tomodar
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

tomodar

› Forums › General Melanoma Community › tomodar

  • Post
    • January 24, 2013 at 11:51 am
    dflohr
    Participant

      Does anyone have any experience with this drug? Has it worked for you and did you have any side effects? My husband had Stevens Johnson from Zelboraf so cannot go back on that or Ippi. Are getting a second opinion today but doing research on my own there is not a lot available until debrafenib and trametinib are approved. Thanks for any help  you can give me.

      Does anyone have any experience with this drug? Has it worked for you and did you have any side effects? My husband had Stevens Johnson from Zelboraf so cannot go back on that or Ippi. Are getting a second opinion today but doing research on my own there is not a lot available until debrafenib and trametinib are approved. Thanks for any help  you can give me.

    Viewing 11 reply threads
    • Replies
        • January 24, 2013 at 1:19 pm
        POW
        Participant

          In the past, temodar was widely used to treat melanoma. It is still sometimes prescribed for BRAF negative patients with brain tumors because it does get into the brain. If you seach this forum for "temodar" (note spelling) you will find a lot of information about it.  

          • January 24, 2013 at 1:19 pm
          POW
          Participant

            In the past, temodar was widely used to treat melanoma. It is still sometimes prescribed for BRAF negative patients with brain tumors because it does get into the brain. If you seach this forum for "temodar" (note spelling) you will find a lot of information about it.  

            • January 24, 2013 at 1:19 pm
            POW
            Participant

              In the past, temodar was widely used to treat melanoma. It is still sometimes prescribed for BRAF negative patients with brain tumors because it does get into the brain. If you seach this forum for "temodar" (note spelling) you will find a lot of information about it.  

              • January 24, 2013 at 4:34 pm
              Marcia1
              Participant

                My Mother, who has Stage IV Melanoma took Temador for 6 months.  She had no side effects which was a great thing, but the tumor in her lung grew a little bit so they now have her on Yervoy, so far no side effects.

                • January 24, 2013 at 4:34 pm
                Marcia1
                Participant

                  My Mother, who has Stage IV Melanoma took Temador for 6 months.  She had no side effects which was a great thing, but the tumor in her lung grew a little bit so they now have her on Yervoy, so far no side effects.

                  • January 24, 2013 at 4:34 pm
                  Marcia1
                  Participant

                    My Mother, who has Stage IV Melanoma took Temador for 6 months.  She had no side effects which was a great thing, but the tumor in her lung grew a little bit so they now have her on Yervoy, so far no side effects.

                    • January 25, 2013 at 8:56 am
                    NancyGM
                    Participant

                      I have been NED (no evidence of disease) for 5 years after being treated with Temodar. feel free to emial me with any questions. Best of luck to you and your husband.

                      • January 25, 2013 at 8:56 am
                      NancyGM
                      Participant

                        I have been NED (no evidence of disease) for 5 years after being treated with Temodar. feel free to emial me with any questions. Best of luck to you and your husband.

                        • January 25, 2013 at 8:56 am
                        NancyGM
                        Participant

                          I have been NED (no evidence of disease) for 5 years after being treated with Temodar. feel free to emial me with any questions. Best of luck to you and your husband.

                          • January 25, 2013 at 4:38 pm
                          Ali
                          Participant

                            I took it with Yervoy.  The weeks that I took the Temodar I was tired, and a little naseous at times, but it wasn't awful side effects.  It seems like there are some good results with it for some people.  Good luck to you!

                            • January 25, 2013 at 4:38 pm
                            Ali
                            Participant

                              I took it with Yervoy.  The weeks that I took the Temodar I was tired, and a little naseous at times, but it wasn't awful side effects.  It seems like there are some good results with it for some people.  Good luck to you!

                              • January 25, 2013 at 4:38 pm
                              Ali
                              Participant

                                I took it with Yervoy.  The weeks that I took the Temodar I was tired, and a little naseous at times, but it wasn't awful side effects.  It seems like there are some good results with it for some people.  Good luck to you!

                            Viewing 11 reply threads
                            • You must be logged in to reply to this topic.
                            About the MRF Patient Forum

                            The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                            The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.