This is going so fast.

I don't think it's a bad choice and honestly you have to be comfortable with your decision. I belive this would be the 10mg correct? I did on past and currently doing the 3mg dose of ipi. Not sure why 10mg is for adjuvant…I guess that for stage 4 there wasn't enough to show that 10mg produced different results cause I'd say give me the 10mg…

As far as side effects the vary between everyone. With first go around I had rash and hypothyroidism. There were some very minor gastro issues mainy cramping but nothing of concern. They'll discuss side effects with you and you just need to be aware of any major changes as some can be severe. I think in terms of lifestyle and diet, a good balanced diet is best. I rarely drink so I can't answer that though I drank a good amount of wine one night and had no issues but others may be able to answer better. So I pray that you'll be able to tolerate drugs well and it's efffective for you so you can be one of those people who checks in on us from time to time to let us know you're doing great!!!

Best!

Josh

I don't think it's a bad choice and honestly you have to be comfortable with your decision. I belive this would be the 10mg correct? I did on past and currently doing the 3mg dose of ipi. Not sure why 10mg is for adjuvant…I guess that for stage 4 there wasn't enough to show that 10mg produced different results cause I'd say give me the 10mg…

As far as side effects the vary between everyone. With first go around I had rash and hypothyroidism. There were some very minor gastro issues mainy cramping but nothing of concern. They'll discuss side effects with you and you just need to be aware of any major changes as some can be severe. I think in terms of lifestyle and diet, a good balanced diet is best. I rarely drink so I can't answer that though I drank a good amount of wine one night and had no issues but others may be able to answer better. So I pray that you'll be able to tolerate drugs well and it's efffective for you so you can be one of those people who checks in on us from time to time to let us know you're doing great!!!

Best!

Josh

I don't think it's a bad choice and honestly you have to be comfortable with your decision. I belive this would be the 10mg correct? I did on past and currently doing the 3mg dose of ipi. Not sure why 10mg is for adjuvant…I guess that for stage 4 there wasn't enough to show that 10mg produced different results cause I'd say give me the 10mg…

As far as side effects the vary between everyone. With first go around I had rash and hypothyroidism. There were some very minor gastro issues mainy cramping but nothing of concern. They'll discuss side effects with you and you just need to be aware of any major changes as some can be severe. I think in terms of lifestyle and diet, a good balanced diet is best. I rarely drink so I can't answer that though I drank a good amount of wine one night and had no issues but others may be able to answer better. So I pray that you'll be able to tolerate drugs well and it's efffective for you so you can be one of those people who checks in on us from time to time to let us know you're doing great!!!

Best!

Josh

Everyone's body reacts differently to these immunotherapies. It is hard to say what you'll experience and when or if you'll experience much of anything. I have felt fatigued for a few days after every infusion. Didn't get much in the way of other side effects until after the 3rd infusion, and even then it's been fairly mild. But, some only make it through one or two infusions before they have to stop due to colitis or other serious side effects. I didn't drink much during the first few infusions, had a glass of wine here and there, no big deal. Never felt like drinking affected me differently than before infusions. I try to eat fairly healthy, but since my diagnosis I have had more of a "I will eat whatever the hell I want" attitude, so I probably haven't eaten as healthy as I should, but it hasn't affected me poorly thus far. 

Ask your doc about any prescriptions you have and if you can take them day of infusion or not. 

Hopefully you'll be like me, since I was 28 when I started Yervoy and felt like I was young and healthy enough to tackle this thing, and I have not had any major side effects pop up yet. Not holding my breath, I know they could still happen, but keeping that positive mindset seems to help a lot.

Best of luck with your first infusion,

Everyone's body reacts differently to these immunotherapies. It is hard to say what you'll experience and when or if you'll experience much of anything. I have felt fatigued for a few days after every infusion. Didn't get much in the way of other side effects until after the 3rd infusion, and even then it's been fairly mild. But, some only make it through one or two infusions before they have to stop due to colitis or other serious side effects. I didn't drink much during the first few infusions, had a glass of wine here and there, no big deal. Never felt like drinking affected me differently than before infusions. I try to eat fairly healthy, but since my diagnosis I have had more of a "I will eat whatever the hell I want" attitude, so I probably haven't eaten as healthy as I should, but it hasn't affected me poorly thus far. 

Ask your doc about any prescriptions you have and if you can take them day of infusion or not. 

Hopefully you'll be like me, since I was 28 when I started Yervoy and felt like I was young and healthy enough to tackle this thing, and I have not had any major side effects pop up yet. Not holding my breath, I know they could still happen, but keeping that positive mindset seems to help a lot.

