MRF-Logo2019-Horizontal-RGB
Still Plugging
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Still Plugging

› Forums › General Melanoma Community › Still Plugging

  • Post
    • February 6, 2017 at 1:31 am
    _Paul_
    Participant

      Wow, where to start. My cancer continues to grow and spread. I am in Seattle, back at the hospital. It was simply getting too hard to do the most basic of things back home. I have a surgery planned tomorrow to place a stent in one if my kidneys. It can't drain urine because it is blocked by a tumor.  I have gained about 20 pounds in water and I am bloated from my toes to my midriff. This big tumor in my lower right lobe is squeezing a large part of the lung shut, which is developing bronchitis-like symptoms, I.e a wet cough.

      I will fly back to LA where I have a room waiting in Palliative Care.

      The plan is to consent the trial on Thursday and receive my first infusion the following Wednesday. It feels like a race. I just need to survive long enough to see if this new treatment can turn things around. I have put up the best fight I know how. I have so much to live for, not to mention the awesome story I would have, but I am just going to do my best and hope for the best.

      – Paul

    Viewing 47 reply threads
    • Replies
        • February 6, 2017 at 2:02 am
        snow white
        Participant

          So happy to see an update.  Just keep fighting and don't give up, you have fought a great fight already and I know you will continue to.  Praying that things go as planned and that you can consent the trial and get going with it, I know this will bring great peace of mind to you. I am so sorry to hear about the progression, but your still here and thats all that matters.  Safe travels to you.

          xo Jen

          • February 6, 2017 at 2:02 am
          snow white
          Participant

            So happy to see an update.  Just keep fighting and don't give up, you have fought a great fight already and I know you will continue to.  Praying that things go as planned and that you can consent the trial and get going with it, I know this will bring great peace of mind to you. I am so sorry to hear about the progression, but your still here and thats all that matters.  Safe travels to you.

            xo Jen

            • February 6, 2017 at 2:02 am
            snow white
            Participant

              So happy to see an update.  Just keep fighting and don't give up, you have fought a great fight already and I know you will continue to.  Praying that things go as planned and that you can consent the trial and get going with it, I know this will bring great peace of mind to you. I am so sorry to hear about the progression, but your still here and thats all that matters.  Safe travels to you.

              xo Jen

              • February 6, 2017 at 2:50 am
              Marksa2570
              Participant

                Hi Paul… I am new to the board but you will be in my thoughts and prayers.   Fight on!   

                • February 6, 2017 at 2:50 am
                Marksa2570
                Participant

                  Hi Paul… I am new to the board but you will be in my thoughts and prayers.   Fight on!   

                  • February 6, 2017 at 2:50 am
                  Marksa2570
                  Participant

                    Hi Paul… I am new to the board but you will be in my thoughts and prayers.   Fight on!   

                    • February 6, 2017 at 3:05 am
                    jennunicorn
                    Participant

                      What a pain in the ass this stuff is! Sending a huge hug and as always lots of positive vibes to send you into the trial and back on the path of melanoma butt kicking!

                      • February 6, 2017 at 3:05 am
                      jennunicorn
                      Participant

                        What a pain in the ass this stuff is! Sending a huge hug and as always lots of positive vibes to send you into the trial and back on the path of melanoma butt kicking!

                        • February 6, 2017 at 3:05 am
                        jennunicorn
                        Participant

                          What a pain in the ass this stuff is! Sending a huge hug and as always lots of positive vibes to send you into the trial and back on the path of melanoma butt kicking!

                          • February 6, 2017 at 3:12 am
                          Bubbles
                          Participant

                            Oh, Paulster!  You have put up one hell of a fight, with honesty, integrity, faith and humor.  I love you like a brother I never had and KNOW that ratties are the best peeps ever! Ratties are awesome and have the longest taiis (Tales!!!)!  I stand ready and waiting to hear all of yours!  Hang in there! love, celeste

                            • February 6, 2017 at 3:12 am
                            Bubbles
                            Participant

                              Oh, Paulster!  You have put up one hell of a fight, with honesty, integrity, faith and humor.  I love you like a brother I never had and KNOW that ratties are the best peeps ever! Ratties are awesome and have the longest taiis (Tales!!!)!  I stand ready and waiting to hear all of yours!  Hang in there! love, celeste

                              • February 6, 2017 at 3:12 am
                              Bubbles
                              Participant

                                Oh, Paulster!  You have put up one hell of a fight, with honesty, integrity, faith and humor.  I love you like a brother I never had and KNOW that ratties are the best peeps ever! Ratties are awesome and have the longest taiis (Tales!!!)!  I stand ready and waiting to hear all of yours!  Hang in there! love, celeste

                                • February 6, 2017 at 3:35 am
                                casagrayson
                                Participant

                                  Paul, you are so strong and you have so much fight.  Just hang in there a little longer, buddy, and let the trial meds do their magic.  I want to hear that awesome story of yours!!!  

