› Forums › Caregiver Community › support for caregivers…..
- This topic has 42 replies, 7 voices, and was last updated 8 years, 4 months ago by
snow white.
- Post
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- January 10, 2017 at 6:21 pm
Hello my friends. i am reaching out for my Mom. She is desperatley in need of some kind of support to get her through this time with my Dad. Unfortuantely, the boards I believe are just to much information for her. Mom has tried to get in contact with a few groups, but unfortunaltey has never received a reply back. I have also reached out to MRF to see of any suggestions from them. Let me know if you have any suggestions. THANK YOU!!!!
Jen
- Replies
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- January 10, 2017 at 7:06 pm
Are these any use http://melanomainternational.org/web-resources/online-resources/#Caregiver
Is your Mum happy with forums or is it telephone support more likely to hit the spot ?
If you were in the UK would suggest Macmillan..or Maggys Centres….
Deb
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- January 10, 2017 at 7:38 pm
Yes, and MIF also has a helpline for patients and caregivers: 866-463-6663 plus the forum just for caregivers: http://forum.melanomainternational.org/mif/for-caregivers-only
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- January 10, 2017 at 8:11 pm
Awesome! I didnt know about the caregivers only forum. I will check it out and ask her what she thinks!
Thanks again!
Jen
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- January 10, 2017 at 8:11 pm
Awesome! I didnt know about the caregivers only forum. I will check it out and ask her what she thinks!
Thanks again!
Jen
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- January 10, 2017 at 8:11 pm
Awesome! I didnt know about the caregivers only forum. I will check it out and ask her what she thinks!
Thanks again!
Jen
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- January 10, 2017 at 7:38 pm
Yes, and MIF also has a helpline for patients and caregivers: 866-463-6663 plus the forum just for caregivers: http://forum.melanomainternational.org/mif/for-caregivers-only
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- January 10, 2017 at 7:38 pm
Yes, and MIF also has a helpline for patients and caregivers: 866-463-6663 plus the forum just for caregivers: http://forum.melanomainternational.org/mif/for-caregivers-only
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- January 10, 2017 at 8:10 pm
Thanks Deb, I will look into your link! I think telephone support might be the best option.
🙂
Jen
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- January 10, 2017 at 8:10 pm
Thanks Deb, I will look into your link! I think telephone support might be the best option.
🙂
Jen
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- January 10, 2017 at 8:10 pm
Thanks Deb, I will look into your link! I think telephone support might be the best option.
🙂
Jen
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- January 10, 2017 at 7:06 pm
Are these any use http://melanomainternational.org/web-resources/online-resources/#Caregiver
Is your Mum happy with forums or is it telephone support more likely to hit the spot ?
If you were in the UK would suggest Macmillan..or Maggys Centres….
Deb
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- January 10, 2017 at 7:06 pm
Are these any use http://melanomainternational.org/web-resources/online-resources/#Caregiver
Is your Mum happy with forums or is it telephone support more likely to hit the spot ?
If you were in the UK would suggest Macmillan..or Maggys Centres….
Deb
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- January 11, 2017 at 3:56 am
You are a good daughter to try and understand both the unique needs of your Mother and Father.
Although MPIP and many online resources are available to help in certain degress; please do not forget local , in person resources………………….there are many.
I do not know what state you are in nor the age of your parents, but you would be surprised the level of support that abounds with not only governmental resources but many non-profits and foundations.
Most states have a Council on Aging or something similiar.
Also……………do not think they are just for the dying……………..call Hospice.
This is just a first blush. If you tell me which state you are in, and the age of your parents, I will be happy to work up a resource list for you.
The internet is great, but there is a lot at your local fingertips.
My best to you and your family.
Cheers,
Charlie
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- January 11, 2017 at 4:50 pm
Thank you so much Charlie!!!! I appreciate your reply. My Dad is 72 and Mom 70, we live in California, more specifically the Redondo Beach area. I have been at a loss as to who to contact. When I was going through my battle with Uterine cancer, my oncologist office was able to point me to support groups. Thank you so much for you help. I will look forward to your reply.
Jen
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- January 11, 2017 at 4:50 pm
Thank you so much Charlie!!!! I appreciate your reply. My Dad is 72 and Mom 70, we live in California, more specifically the Redondo Beach area. I have been at a loss as to who to contact. When I was going through my battle with Uterine cancer, my oncologist office was able to point me to support groups. Thank you so much for you help. I will look forward to your reply.
Jen
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- January 11, 2017 at 7:13 pm
Hi Jen,
We live in Orange County and similarly have not been able to find a nearby support system for my mom. Although in my case, my mom is the patient. We thought it would be good for her emotional/mental health to have some support system separate from our family. Unfortunately, she is not very mobile right now and she is not tech-savvy enough to utilize the boards or forums. To a lesser extent, she also has a small language barrier. We are now looking for a therapist or counselor trained to speak with cancer patients. That might be helpful as well?
