did she really suggest that this "something" is the lump near your scar? Generally speaking (again, no doctor here, just 7 years of reading and observing other mel situations), CT scan talk involves observations of your body internally.
What I DO know is that your lymph node dissection surgery was a big deal, takes a while to heal (I had that done, too, almost 7 years ago). The swelling in your hand and arm is not abnormal for that surgery, but it is something that should be addressed (lymphedema). I found a manual lymphatic drainage therapist in my area who helped me immensely. (I found her by calling a breast cancer support group) Hopefully, your doctor can direct you to someone or you can make some calls to find someone to help you with that. At the least, your doctor could give you a script for a compression sleeve (like an elastic stocking) to wear to impede the progress of anymore swelling. But this shouldn't be done on your own—let a medical prof direct you on this.
I wish there was more I could do to ease your mind today. Just know that many of us have travelled the road you are on at this moment. Try, try to take it one day at a time. Maybe allow yourself some panic time, but try hard not to let melanoma take over so completely to take away this SUnday from you. Don't give it that much power. Take on the fight tomorrow with your doctor at your side. Turn your back on that melanoma bully today.
CarolA
Orig dx March 2005 Stage III
Hanging on!! (awaiting results of CT and MRI)
-
- July 1, 2012 at 2:53 pm
I'm sorry that no one can give you a specific answer as to what that lump is near your scar from the dissection. We get this diagnosis that has such fright attached to it. It takes your mind wandering and worrying at such a rapid pace. I'm sure your doctor will want to see you to address the issue of that lump and, hopefully, it will turn out to be something that is accumulating after the surgery. Of course, if there is indication of any discharge, redness, or you feel like are getting sick (fever=infection), then you should contact someone. It is not uncommon for any of us to have had immediate concerns after WLE's or LND's, happening at the most inconvenient time (weekends, holidays). Try to take a deep breath. You only have this day, and then you can talk to your doctor.
I am no expert by any means—-but I am concerned that there could be some confusion here with the nurse reading your scans. Is this who told you that the chest CT showed "something" and did she really suggest that this "something" is the lump near your scar? Generally speaking (again, no doctor here, just 7 years of reading and observing other mel situations), CT scan talk involves observations of your body internally.
What I DO know is that your lymph node dissection surgery was a big deal, takes a while to heal (I had that done, too, almost 7 years ago). The swelling in your hand and arm is not abnormal for that surgery, but it is something that should be addressed (lymphedema). I found a manual lymphatic drainage therapist in my area who helped me immensely. (I found her by calling a breast cancer support group) Hopefully, your doctor can direct you to someone or you can make some calls to find someone to help you with that. At the least, your doctor could give you a script for a compression sleeve (like an elastic stocking) to wear to impede the progress of anymore swelling. But this shouldn't be done on your own—let a medical prof direct you on this.
I wish there was more I could do to ease your mind today. Just know that many of us have travelled the road you are on at this moment. Try, try to take it one day at a time. Maybe allow yourself some panic time, but try hard not to let melanoma take over so completely to take away this SUnday from you. Don't give it that much power. Take on the fight tomorrow with your doctor at your side. Turn your back on that melanoma bully today.
CarolA
Orig dx March 2005 Stage III
Hanging on!! (awaiting results of CT and MRI)
-
- July 1, 2012 at 2:53 pm
I'm sorry that no one can give you a specific answer as to what that lump is near your scar from the dissection. We get this diagnosis that has such fright attached to it. It takes your mind wandering and worrying at such a rapid pace. I'm sure your doctor will want to see you to address the issue of that lump and, hopefully, it will turn out to be something that is accumulating after the surgery. Of course, if there is indication of any discharge, redness, or you feel like are getting sick (fever=infection), then you should contact someone. It is not uncommon for any of us to have had immediate concerns after WLE's or LND's, happening at the most inconvenient time (weekends, holidays). Try to take a deep breath. You only have this day, and then you can talk to your doctor.
I am no expert by any means—-but I am concerned that there could be some confusion here with the nurse reading your scans. Is this who told you that the chest CT showed "something" and did she really suggest that this "something" is the lump near your scar? Generally speaking (again, no doctor here, just 7 years of reading and observing other mel situations), CT scan talk involves observations of your body internally.
What I DO know is that your lymph node dissection surgery was a big deal, takes a while to heal (I had that done, too, almost 7 years ago). The swelling in your hand and arm is not abnormal for that surgery, but it is something that should be addressed (lymphedema). I found a manual lymphatic drainage therapist in my area who helped me immensely. (I found her by calling a breast cancer support group) Hopefully, your doctor can direct you to someone or you can make some calls to find someone to help you with that. At the least, your doctor could give you a script for a compression sleeve (like an elastic stocking) to wear to impede the progress of anymore swelling. But this shouldn't be done on your own—let a medical prof direct you on this.
I wish there was more I could do to ease your mind today. Just know that many of us have travelled the road you are on at this moment. Try, try to take it one day at a time. Maybe allow yourself some panic time, but try hard not to let melanoma take over so completely to take away this SUnday from you. Don't give it that much power. Take on the fight tomorrow with your doctor at your side. Turn your back on that melanoma bully today.
