› Forums › General Melanoma Community › “Survivalism” Anyone? Food for thought.
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JC.
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- November 17, 2013 at 4:41 am
Hello All,
My name is Kellie and I am a stage 3A survivor. I have posted a few times before, and was looking for a forum to post my latest crazy thoughts on young adults surviving cancer. Luckily, more and more of us who are diagnosed as children or teens are surviving, but along with that, at least in my experience, comes some interesting psychological side effects.
I was diagnosed at 15 and completed a year of Interferon with complete lymph dissections. I’m now 22 years old and have had two stage one recurrences in the past five years. I’ve been thinking a lot lately about the aftermath of surviving cancer on young adults. I didn’t realize it then, but 15 years old was an incredibly young age to have to contemplate my own mortality and rally for a battle I had only just begun to understand. I’m not sure how, but I simply gritted my teeth and pushed through it. I continued to play my three sports (although poorly) and be a silly teenager. Even though my doctors weren’t so sure, I was always completely confident that I would be fine. The result was that I think I developed what I’ll call “survivalism”. At the end of treatment, I was 16 years old and had beaten CANCER. If I could do that, I could do anything, and that mindset became intensely engrained from that point onward. It was the typical teenage “invincible-ism” on some serious steroids. Lance Armstrong was my newfound idol and “Livestrong” became a mantra (sorry, was it too soon to mention steroids and Lance Armstrong that close together??) When asked to describe myself, survivor was the first word to come to mind. Sure, it was incredibly helpful, in that I was confident in my abilities and succeeded throughout high school and college. But the flip-side of this great “I can take on the world” attitude is that, eventually, every cancer survivor must face something that they CAN’T beat. Something that, no matter how hard you commit to fight against, you simply can’t win, the realization of which can destroy your entire sense of self. Unfortunately, I’ve already experienced that. My 48-year-old father was diagnosed with fibrosarcoma, a cancerous brain tumor, when I was 19 and he died only a year later. From the moment I learned of his diagnosis, I was ready for a good fight, and was confident that he would get through it, and that I could help him do it. I moved home from college to take care of him full-time; I arrogantly swooped right in, ready to take on his cancer and “fix it” for him. I’m a cancer survivor. I can do anything, right? The doctors eventually started giving worse and worse reports, but I refused to acknowledge them, and continued to encourage my dad with everything I had. Losing him was absolutely devastating. Two years after his death, to this day, I still catch myself being actually surprised that cancer won and that we lost. I felt like I hadn’t tried hard enough, that I somehow hadn’t given him everything I had. I’ve had a rough two years grappling with our defeat.
I’m not sure what could’ve been done differently to cushion this blow for me, or for those of other cancer survivors in similar situations. You obviously can’t look to your doctors or nurses to take you down a notch or to tell you surviving cancer doesn’t mean you’re a superhuman. It might just mean you got lucky, and that others aren’t as fortunate as you. I’ve been doing some research, and there’s not a whole lot out there yet about this idea or the psychological side effects of cancer survival on young adults. This is mostly food for thought, but if anyone has had similar experiences, I’d be happy to hear them!
Thanks for entertaining my ramblings 🙂
Kellie
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- November 17, 2013 at 3:19 pm
Hi, Kellie-
Thank you for your beautifully written and thought provoking post. You have described in a nutshell many aspects of the mental anguish that cancer victims, survivors and caregivers experience. While your journey may be difficult, you are certainly not alone. I much applaud and greatly respect your efforts to reach out and connect with others who are going through similar trials. Good for you!
As for your own battle with cancer, your attitude of trying to live a "normal" life for your age and your ability to maintain a positive mental attitude are exactly the right approach. I suggest that you connect with Megan Kowalewski. First, watch a few of her several Youtube videos; the one named "Stronger" is my favorite. You can view it at: http://www.youtube.com/watch?v=BaQdwTsVtCY&feature=player_embedded Her other Youtube videos describe her journey with all of its ups and downs. I think that you will strongly identify with her strength and spirit. Then, if you want, you can connect with her on her Facebook page: https://www.facebook.com/megan.kowalewski2 She may know of some group of young cancer survivors with whom you can connect and share your feelings and experiences.
Acting as caregiver to your father is a whole different kettle of fish from battling cancer yourself. Your feelings of grief, frustration and impotence are shared by many people who have lost loved ones to cancer. While your feelings of invincibility are appropriate to your age and experiences, wisdom is the name of what happens to people as they continue through life and the rough edges of youth get smoothed out into a deeper understanding and acceptance of reality. Coming to understand that sh*t happens that you can't fix is the beginning of you becoming wise before your time. Right now, you feel this change as a loss– "What happened to my can-do attitude?!". But with time you will come to appreciate that your view of life and your role in it is deeper, more balanced and more nuanced than that of your peers. Once you get used to that, you will find that you feel stronger and more centered in yourself and that your priorities in life have changed in a good way. But that will take time.