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- January 11, 2017 at 7:13 pm
Hi Jen,
We live in Orange County and similarly have not been able to find a nearby support system for my mom. Although in my case, my mom is the patient. We thought it would be good for her emotional/mental health to have some support system separate from our family. Unfortunately, she is not very mobile right now and she is not tech-savvy enough to utilize the boards or forums. To a lesser extent, she also has a small language barrier. We are now looking for a therapist or counselor trained to speak with cancer patients. That might be helpful as well?
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- January 12, 2017 at 7:41 am
Thank you for a great suggestion. Mom went online today and is going to try to find a therapist that specializes in cancer patients/care givers. I will let you know if we come up with anything.
Jen
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- January 12, 2017 at 7:41 am
Thank you for a great suggestion. Mom went online today and is going to try to find a therapist that specializes in cancer patients/care givers. I will let you know if we come up with anything.
Jen
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- January 12, 2017 at 7:41 am
Thank you for a great suggestion. Mom went online today and is going to try to find a therapist that specializes in cancer patients/care givers. I will let you know if we come up with anything.
Jen
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- January 11, 2017 at 7:13 pm
Hi Jen,
We live in Orange County and similarly have not been able to find a nearby support system for my mom. Although in my case, my mom is the patient. We thought it would be good for her emotional/mental health to have some support system separate from our family. Unfortunately, she is not very mobile right now and she is not tech-savvy enough to utilize the boards or forums. To a lesser extent, she also has a small language barrier. We are now looking for a therapist or counselor trained to speak with cancer patients. That might be helpful as well?
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- January 11, 2017 at 7:21 pm
Hi Jen, I did a quick Google search to see what would come up and found this:
http://www.cancersupportredondobeach.org/programs/weekly-support-groups
They have a family/partners support group. You are unlikely to find any melanoma specific support groups, even up here in SF area it's impossible to find mel specific. But I have attended a couple general cancer support groups at Stanford and realized it really doesn't matter what kind of cancer you have, we all had such similar feelings anyway it felt good to talk to others in person. I imagine it would be the same experience for a caregiver.
This one came up as well:
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- January 11, 2017 at 7:21 pm
Hi Jen, I did a quick Google search to see what would come up and found this:
http://www.cancersupportredondobeach.org/programs/weekly-support-groups
They have a family/partners support group. You are unlikely to find any melanoma specific support groups, even up here in SF area it's impossible to find mel specific. But I have attended a couple general cancer support groups at Stanford and realized it really doesn't matter what kind of cancer you have, we all had such similar feelings anyway it felt good to talk to others in person. I imagine it would be the same experience for a caregiver.
This one came up as well:
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- January 12, 2017 at 7:42 am
Thank you Jenn. I have looked into one of those and it did not work out. I will definitely check the other one. Thanks for taking the time to help.
:). Jen
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- January 12, 2017 at 7:42 am
Thank you Jenn. I have looked into one of those and it did not work out. I will definitely check the other one. Thanks for taking the time to help.
:). Jen
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- January 12, 2017 at 7:42 am
Thank you Jenn. I have looked into one of those and it did not work out. I will definitely check the other one. Thanks for taking the time to help.
:). Jen
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- January 11, 2017 at 7:21 pm
Hi Jen, I did a quick Google search to see what would come up and found this:
http://www.cancersupportredondobeach.org/programs/weekly-support-groups
They have a family/partners support group. You are unlikely to find any melanoma specific support groups, even up here in SF area it's impossible to find mel specific. But I have attended a couple general cancer support groups at Stanford and realized it really doesn't matter what kind of cancer you have, we all had such similar feelings anyway it felt good to talk to others in person. I imagine it would be the same experience for a caregiver.
This one came up as well:
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- January 11, 2017 at 9:12 pm
I gave a whistle to the City of Redondo Beach and spoke with some helpful folks.
Got these for starters:
CAREGIVER SUPPORT GROUPS
Advantage Program Caregiver Support Contact: 310-519-4711
Group When: Every Tuesday
Torrance Memorial Medical Center 6:30-8:00 p.m.
3330 Lomita Boulevard Fee: First session free
Torrance, CA 90503 Following sessions $2 each
Additional Information: On-going support group provides information, support and companionship to
individuals providing care for another. Group meets at Torrance Memorial Medical Center, West Tower, 5th
Floor, Room H.
Caregiver’s Support Group Contact: 310-832-6031Do you provide care for a spouse, parent, or loved one? Caregiving gives joy and satisfaction, and presents
challenges and struggles. Listen to others as we support each other with common issues.
Caregiver Resource Center Contact: 855-872-6060
USC Family Care Givers Support Group
http://www.losangelescrc.org When: Mon – Fri, 8:30 a.m. – 5:00 p.m.
Additional information: Free website resources with care planning, decision-making, timely articles and
online access to a variety of medical and legal experts. Visit the website for more details on support
groups, respite, work shops and classes.A lady fronm their senior services is supposed to get to back to me with some others.
Hope this helps,
Cheers,
Charlie
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- January 11, 2017 at 9:12 pm
I gave a whistle to the City of Redondo Beach and spoke with some helpful folks.
Got these for starters:
CAREGIVER SUPPORT GROUPS
Advantage Program Caregiver Support Contact: 310-519-4711
Group When: Every Tuesday
Torrance Memorial Medical Center 6:30-8:00 p.m.
