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The scan shows tumors growing
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The scan shows tumors growing

› Forums › General Melanoma Community › The scan shows tumors growing

  • Post
    • October 21, 2015 at 12:24 am
    dfeng
    Participant

      Have to move to other trials.

      The combo doesn't really control the growing of tumors. 

      I am waiting for the screen for another trial, it takes two weeks to check whether I am eligiable.

       

       

    Viewing 23 reply threads
    • Replies
        • October 21, 2015 at 12:34 am
        Mat
        Participant

          Keep the faith.  My recollection is that you're at Sloan, so you're working with the best.

          • October 21, 2015 at 12:34 am
          Mat
          Participant

            Keep the faith.  My recollection is that you're at Sloan, so you're working with the best.

            • October 21, 2015 at 12:34 am
            Mat
            Participant

              Keep the faith.  My recollection is that you're at Sloan, so you're working with the best.

              • October 21, 2015 at 1:03 am
              Jubes
              Participant

                thats so  disappointing, but keep going to find the right treatment. I hope it's the next one

                anne-Louise 

                • October 21, 2015 at 1:03 am
                Jubes
                Participant

                  thats so  disappointing, but keep going to find the right treatment. I hope it's the next one

                  anne-Louise 

                  • October 21, 2015 at 1:03 am
                  Jubes
                  Participant

                    thats so  disappointing, but keep going to find the right treatment. I hope it's the next one

                    anne-Louise 

                    • October 21, 2015 at 2:36 am
                    jamieth29
                    Participant
                      Dfeng,
                      I’m sorry, I’m sure it was hard to hear that. I hope you can find the right treatment. What are the new trials your considering? I Don’t know else to say i was hoping this combo was the answer for you. Keep your head up.
                      Jamie
                      • October 21, 2015 at 2:36 am
                      jamieth29
                      Participant
                        Dfeng,
                        I’m sorry, I’m sure it was hard to hear that. I hope you can find the right treatment. What are the new trials your considering? I Don’t know else to say i was hoping this combo was the answer for you. Keep your head up.
                        Jamie
                        • October 21, 2015 at 2:36 am
                        jamieth29
                        Participant
                          Dfeng,
                          I’m sorry, I’m sure it was hard to hear that. I hope you can find the right treatment. What are the new trials your considering? I Don’t know else to say i was hoping this combo was the answer for you. Keep your head up.
                          Jamie
                          • October 21, 2015 at 10:42 am
                          stars
                          Participant

                            Sorry to hear that, d feng… I hope you are eligible for another trial. Are you doing ok? This must be a shock.

                            • October 21, 2015 at 10:42 am
                            stars
                            Participant

                              Sorry to hear that, d feng… I hope you are eligible for another trial. Are you doing ok? This must be a shock.

                              • October 21, 2015 at 10:42 am
                              stars
                              Participant

                                Sorry to hear that, d feng… I hope you are eligible for another trial. Are you doing ok? This must be a shock.

                                • October 21, 2015 at 1:37 pm
                                Scooby123
                                Participant

                                  Hi D.Feng

                                  sorry to hear you not responding hope you find another trial soon xx

                                  scooby❤️

                                  • October 21, 2015 at 1:37 pm
                                  Scooby123
                                  Participant

                                    Hi D.Feng

                                    sorry to hear you not responding hope you find another trial soon xx

                                    scooby❤️

                                    • October 21, 2015 at 1:37 pm
                                    Scooby123
                                    Participant

                                      Hi D.Feng

                                      sorry to hear you not responding hope you find another trial soon xx

                                      scooby❤️

                                      • October 21, 2015 at 7:59 pm
                                      Polymath
                                      Participant

                                        Sorry to hear the news.  You are not alone in this frustrating battle.  Now that ipi/nivo has just been approved we are trying for insurance coverage for that treatment.  Is that an option for you?

                                        Aloha, Gary

                                         

                                        • October 21, 2015 at 7:59 pm
                                        Polymath
                                        Participant

                                          Sorry to hear the news.  You are not alone in this frustrating battle.  Now that ipi/nivo has just been approved we are trying for insurance coverage for that treatment.  Is that an option for you?