I will close with what I think is one of the most helpful philosphies in existence– The Serenity Prayer:
God grant me the serenity to accept the things I cannot change;the courage to change the things I can;and the wisdom to know the difference.-
- November 17, 2013 at 8:24 pm
Kellie, I also thank you for this post..food for thought for sure. My son was 21 when he was diagnosed and went through a year of interferon. He is now 25. I am not sure if it is becuase he is a guy..or that I'm his Mom…or just his personaliy but he did not talk about his feelings or what he was going through mentally…or how this has changed his outlook on life. So it is nice to hear the thoughts of another young adult survivor.
Becky
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- November 17, 2013 at 8:24 pm
Kellie, I also thank you for this post..food for thought for sure. My son was 21 when he was diagnosed and went through a year of interferon. He is now 25. I am not sure if it is becuase he is a guy..or that I'm his Mom…or just his personaliy but he did not talk about his feelings or what he was going through mentally…or how this has changed his outlook on life. So it is nice to hear the thoughts of another young adult survivor.
Becky
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- November 17, 2013 at 8:24 pm
Kellie, I also thank you for this post..food for thought for sure. My son was 21 when he was diagnosed and went through a year of interferon. He is now 25. I am not sure if it is becuase he is a guy..or that I'm his Mom…or just his personaliy but he did not talk about his feelings or what he was going through mentally…or how this has changed his outlook on life. So it is nice to hear the thoughts of another young adult survivor.
Becky
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- November 17, 2013 at 3:19 pm
Hi, Kellie-
Thank you for your beautifully written and thought provoking post. You have described in a nutshell many aspects of the mental anguish that cancer victims, survivors and caregivers experience. While your journey may be difficult, you are certainly not alone. I much applaud and greatly respect your efforts to reach out and connect with others who are going through similar trials. Good for you!
As for your own battle with cancer, your attitude of trying to live a "normal" life for your age and your ability to maintain a positive mental attitude are exactly the right approach. I suggest that you connect with Megan Kowalewski. First, watch a few of her several Youtube videos; the one named "Stronger" is my favorite. You can view it at: http://www.youtube.com/watch?v=BaQdwTsVtCY&feature=player_embedded Her other Youtube videos describe her journey with all of its ups and downs. I think that you will strongly identify with her strength and spirit. Then, if you want, you can connect with her on her Facebook page: https://www.facebook.com/megan.kowalewski2 She may know of some group of young cancer survivors with whom you can connect and share your feelings and experiences.
Acting as caregiver to your father is a whole different kettle of fish from battling cancer yourself. Your feelings of grief, frustration and impotence are shared by many people who have lost loved ones to cancer. While your feelings of invincibility are appropriate to your age and experiences, wisdom is the name of what happens to people as they continue through life and the rough edges of youth get smoothed out into a deeper understanding and acceptance of reality. Coming to understand that sh*t happens that you can't fix is the beginning of you becoming wise before your time. Right now, you feel this change as a loss– "What happened to my can-do attitude?!". But with time you will come to appreciate that your view of life and your role in it is deeper, more balanced and more nuanced than that of your peers. Once you get used to that, you will find that you feel stronger and more centered in yourself and that your priorities in life have changed in a good way. But that will take time.
I will close with what I think is one of the most helpful philosphies in existence– The Serenity Prayer:
God grant me the serenity to accept the things I cannot change;the courage to change the things I can;and the wisdom to know the difference. -
- November 17, 2013 at 3:19 pm
Hi, Kellie-
Thank you for your beautifully written and thought provoking post. You have described in a nutshell many aspects of the mental anguish that cancer victims, survivors and caregivers experience. While your journey may be difficult, you are certainly not alone. I much applaud and greatly respect your efforts to reach out and connect with others who are going through similar trials. Good for you!
As for your own battle with cancer, your attitude of trying to live a "normal" life for your age and your ability to maintain a positive mental attitude are exactly the right approach. I suggest that you connect with Megan Kowalewski. First, watch a few of her several Youtube videos; the one named "Stronger" is my favorite. You can view it at: http://www.youtube.com/watch?v=BaQdwTsVtCY&feature=player_embedded Her other Youtube videos describe her journey with all of its ups and downs. I think that you will strongly identify with her strength and spirit. Then, if you want, you can connect with her on her Facebook page: https://www.facebook.com/megan.kowalewski2 She may know of some group of young cancer survivors with whom you can connect and share your feelings and experiences.
Acting as caregiver to your father is a whole different kettle of fish from battling cancer yourself. Your feelings of grief, frustration and impotence are shared by many people who have lost loved ones to cancer. While your feelings of invincibility are appropriate to your age and experiences, wisdom is the name of what happens to people as they continue through life and the rough edges of youth get smoothed out into a deeper understanding and acceptance of reality. Coming to understand that sh*t happens that you can't fix is the beginning of you becoming wise before your time. Right now, you feel this change as a loss– "What happened to my can-do attitude?!". But with time you will come to appreciate that your view of life and your role in it is deeper, more balanced and more nuanced than that of your peers. Once you get used to that, you will find that you feel stronger and more centered in yourself and that your priorities in life have changed in a good way. But that will take time.
I will close with what I think is one of the most helpful philosphies in existence– The Serenity Prayer:
God grant me the serenity to accept the things I cannot change;the courage to change the things I can;and the wisdom to know the difference.
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