3330 Lomita Boulevard Fee: First session free
Torrance, CA 90503 Following sessions $2 each
Additional Information: On-going support group provides information, support and companionship to
individuals providing care for another. Group meets at Torrance Memorial Medical Center, West Tower, 5th
Floor, Room H.
Caregiver’s Support Group Contact: 310-832-6031Do you provide care for a spouse, parent, or loved one? Caregiving gives joy and satisfaction, and presents
challenges and struggles. Listen to others as we support each other with common issues.
Caregiver Resource Center Contact: 855-872-6060
USC Family Care Givers Support Group
http://www.losangelescrc.org When: Mon – Fri, 8:30 a.m. – 5:00 p.m.
Additional information: Free website resources with care planning, decision-making, timely articles and
online access to a variety of medical and legal experts. Visit the website for more details on support
groups, respite, work shops and classes.A lady fronm their senior services is supposed to get to back to me with some others.
Hope this helps,
Cheers,
Charlie
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- January 12, 2017 at 7:45 am
Wow! Thank you so much Charlie!!!! I appreciate all of your time spent on this. These looks like they could be promising. I have been so overwhelmed with Dads latest development, I have taken the time to dig deeper for info. Again, thank you so much, we appreciate it so much.
xo Jen
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- January 12, 2017 at 7:45 pm
I completely agree Celeste 🙂
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- January 12, 2017 at 7:45 pm
I completely agree Celeste 🙂
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- January 12, 2017 at 7:45 pm
I completely agree Celeste 🙂
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- January 12, 2017 at 7:45 am
Wow! Thank you so much Charlie!!!! I appreciate all of your time spent on this. These looks like they could be promising. I have been so overwhelmed with Dads latest development, I have taken the time to dig deeper for info. Again, thank you so much, we appreciate it so much.
xo Jen
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- January 12, 2017 at 7:45 am
Wow! Thank you so much Charlie!!!! I appreciate all of your time spent on this. These looks like they could be promising. I have been so overwhelmed with Dads latest development, I have taken the time to dig deeper for info. Again, thank you so much, we appreciate it so much.
xo Jen
-
- January 11, 2017 at 9:12 pm
I gave a whistle to the City of Redondo Beach and spoke with some helpful folks.
Got these for starters:
CAREGIVER SUPPORT GROUPS
Advantage Program Caregiver Support Contact: 310-519-4711
Group When: Every Tuesday
Torrance Memorial Medical Center 6:30-8:00 p.m.
3330 Lomita Boulevard Fee: First session free
Torrance, CA 90503 Following sessions $2 each
Additional Information: On-going support group provides information, support and companionship to
individuals providing care for another. Group meets at Torrance Memorial Medical Center, West Tower, 5th
Floor, Room H.
Caregiver’s Support Group Contact: 310-832-6031Do you provide care for a spouse, parent, or loved one? Caregiving gives joy and satisfaction, and presents
challenges and struggles. Listen to others as we support each other with common issues.
Caregiver Resource Center Contact: 855-872-6060
USC Family Care Givers Support Group
http://www.losangelescrc.org When: Mon – Fri, 8:30 a.m. – 5:00 p.m.
Additional information: Free website resources with care planning, decision-making, timely articles and
online access to a variety of medical and legal experts. Visit the website for more details on support
groups, respite, work shops and classes.A lady fronm their senior services is supposed to get to back to me with some others.
Hope this helps,
Cheers,
Charlie
-
- January 11, 2017 at 4:50 pm
Thank you so much Charlie!!!! I appreciate your reply. My Dad is 72 and Mom 70, we live in California, more specifically the Redondo Beach area. I have been at a loss as to who to contact. When I was going through my battle with Uterine cancer, my oncologist office was able to point me to support groups. Thank you so much for you help. I will look forward to your reply.
Jen
-
- January 11, 2017 at 3:56 am
You are a good daughter to try and understand both the unique needs of your Mother and Father.
Although MPIP and many online resources are available to help in certain degress; please do not forget local , in person resources………………….there are many.
I do not know what state you are in nor the age of your parents, but you would be surprised the level of support that abounds with not only governmental resources but many non-profits and foundations.
Most states have a Council on Aging or something similiar.
Also……………do not think they are just for the dying……………..call Hospice.
This is just a first blush. If you tell me which state you are in, and the age of your parents, I will be happy to work up a resource list for you.
The internet is great, but there is a lot at your local fingertips.
My best to you and your family.
Cheers,
Charlie
-
- January 11, 2017 at 3:56 am
You are a good daughter to try and understand both the unique needs of your Mother and Father.
Although MPIP and many online resources are available to help in certain degress; please do not forget local , in person resources………………….there are many.
I do not know what state you are in nor the age of your parents, but you would be surprised the level of support that abounds with not only governmental resources but many non-profits and foundations.
Most states have a Council on Aging or something similiar.
Also……………do not think they are just for the dying……………..call Hospice.
This is just a first blush. If you tell me which state you are in, and the age of your parents, I will be happy to work up a resource list for you.
The internet is great, but there is a lot at your local fingertips.
My best to you and your family.
Cheers,
Charlie
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