Best of luck with your first infusion,

Everyone's body reacts differently to these immunotherapies. It is hard to say what you'll experience and when or if you'll experience much of anything. I have felt fatigued for a few days after every infusion. Didn't get much in the way of other side effects until after the 3rd infusion, and even then it's been fairly mild. But, some only make it through one or two infusions before they have to stop due to colitis or other serious side effects. I didn't drink much during the first few infusions, had a glass of wine here and there, no big deal. Never felt like drinking affected me differently than before infusions. I try to eat fairly healthy, but since my diagnosis I have had more of a "I will eat whatever the hell I want" attitude, so I probably haven't eaten as healthy as I should, but it hasn't affected me poorly thus far. 

Ask your doc about any prescriptions you have and if you can take them day of infusion or not. 

Hopefully you'll be like me, since I was 28 when I started Yervoy and felt like I was young and healthy enough to tackle this thing, and I have not had any major side effects pop up yet. Not holding my breath, I know they could still happen, but keeping that positive mindset seems to help a lot.

Best of luck with your first infusion,

If I were going back, I woulld start taking a probiotic before the first infusion. I take 'BioKult', which has many strains but I bellieve that bifidobacterium strains are the most important.

I was told that there was no need to taken any special precautions but my temperature had to be normal or my infusion would be postponed.

Although my infusion only took 1.5 hours, the whole procedure took most of a day

I had zero side effects after my first dose and was told that this was usual. After the second and third infusions, I had a rash that I controlled with 1% hydrocortisone cream. I had diarrhoea that I controlled easily with Imodium. I managed to work through all this with no problems. It was only after my fourth infusion that my severe side effects (inflammation of the pituitary gland) set in and I had a take a few days off. So I got through the lot, even having my anterior pituitary pack up, with no hospital admission and only a handful  of days off work other than the plnned absences for the infusions.

But you can't generalise from one person. Others have been hospitalised. Some have had no side effects at all.

If I were going back, I woulld start taking a probiotic before the first infusion. I take 'BioKult', which has many strains but I bellieve that bifidobacterium strains are the most important.

I was told that there was no need to taken any special precautions but my temperature had to be normal or my infusion would be postponed.

Although my infusion only took 1.5 hours, the whole procedure took most of a day

I had zero side effects after my first dose and was told that this was usual. After the second and third infusions, I had a rash that I controlled with 1% hydrocortisone cream. I had diarrhoea that I controlled easily with Imodium. I managed to work through all this with no problems. It was only after my fourth infusion that my severe side effects (inflammation of the pituitary gland) set in and I had a take a few days off. So I got through the lot, even having my anterior pituitary pack up, with no hospital admission and only a handful  of days off work other than the plnned absences for the infusions.

But you can't generalise from one person. Others have been hospitalised. Some have had no side effects at all.

If I were going back, I woulld start taking a probiotic before the first infusion. I take 'BioKult', which has many strains but I bellieve that bifidobacterium strains are the most important.

I was told that there was no need to taken any special precautions but my temperature had to be normal or my infusion would be postponed.

Although my infusion only took 1.5 hours, the whole procedure took most of a day

I had zero side effects after my first dose and was told that this was usual. After the second and third infusions, I had a rash that I controlled with 1% hydrocortisone cream. I had diarrhoea that I controlled easily with Imodium. I managed to work through all this with no problems. It was only after my fourth infusion that my severe side effects (inflammation of the pituitary gland) set in and I had a take a few days off. So I got through the lot, even having my anterior pituitary pack up, with no hospital admission and only a handful  of days off work other than the plnned absences for the infusions.

But you can't generalise from one person. Others have been hospitalised. Some have had no side effects at all.

Hmm – I was told never to take hydrocortisone cream for the itch because its a steroid and you shouldn't be on anything with steroids during treatment.  I guess every doc is different as well as the symptoms.

firs treatment was beginning of June and had only a rash one week later but I was tired and had some hyperthyroidism after being hypothyroid my adult life.  After the 2nd treatment I felt great.  Never had this much energy in my life (or at least since having my kids).  Maybe it was the hyperthyroid but I have been feeling great.  Had my 3rd dost today and other than just being tired I'm hoping to feel like I did after my 2nd dose but only time will tell.  

Ask your doc all your questions and write them down on the notes part   of your phone so you always have them with you. My doc told me 1 glass of wine was fine but to take it easy.  Honesly, when I was first diagnosed I wasn't sleeping well.  going out with friends and having a glass of wine did wonders for my attitude and also being able to get to sleep (espeically when I was still sore after having the port put in)

You're young and you've got kids so you'll never know if you're tired due to the meds or the young ones but either way, you'll be fine.  Keep a positive attitude and know that you're taking control of your life and that's what you wnat to show to your kids.  They remember these things.