                                          Aloha, Gary

                                           

                                          • October 21, 2015 at 7:59 pm
                                          Polymath
                                          Participant

                                            Sorry to hear the news.  You are not alone in this frustrating battle.  Now that ipi/nivo has just been approved we are trying for insurance coverage for that treatment.  Is that an option for you?

                                            Aloha, Gary

                                             

                                            • October 24, 2015 at 1:30 am
                                            Bubbles
                                            Participant

                                              Oh, D. Feng…I am so sorry that the ipi/nivo combo didn't help you as hoped. I don't know which trial you are looking at but I wish luck with whatever path you choose. I don't know your BRAF status and if those inhibitor combo's are an option for you. I don't know much about ocular melanoma and how, or if, that affects your options now. It seems that I remember something about CKIT being helpful. These things may be a stretch, but perhaps some of the treatments in this post may be helpful: http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2015/07/for-mat.html

                                              Don't know if any of this helps at all…mostly just wanted to let you know that I am sorry and thinking of you and yours. Hang in there. Celeste

                                              • October 24, 2015 at 1:30 am
                                              Bubbles
                                              Participant

                                                Oh, D. Feng…I am so sorry that the ipi/nivo combo didn't help you as hoped. I don't know which trial you are looking at but I wish luck with whatever path you choose. I don't know your BRAF status and if those inhibitor combo's are an option for you. I don't know much about ocular melanoma and how, or if, that affects your options now. It seems that I remember something about CKIT being helpful. These things may be a stretch, but perhaps some of the treatments in this post may be helpful: http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2015/07/for-mat.html

                                                Don't know if any of this helps at all…mostly just wanted to let you know that I am sorry and thinking of you and yours. Hang in there. Celeste

                                                • October 24, 2015 at 1:30 am
                                                Bubbles
                                                Participant

                                                  Oh, D. Feng…I am so sorry that the ipi/nivo combo didn't help you as hoped. I don't know which trial you are looking at but I wish luck with whatever path you choose. I don't know your BRAF status and if those inhibitor combo's are an option for you. I don't know much about ocular melanoma and how, or if, that affects your options now. It seems that I remember something about CKIT being helpful. These things may be a stretch, but perhaps some of the treatments in this post may be helpful: http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2015/07/for-mat.html

                                                  Don't know if any of this helps at all…mostly just wanted to let you know that I am sorry and thinking of you and yours. Hang in there. Celeste

                                                  • November 1, 2015 at 5:41 pm
                                                  _Paul_
                                                  Participant

                                                    I am sorry to hear this news D Feng. I know you put up with a lot of side effects and I was really hoping that the price you were paying was for some benefit. I am hoping and praying you find a treatment that works. You are in good hands at MSKCC.

                                                    – Paul 

                                                    • November 1, 2015 at 5:41 pm
                                                    _Paul_
                                                    Participant

                                                      I am sorry to hear this news D Feng. I know you put up with a lot of side effects and I was really hoping that the price you were paying was for some benefit. I am hoping and praying you find a treatment that works. You are in good hands at MSKCC.

                                                      – Paul 

                                                        • November 3, 2015 at 7:48 pm
                                                        dfeng
                                                        Participant

                                                          Thank you for encouraging! It is being a long vacation that i am away and now, I am back.

                                                          • November 3, 2015 at 7:48 pm
                                                          dfeng
                                                          Participant

                                                            Thank you for encouraging! It is being a long vacation that i am away and now, I am back.

                                                            • November 3, 2015 at 7:48 pm
                                                            dfeng
                                                            Participant

                                                              Thank you for encouraging! It is being a long vacation that i am away and now, I am back.

                                                            • November 1, 2015 at 5:41 pm
                                                            _Paul_
                                                            Participant

                                                              I am sorry to hear this news D Feng. I know you put up with a lot of side effects and I was really hoping that the price you were paying was for some benefit. I am hoping and praying you find a treatment that works. You are in good hands at MSKCC.

                                                              – Paul 

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