CarolA
Orig dx March 2005 Stage III
Hanging on!! (awaiting results of CT and MRI)
-
- July 1, 2012 at 5:37 pm
I guess sitting through the weekend wondering what it could be is one way of approaching things, but why not assume it is and plan ahead for the next treatment. What if it is? What are you going to do next? do you have any treatment plans in mind? trials you have investigated? Planning for the worst is the way to manage this disease the best. Looking at a bump and wondering isn't going to change things by a phone call to your doctor on monday,nor is posting a picture of it here. It needs a biopsy and to be looked at under a microscope to confirm it. Even your doctor won't know just by looking at it. When are you going to schedule an appointment to have it biopsied? How long will it take to get results? How will you change your schedule around-to minimize time spent in the hospital? I would be on clinicaltrials.gov looking into trials based on changes in stage right now if it were me, then just enjoy the rest of your Sunday. When you get into see your oncologist/surgeon, you can get them going looking into these treatments for you. You are paying their salary, they should be working for you.
Or you can sit and wonder throughout the weekend.
-
- July 1, 2012 at 6:13 pm
jag, at first read, I thought Charlie wrote this (that's a compliment). I like the way you stated being proactive as the activity to do, rather than worrying/wondering, to make plans IF this "is." Some people would disagree, I'm sure. But I think this is a good alternative, IF the person can handle wading into the internet informational pool objectively to gather data and not fear. Fine line to walk in this melanoma world. Even after all these years, I still find it hard to put my toe in to wade, taking a very deep breath into the world of "what if . . . " But I do agree with you now. I think after 7 years I realize I have melanoma, in tribute to warriors here I learned from their experiences, and that knowledge is power and a plan in place reduces stress.
CarolA
-
- July 1, 2012 at 10:29 pm
I have already set my mind that its back, this is how I approached everything to do with melonman since this journey began but I did need that moment of wondering, I am human after all and fear sets in no matter your mind set. This " something" was discovered during the scans I needed done so i could begin my research trial treatments. I originally picked one that would randomized me in a computer to either get interferon , 3 of ipi or 10 of ipi but IF this is a tumor then I will be put in the 10 ipi now and surgery later. So my next steps are known, its just getting to thi steps now.
Thanks for all the replies and you're right, I refuse to let it ruin my days even if I allow myself that moment of fear and worry.
-
- July 1, 2012 at 10:29 pm
I have already set my mind that its back, this is how I approached everything to do with melonman since this journey began but I did need that moment of wondering, I am human after all and fear sets in no matter your mind set. This " something" was discovered during the scans I needed done so i could begin my research trial treatments. I originally picked one that would randomized me in a computer to either get interferon , 3 of ipi or 10 of ipi but IF this is a tumor then I will be put in the 10 ipi now and surgery later. So my next steps are known, its just getting to thi steps now.
Thanks for all the replies and you're right, I refuse to let it ruin my days even if I allow myself that moment of fear and worry.
-
- July 1, 2012 at 10:29 pm
I have already set my mind that its back, this is how I approached everything to do with melonman since this journey began but I did need that moment of wondering, I am human after all and fear sets in no matter your mind set. This " something" was discovered during the scans I needed done so i could begin my research trial treatments. I originally picked one that would randomized me in a computer to either get interferon , 3 of ipi or 10 of ipi but IF this is a tumor then I will be put in the 10 ipi now and surgery later. So my next steps are known, its just getting to thi steps now.
Thanks for all the replies and you're right, I refuse to let it ruin my days even if I allow myself that moment of fear and worry.
-
- July 1, 2012 at 10:30 pm
I have already set my mind that its back, this is how I approached everything to do with melonman since this journey began but I did need that moment of wondering, I am human after all and fear sets in no matter your mind set. This " something" was discovered during the scans I needed done so i could begin my research trial treatments. I originally picked one that would randomized me in a computer to either get interferon , 3 of ipi or 10 of ipi but IF this is a tumor then I will be put in the 10 ipi now and surgery later. So my next steps are known, its just getting to thi steps now.
Thanks for all the replies and you're right, I refuse to let it ruin my days even if I allow myself that moment of fear and worry.
-
- July 1, 2012 at 10:30 pm
I have already set my mind that its back, this is how I approached everything to do with melonman since this journey began but I did need that moment of wondering, I am human after all and fear sets in no matter your mind set. This " something" was discovered during the scans I needed done so i could begin my research trial treatments. I originally picked one that would randomized me in a computer to either get interferon , 3 of ipi or 10 of ipi but IF this is a tumor then I will be put in the 10 ipi now and surgery later. So my next steps are known, its just getting to thi steps now.
Thanks for all the replies and you're right, I refuse to let it ruin my days even if I allow myself that moment of fear and worry.