Karen

Hmm – I was told never to take hydrocortisone cream for the itch because its a steroid and you shouldn't be on anything with steroids during treatment.  I guess every doc is different as well as the symptoms.

firs treatment was beginning of June and had only a rash one week later but I was tired and had some hyperthyroidism after being hypothyroid my adult life.  After the 2nd treatment I felt great.  Never had this much energy in my life (or at least since having my kids).  Maybe it was the hyperthyroid but I have been feeling great.  Had my 3rd dost today and other than just being tired I'm hoping to feel like I did after my 2nd dose but only time will tell.  

Ask your doc all your questions and write them down on the notes part   of your phone so you always have them with you. My doc told me 1 glass of wine was fine but to take it easy.  Honesly, when I was first diagnosed I wasn't sleeping well.  going out with friends and having a glass of wine did wonders for my attitude and also being able to get to sleep (espeically when I was still sore after having the port put in)

You're young and you've got kids so you'll never know if you're tired due to the meds or the young ones but either way, you'll be fine.  Keep a positive attitude and know that you're taking control of your life and that's what you wnat to show to your kids.  They remember these things.

Karen

Hmm – I was told never to take hydrocortisone cream for the itch because its a steroid and you shouldn't be on anything with steroids during treatment.  I guess every doc is different as well as the symptoms.

firs treatment was beginning of June and had only a rash one week later but I was tired and had some hyperthyroidism after being hypothyroid my adult life.  After the 2nd treatment I felt great.  Never had this much energy in my life (or at least since having my kids).  Maybe it was the hyperthyroid but I have been feeling great.  Had my 3rd dost today and other than just being tired I'm hoping to feel like I did after my 2nd dose but only time will tell.  

Ask your doc all your questions and write them down on the notes part   of your phone so you always have them with you. My doc told me 1 glass of wine was fine but to take it easy.  Honesly, when I was first diagnosed I wasn't sleeping well.  going out with friends and having a glass of wine did wonders for my attitude and also being able to get to sleep (espeically when I was still sore after having the port put in)

You're young and you've got kids so you'll never know if you're tired due to the meds or the young ones but either way, you'll be fine.  Keep a positive attitude and know that you're taking control of your life and that's what you wnat to show to your kids.  They remember these things.

Karen

I understand not wanting work to be let down because of your absence, but really?!  Do they realize you have no idea how your treatment will affect YOU and you need the freedom to focus completely on this.  If they are that worried about numbers instead of your health, do they really care for your wellbeing?

It is nice to feel like you are the glue that holds everything together but when you die, they will find someone else to replace you.  Not to sound harsh, but it is true.

If they really care for their team member, then they should say, do what you need to do and when you are ready we will be waiting for you.

1. It is nice to feel irreplaceable and to tell melanoma to F-you, you will not intrude into my life and what I enjoy doing and give me purpose.  It gives us some sense of control over what we cannot control.

2. You are valuable enough to take the time you need to give your battle 100%.  Your counter needs to step it up to pull their weight when you are gone.  If they can't, that is on them.  It is also an opportunity for you to train others on what makes your numbers so exceptional.  As an employer, I would welcome that instead of using it as a tool for cut-throat competition.

3.  Your skills can easily transfer to other people relationship sales type work should all else fail.  Don't be hard on yourself, it is what it is, you aren't superwoman, none of us are.  Give yourself permission to not be 100% all the time.

Just remember, if you die, then what is your counter going to do?  I guarantee it won't be close up shop.  How selfish of your employer to put that pressure on you….  What do they think you are fighting?  Just a little bit o' skin cancer?

Not meaning to be harsh, but you need to change your priorities to getting through your treatment.  Everyone's experience is different, yet there may be similarities.  Best of luck, now put that effort into getting better, not pushing cosmetics.  (Unless that is your way to tell melanoma to F-off, you will live your life Dam- it!)

I understand not wanting work to be let down because of your absence, but really?!  Do they realize you have no idea how your treatment will affect YOU and you need the freedom to focus completely on this.  If they are that worried about numbers instead of your health, do they really care for your wellbeing?

It is nice to feel like you are the glue that holds everything together but when you die, they will find someone else to replace you.  Not to sound harsh, but it is true.

If they really care for their team member, then they should say, do what you need to do and when you are ready we will be waiting for you.