                                  • February 6, 2017 at 3:35 am
                                  casagrayson
                                  Participant

                                    Paul, you are so strong and you have so much fight.  Just hang in there a little longer, buddy, and let the trial meds do their magic.  I want to hear that awesome story of yours!!!  

                                    • February 6, 2017 at 3:35 am
                                    casagrayson
                                    Participant

                                      Paul, you are so strong and you have so much fight.  Just hang in there a little longer, buddy, and let the trial meds do their magic.  I want to hear that awesome story of yours!!!  

                                      • February 6, 2017 at 4:11 am
                                      Mark_DC
                                      Participant

                                        Paul, so much travelling, hope they fix the fluid probkem and that you will be back jn LA soon and then on treatment. I love your posts and how much you help all of us. Good luck prayerstoo Mark

                                        • February 6, 2017 at 4:11 am
                                        Mark_DC
                                        Participant

                                          Paul, so much travelling, hope they fix the fluid probkem and that you will be back jn LA soon and then on treatment. I love your posts and how much you help all of us. Good luck prayerstoo Mark

                                          • February 6, 2017 at 4:11 am
                                          Mark_DC
                                          Participant

                                            Paul, so much travelling, hope they fix the fluid probkem and that you will be back jn LA soon and then on treatment. I love your posts and how much you help all of us. Good luck prayerstoo Mark

                                            • February 6, 2017 at 4:36 am
                                            sister of patient
                                            Participant

                                              Hi Paul,  wow, you are truly a David slaying goliath!! May your new secret weapon strike this monster down!!! I will hold that thought in mind for you!!! Best thoughts and wishes!!

                                              Barb

                                              • February 6, 2017 at 4:36 am
                                              sister of patient
                                              Participant

                                                Hi Paul,  wow, you are truly a David slaying goliath!! May your new secret weapon strike this monster down!!! I will hold that thought in mind for you!!! Best thoughts and wishes!!

                                                Barb

                                                • February 6, 2017 at 4:36 am
                                                sister of patient
                                                Participant

                                                  Hi Paul,  wow, you are truly a David slaying goliath!! May your new secret weapon strike this monster down!!! I will hold that thought in mind for you!!! Best thoughts and wishes!!

                                                  Barb

                                                  • February 6, 2017 at 8:13 am
                                                  Patrisa
                                                  Participant

                                                    Dear Paul,

                                                    no words of wisdom here, just my sincerest hope for you to pull through…. I just hope you get on the darn treatment already, hope your stent is the last hurdle and from then on only positive news from you!

                                                    I am rooting for you, thinking of you every day, hoping for the best….

                                                    Love,

                                                    Patrisa

                                                     

                                                     

                                                    • February 6, 2017 at 8:13 am
                                                    Patrisa
                                                    Participant

                                                      Dear Paul,

                                                      no words of wisdom here, just my sincerest hope for you to pull through…. I just hope you get on the darn treatment already, hope your stent is the last hurdle and from then on only positive news from you!

                                                      I am rooting for you, thinking of you every day, hoping for the best….

                                                      Love,

                                                      Patrisa

                                                       

                                                       

                                                      • February 6, 2017 at 8:13 am
                                                      Patrisa
                                                      Participant

                                                        Dear Paul,

                                                        no words of wisdom here, just my sincerest hope for you to pull through…. I just hope you get on the darn treatment already, hope your stent is the last hurdle and from then on only positive news from you!

                                                        I am rooting for you, thinking of you every day, hoping for the best….

                                                        Love,

                                                        Patrisa

                                                         

                                                         

                                                        • February 6, 2017 at 11:54 am
                                                        Shaneswife
                                                        Participant
                                                          Keep up the good fight Paul. We are all rooting for you.

                                                          Janis

                                                          • February 6, 2017 at 11:54 am
                                                          Shaneswife
                                                          Participant
                                                            Keep up the good fight Paul. We are all rooting for you.

                                                            Janis

                                                            • February 6, 2017 at 11:54 am
                                                            Shaneswife
                                                            Participant
                                                              Keep up the good fight Paul. We are all rooting for you.

                                                              Janis

                                                              • February 6, 2017 at 12:38 pm
                                                              rosa1
                                                              Participant

                                                                Dear Paul,

                                                                praying for you, keep strong.