-
- July 1, 2012 at 10:30 pm
I have already set my mind that its back, this is how I approached everything to do with melonman since this journey began but I did need that moment of wondering, I am human after all and fear sets in no matter your mind set. This " something" was discovered during the scans I needed done so i could begin my research trial treatments. I originally picked one that would randomized me in a computer to either get interferon , 3 of ipi or 10 of ipi but IF this is a tumor then I will be put in the 10 ipi now and surgery later. So my next steps are known, its just getting to thi steps now.
Thanks for all the replies and you're right, I refuse to let it ruin my days even if I allow myself that moment of fear and worry.
-
- July 2, 2012 at 10:57 am
Thanks Carol, my point is that there is no sense and sitting there in fear. At this point, for me, melanoma is a chronic disease, and I just like to find ways to manage it. It is definitely no fun going in for treatments and sometimes the fear creaps back into me too, so I can relate. When I get in that zone, sometimes I need a kick in the butt to start thinking about what is important, what I can change, what you can't and how to best maximize my quality time. Stress is not a good thing when fighting cancer.
-
- July 2, 2012 at 10:57 am
Thanks Carol, my point is that there is no sense and sitting there in fear. At this point, for me, melanoma is a chronic disease, and I just like to find ways to manage it. It is definitely no fun going in for treatments and sometimes the fear creaps back into me too, so I can relate. When I get in that zone, sometimes I need a kick in the butt to start thinking about what is important, what I can change, what you can't and how to best maximize my quality time. Stress is not a good thing when fighting cancer.
-
- July 2, 2012 at 10:57 am
Thanks Carol, my point is that there is no sense and sitting there in fear. At this point, for me, melanoma is a chronic disease, and I just like to find ways to manage it. It is definitely no fun going in for treatments and sometimes the fear creaps back into me too, so I can relate. When I get in that zone, sometimes I need a kick in the butt to start thinking about what is important, what I can change, what you can't and how to best maximize my quality time. Stress is not a good thing when fighting cancer.
-
- July 1, 2012 at 6:13 pm
jag, at first read, I thought Charlie wrote this (that's a compliment). I like the way you stated being proactive as the activity to do, rather than worrying/wondering, to make plans IF this "is." Some people would disagree, I'm sure. But I think this is a good alternative, IF the person can handle wading into the internet informational pool objectively to gather data and not fear. Fine line to walk in this melanoma world. Even after all these years, I still find it hard to put my toe in to wade, taking a very deep breath into the world of "what if . . . " But I do agree with you now. I think after 7 years I realize I have melanoma, in tribute to warriors here I learned from their experiences, and that knowledge is power and a plan in place reduces stress.
CarolA
-
- July 1, 2012 at 6:13 pm
jag, at first read, I thought Charlie wrote this (that's a compliment). I like the way you stated being proactive as the activity to do, rather than worrying/wondering, to make plans IF this "is." Some people would disagree, I'm sure. But I think this is a good alternative, IF the person can handle wading into the internet informational pool objectively to gather data and not fear. Fine line to walk in this melanoma world. Even after all these years, I still find it hard to put my toe in to wade, taking a very deep breath into the world of "what if . . . " But I do agree with you now. I think after 7 years I realize I have melanoma, in tribute to warriors here I learned from their experiences, and that knowledge is power and a plan in place reduces stress.
CarolA
-
- July 1, 2012 at 5:37 pm
I guess sitting through the weekend wondering what it could be is one way of approaching things, but why not assume it is and plan ahead for the next treatment. What if it is? What are you going to do next? do you have any treatment plans in mind? trials you have investigated? Planning for the worst is the way to manage this disease the best. Looking at a bump and wondering isn't going to change things by a phone call to your doctor on monday,nor is posting a picture of it here. It needs a biopsy and to be looked at under a microscope to confirm it. Even your doctor won't know just by looking at it. When are you going to schedule an appointment to have it biopsied? How long will it take to get results? How will you change your schedule around-to minimize time spent in the hospital? I would be on clinicaltrials.gov looking into trials based on changes in stage right now if it were me, then just enjoy the rest of your Sunday. When you get into see your oncologist/surgeon, you can get them going looking into these treatments for you. You are paying their salary, they should be working for you.
Or you can sit and wonder throughout the weekend.
-
- July 1, 2012 at 5:37 pm
I guess sitting through the weekend wondering what it could be is one way of approaching things, but why not assume it is and plan ahead for the next treatment. What if it is? What are you going to do next? do you have any treatment plans in mind? trials you have investigated? Planning for the worst is the way to manage this disease the best. Looking at a bump and wondering isn't going to change things by a phone call to your doctor on monday,nor is posting a picture of it here. It needs a biopsy and to be looked at under a microscope to confirm it. Even your doctor won't know just by looking at it. When are you going to schedule an appointment to have it biopsied? How long will it take to get results? How will you change your schedule around-to minimize time spent in the hospital? I would be on clinicaltrials.gov looking into trials based on changes in stage right now if it were me, then just enjoy the rest of your Sunday. When you get into see your oncologist/surgeon, you can get them going looking into these treatments for you. You are paying their salary, they should be working for you.
Or you can sit and wonder throughout the weekend.
-
Tagged: cutaneous melanoma
- You must be logged in to reply to this topic.