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TIL Trial — Part 2
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TIL Trial — Part 2

› Forums › General Melanoma Community › TIL Trial — Part 2

  • Post
    • March 14, 2018 at 3:24 pm
    mrsaxde
    Participant

      Hello Everybody,

      There hasn't been anything going on with me lately, so I've not been around much. But last week I got the call from NIH that my cells are ready for transfer.

      Dr. Shindorf told me that my melanin cells weren't "sticky" (her word) enough for them to do the newer protocol they had been looking at for me. But she said my cells grew well and are reactive, and so they are ready to do the bulk TIL transfer.

      I go to NIH to be admitted on Monday evening (3/19). I'll get scans and have a tunneled catheter inserted, and then on Friday 3/23 I'll be starting the chemo preparatory routine. The cell infusion is scheduled for Friday 3/26.

      I'll provide updates as things go if and when I feel well enough to do so.

      -Bill

    Viewing 7 reply threads
    • Replies
        • March 14, 2018 at 4:30 pm
        SABKLYN
        Participant

          Good luck!

           

            • March 15, 2018 at 11:14 pm
            mrsaxde
            Participant

              Thanks! I'm hoping this will be the magic bullet.

            • March 14, 2018 at 5:11 pm
            BillB
            Participant

              Good luck and please keep us posted on the treatment.

              Bill

              • March 14, 2018 at 5:51 pm
              bjeans
              Participant

                Good luck, Bill. I'm new on the forum (husband has melanoma, 3C, about ready to go into a study). Just wanted to say if you're not from the area and have to travel to NIH and need anything at all or have questions about the area, send me a message. We used to live near NIH, now are in northern Virginia, and could get over that way, just would prefer in between rush hours. (If you know DC/MD/VA you understand.)

                Beth

                  • March 14, 2018 at 11:09 pm
                  Mark_DC
                  Participant

                    Same from me Bill – good luck. I live in NW DC (but work during the day) so can pop up to NIH if you need company or other stuff you might like me to bring. Best wishes Mark 

                    • March 15, 2018 at 11:14 pm
                    mrsaxde
                    Participant

                      Thanks Beth and Mark. I'm from Delaware so I'm not going to be like 1,000,000 miles from home. 🙂 In fact, I figure I'm going to be in the DC area at a time (around Easter) when a lot of you are going to be over here. LOL

                      My wife is planning on being there with me most of the time, but I also wouldn't object to meeting anyone else from this board if either of you would like to drop by at some point. I figure I'm going to feel pretty crappy the first couple of weeks (chemo, then cell transfer with IL-2) but as I recover after that I'd probably be up for some company.

                    • March 14, 2018 at 9:26 pm
                    jennunicorn
                    Participant

                      Wishing you the best! Sending lots of positive vibes your way for great results!

                        • March 15, 2018 at 11:16 pm
                        mrsaxde
                        Participant

                          Thanks Jenn!

                        • March 15, 2018 at 12:22 am
                        Bubbles
                        Participant

                          Hey Bill!  Sorry on the first pass…but glad you're cells seem to be fiesty and productive!!!  Sorry for what you will have to endure, but I know you will ROCK IT OUT!!!!!!  Hang tough!  You've got this.  I will keep all fingers and toes crossed til I hear how you are doing!!!  c

                            • March 15, 2018 at 11:17 pm
                            mrsaxde
                            Participant

                              Thanks Celeste. I plan on giving those cells a pep talk before they go in to tell them that I need them to step up and do their duty!

                            • March 15, 2018 at 2:01 am
                            CancerSpouse
                            Participant

                              Bill, best of luck! Please keep us posted. ~ Carol

                                • March 15, 2018 at 11:18 pm
                                mrsaxde
                                Participant

                                  Thanks Carol. I will try to keep everybody posted. If I'm not feeling well enough I'll have my wife post updates.

                                • March 17, 2018 at 5:01 pm
                                Mat
                                Participant

                                  Bill, best wishes for good (preferably great) results.  When I was diagnosed Stage IV, TIL at NIH was my first choice (didn't qualify based on progression).  Very promising.

                                  • March 22, 2018 at 4:23 am
                                  Spl25
                                  Participant

                                    So what was the trial they were considering for “sticky” TIL? Wishing you great luck, was glad to connect a few months ago when going over tx options!

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