1. It is nice to feel irreplaceable and to tell melanoma to F-you, you will not intrude into my life and what I enjoy doing and give me purpose.  It gives us some sense of control over what we cannot control.

2. You are valuable enough to take the time you need to give your battle 100%.  Your counter needs to step it up to pull their weight when you are gone.  If they can't, that is on them.  It is also an opportunity for you to train others on what makes your numbers so exceptional.  As an employer, I would welcome that instead of using it as a tool for cut-throat competition.

3.  Your skills can easily transfer to other people relationship sales type work should all else fail.  Don't be hard on yourself, it is what it is, you aren't superwoman, none of us are.  Give yourself permission to not be 100% all the time.

Just remember, if you die, then what is your counter going to do?  I guarantee it won't be close up shop.  How selfish of your employer to put that pressure on you….  What do they think you are fighting?  Just a little bit o' skin cancer?

Not meaning to be harsh, but you need to change your priorities to getting through your treatment.  Everyone's experience is different, yet there may be similarities.  Best of luck, now put that effort into getting better, not pushing cosmetics.  (Unless that is your way to tell melanoma to F-off, you will live your life Dam- it!)

I understand not wanting work to be let down because of your absence, but really?!  Do they realize you have no idea how your treatment will affect YOU and you need the freedom to focus completely on this.  If they are that worried about numbers instead of your health, do they really care for your wellbeing?

It is nice to feel like you are the glue that holds everything together but when you die, they will find someone else to replace you.  Not to sound harsh, but it is true.

If they really care for their team member, then they should say, do what you need to do and when you are ready we will be waiting for you.

1. It is nice to feel irreplaceable and to tell melanoma to F-you, you will not intrude into my life and what I enjoy doing and give me purpose.  It gives us some sense of control over what we cannot control.

2. You are valuable enough to take the time you need to give your battle 100%.  Your counter needs to step it up to pull their weight when you are gone.  If they can't, that is on them.  It is also an opportunity for you to train others on what makes your numbers so exceptional.  As an employer, I would welcome that instead of using it as a tool for cut-throat competition.

3.  Your skills can easily transfer to other people relationship sales type work should all else fail.  Don't be hard on yourself, it is what it is, you aren't superwoman, none of us are.  Give yourself permission to not be 100% all the time.

Just remember, if you die, then what is your counter going to do?  I guarantee it won't be close up shop.  How selfish of your employer to put that pressure on you….  What do they think you are fighting?  Just a little bit o' skin cancer?

Not meaning to be harsh, but you need to change your priorities to getting through your treatment.  Everyone's experience is different, yet there may be similarities.  Best of luck, now put that effort into getting better, not pushing cosmetics.  (Unless that is your way to tell melanoma to F-off, you will live your life Dam- it!)

I did 3mg and it didnt make me sick at all. It actually doesnt make you sick. It can cause some other things to happen, rash, itching, diarrhea. Mostly the day of was just really tired. It was always a long day for me with scans every time so i dont know if it was a combo of it all. Unless the 10mg proves to be too much, you should be able to work just fine. Read up on the different things ipi can cause and watch for those symptoms. Colds and illness are your b cells and cancer is your t cells so two different things so colds, germs shouldn’t be a problem

I did 3mg and it didnt make me sick at all. It actually doesnt make you sick. It can cause some other things to happen, rash, itching, diarrhea. Mostly the day of was just really tired. It was always a long day for me with scans every time so i dont know if it was a combo of it all. Unless the 10mg proves to be too much, you should be able to work just fine. Read up on the different things ipi can cause and watch for those symptoms. Colds and illness are your b cells and cancer is your t cells so two different things so colds, germs shouldn’t be a problem

I did 3mg and it didnt make me sick at all. It actually doesnt make you sick. It can cause some other things to happen, rash, itching, diarrhea. Mostly the day of was just really tired. It was always a long day for me with scans every time so i dont know if it was a combo of it all. Unless the 10mg proves to be too much, you should be able to work just fine. Read up on the different things ipi can cause and watch for those symptoms. Colds and illness are your b cells and cancer is your t cells so two different things so colds, germs shouldn’t be a problem

I did the 10mg. I took a probiotic and used goat milk soap to help with rash. The probiotic i took was digestive advantage. But i would consult with your doctor.Greg

I did the 10mg. I took a probiotic and used goat milk soap to help with rash. The probiotic i took was digestive advantage. But i would consult with your doctor.Greg

I did the 10mg. I took a probiotic and used goat milk soap to help with rash. The probiotic i took was digestive advantage. But i would consult with your doctor.Greg