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strange headache when sitting up (stage 4, mets brain, had WBRT, now nivo/ipi))
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strange headache when sitting up (stage 4, mets brain, had WBRT, now nivo/ipi))

› Forums › General Melanoma Community › strange headache when sitting up (stage 4, mets brain, had WBRT, now nivo/ipi))

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    • February 28, 2017 at 10:56 pm
    Judy Steven’s wife
    Participant

      HI, my husband Steven has several brain mets, had WBRT in January, now on nivo/ipi and back on steroids because of edema in brain. So, since a few days, he gets a severe headache whenever he changes position from horizontal to vertical, for example getting up from bed. This is worse in the afternoon when he's had a nap. It suddenly started last Saturday, oncologist advised to go to ER, to check for possible bleeding of mets, but scan looked okay, tumors seem to be shrinking! But what could cause this weird pain, everytime he goes from lying down to sitting up? The headaches stay after he has gotten up. I make sure he drinks enough, so it is not because of dehydration. No other neurological symptoms. Anyone experienced the same? I was thinking of the dead tumor cells, could they cause issues? He has a total of 9 tumors, ranging from a few mm to 5 cm. And some more in his body. Tomorrow we will see the oncologist again to do blood tests and we will talk with her, but I am wondering if anyone of you has experience or ideas.

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