                                                                Rosa

                                                                • February 6, 2017 at 12:38 pm
                                                                rosa1
                                                                Participant

                                                                  Dear Paul,

                                                                  praying for you, keep strong.

                                                                  Rosa

                                                                  • February 6, 2017 at 12:38 pm
                                                                  rosa1
                                                                  Participant

                                                                    Dear Paul,

                                                                    praying for you, keep strong.

                                                                    Rosa

                                                                    • February 6, 2017 at 12:50 pm
                                                                    momof4boys
                                                                    Participant
                                                                      Don’t give up yet Paul! Take it hour by hour, one day at a time. You have already proven to have incredible strength within you, use it to keep plugging along. Maybe this trial is the last straw you need. Sending prayers your way Paul. Also know you have been amazing to this site and like Josh, we are all waiting to hear from you as well.
                                                                      • February 6, 2017 at 12:50 pm
                                                                      momof4boys
                                                                      Participant
                                                                        Don’t give up yet Paul! Take it hour by hour, one day at a time. You have already proven to have incredible strength within you, use it to keep plugging along. Maybe this trial is the last straw you need. Sending prayers your way Paul. Also know you have been amazing to this site and like Josh, we are all waiting to hear from you as well.
                                                                        • February 6, 2017 at 12:50 pm
                                                                        momof4boys
                                                                        Participant
                                                                          Don’t give up yet Paul! Take it hour by hour, one day at a time. You have already proven to have incredible strength within you, use it to keep plugging along. Maybe this trial is the last straw you need. Sending prayers your way Paul. Also know you have been amazing to this site and like Josh, we are all waiting to hear from you as well.
                                                                          • February 6, 2017 at 2:56 pm
                                                                          iskitwo
                                                                          Participant

                                                                            Continued Prayers!!

                                                                            Missy

                                                                            • February 6, 2017 at 2:56 pm
                                                                            iskitwo
                                                                            Participant

                                                                              Continued Prayers!!

                                                                              Missy

                                                                              • February 6, 2017 at 2:56 pm
                                                                              iskitwo
                                                                              Participant

                                                                                Continued Prayers!!

                                                                                Missy

                                                                                • February 6, 2017 at 4:39 pm
                                                                                jenny22
                                                                                Participant

                                                                                  Paul- We are all "plugging" right along with you……just want you to start treatment and hoping this is is the one for you….

                                                                                  Thinking of you, rooting for you,  and sincerely hoping for rapid improvement.

                                                                                  ALL MY BEST WISHES!!!!!!!!

                                                                                  jenny

                                                                                  • February 6, 2017 at 4:39 pm
                                                                                  jenny22
                                                                                  Participant

                                                                                    Paul- We are all "plugging" right along with you……just want you to start treatment and hoping this is is the one for you….

                                                                                    Thinking of you, rooting for you,  and sincerely hoping for rapid improvement.

                                                                                    ALL MY BEST WISHES!!!!!!!!

                                                                                    jenny

                                                                                    • February 6, 2017 at 4:39 pm
                                                                                    jenny22
                                                                                    Participant

                                                                                      Paul- We are all "plugging" right along with you……just want you to start treatment and hoping this is is the one for you….

                                                                                      Thinking of you, rooting for you,  and sincerely hoping for rapid improvement.

                                                                                      ALL MY BEST WISHES!!!!!!!!

                                                                                      jenny

                                                                                      • February 6, 2017 at 6:06 pm
                                                                                      debwray
                                                                                      Participant

                                                                                        Thanks for updating everybody. Hope the kidney surgery is a breeze and that you are more comfortable before the trial starts. Hoping for the very best possible results for you from this latest trial. Looking forward to more tales of teasing the nurses etc

                                                                                        Best of wishes,

                                                                                        Deb

                                                                                        xx

                                                                                        • February 6, 2017 at 6:06 pm
                                                                                        debwray
                                                                                        Participant

                                                                                          Thanks for updating everybody. Hope the kidney surgery is a breeze and that you are more comfortable before the trial starts. Hoping for the very best possible results for you from this latest trial. Looking forward to more tales of teasing the nurses etc

                                                                                          Best of wishes,

                                                                                          Deb

                                                                                          xx

                                                                                          • February 6, 2017 at 6:06 pm
                                                                                          debwray
                                                                                          Participant

                                                                                            Thanks for updating everybody. Hope the kidney surgery is a breeze and that you are more comfortable before the trial starts. Hoping for the very best possible results for you from this latest trial. Looking forward to more tales of teasing the nurses etc

                                                                                            Best of wishes,

                                                                                            Deb

                                                                                            xx

                                                                                            • February 6, 2017 at 6:15 pm
                                                                                            Polymath
                                                                                            Participant

                                                                                              Hey Paul,

                                                                                              No doubt you are a fighter. Yesterday, during the game, I told my wife I would go take a nap at halftime.  After all, no team in history had ever come back from such a deep deficit.  We all know what happened.  Lets make this a lesson for all of us.  Grit, determination, and working with a team of specialists can turn anything around, can make the impossible, possible.  We are cheering for you.

                                                                                              Gary

                                                                                                • February 6, 2017 at 8:51 pm
                                                                                                KeepHeadUp
                                                                                                Participant

                                                                                                  Thinking of you today, Paul!!!  You are a fighter and have a whole team of fighters behind you supporting you on this board.  Keep us posted as to how you are doing.  Wishing you a speedy surgical recovery and then onto the next step!  You can do this!

                                                                                                  • February 6, 2017 at 8:51 pm
                                                                                                  KeepHeadUp
                                                                                                  Participant

                                                                                                    Thinking of you today, Paul!!!  You are a fighter and have a whole team of fighters behind you supporting you on this board.  Keep us posted as to how you are doing.  Wishing you a speedy surgical recovery and then onto the next step!  You can do this!

                                                                                                    • February 6, 2017 at 8:51 pm
                                                                                                    KeepHeadUp
                                                                                                    Participant

                                                                                                      Thinking of you today, Paul!!!  You are a fighter and have a whole team of fighters behind you supporting you on this board.  Keep us posted as to how you are doing.  Wishing you a speedy surgical recovery and then onto the next step!  You can do this!

                                                                                                    • February 6, 2017 at 6:15 pm
                                                                                                    Polymath
                                                                                                    Participant

                                                                                                      Hey Paul,

                                                                                                      No doubt you are a fighter. Yesterday, during the game, I told my wife I would go take a nap at halftime.  After all, no team in history had ever come back from such a deep deficit.  We all know what happened.  Lets make this a lesson for all of us.  Grit, determination, and working with a team of specialists can turn anything around, can make the impossible, possible.  We are cheering for you.

                                                                                                      Gary

                                                                                                      • February 6, 2017 at 6:15 pm
                                                                                                      Polymath
                                                                                                      Participant

                                                                                                        Hey Paul,

                                                                                                        No doubt you are a fighter. Yesterday, during the game, I told my wife I would go take a nap at halftime.  After all, no team in history had ever come back from such a deep deficit.  We all know what happened.  Lets make this a lesson for all of us.  Grit, determination, and working with a team of specialists can turn anything around, can make the impossible, possible.  We are cheering for you.

                                                                                                        Gary

                                                                                                        • February 7, 2017 at 3:13 am
                                                                                                        maperny
                                                                                                        Participant

                                                                                                          What an inspiration you are to everyone fighting this monster.  You'll be on that trial before you know it and the monster will see who's the boss.

                                                                                                          praying for you

                                                                                                          Maria

                                                                                                          • February 7, 2017 at 3:13 am
                                                                                                          maperny
                                                                                                          Participant

                                                                                                            What an inspiration you are to everyone fighting this monster.  You'll be on that trial before you know it and the monster will see who's the boss.

                                                                                                            praying for you

                                                                                                            Maria

                                                                                                              • February 10, 2017 at 11:58 pm
                                                                                                              besjana
                                                                                                              Participant

                                                                                                                Hello Paul, you truly are an ispiration ♡. Please keep fighting!

                                                                                                                My prayers go to you!

                                                                                                                • February 10, 2017 at 11:58 pm
                                                                                                                besjana
                                                                                                                Participant

                                                                                                                  Hello Paul, you truly are an ispiration ♡. Please keep fighting!

                                                                                                                  My prayers go to you!

                                                                                                                  • February 10, 2017 at 11:58 pm
                                                                                                                  besjana
                                                                                                                  Participant

                                                                                                                    Hello Paul, you truly are an ispiration ♡. Please keep fighting!

                                                                                                                    My prayers go to you!

                                                                                                                  • February 7, 2017 at 3:13 am
                                                                                                                  maperny
                                                                                                                  Participant

                                                                                                                    What an inspiration you are to everyone fighting this monster.  You'll be on that trial before you know it and the monster will see who's the boss.

                                                                                                                    praying for you

                                                                                                                    Maria

                                                                                                                Viewing 47 reply threads
                                                                                                                • You must be logged in to reply to this topic.
                                                                                                                About the MRF Patient Forum

                                                                                                                The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                                                                                                The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                                                                                                                Popular Topics