Trial Postponed
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Trial Postponed

› Forums › General Melanoma Community › Trial Postponed

  • Post
    • January 1, 2019 at 7:49 pm
    Nick C
    Participant

      Hey guys…

      A little update. While doing the pre-trial physical, I mentioned that I occasionally have a "runny nose". MRI was mentioned and it was decided to have since it had been over a year. Had the MRI on the 21st. Within 2 hours after the MRI, I get a call from my OC that the trial will be postponed because found a lesion on my brain. They got me quickly to see the radialogistic last Friday. He showed me where it was. Although they are not positive that it not melanoma, there is a very good chance that it is. Options are biopsy, physically remove it or radiation. I opted for the radiation. I will have another MRI on Friday (more detail imaging) and then do the mapping. This will be a SRR radiation procedure…"one and done". Hopefully, the postponement will be short. My CT scans still show progression. It now actually shows that my largest met pushing up against my stomach which is causing some pain if I eat too much. Most of mets are just under the skin with 2 of protruding noticibly. This will be my fifth different treatment and third clincal trial (third time is a charm, right?).

      On a better note, wishing all of you a very Happy New Year! 

      Nick

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    • Replies
        • January 1, 2019 at 8:00 pm
        ed williams
        Participant

          Hi Nick, it is good they caught it early and SRS is set up and ready to go. I had to wait 3 months for SRS cyber knife follow up scans to get into checkmate 067 trial back in 2013, found out just before New Years that SRS had worked on the three little 4-5 mm tumors. I was able to then qualify for the trial since they didn't like brain mets then and I guess they still don't like them now when it comes to getting into clinical trials. Best Wishes!!!Ed

            • January 1, 2019 at 9:46 pm
            Nick C
            Participant

              Ed….

              Thank you. This is a 8mmx8mm tumor. As they say, timing is everything.

              Nick

               

            • January 2, 2019 at 12:55 am
            Bubbles
            Participant

              Sorry Nick!!!  This crap gets old quick doesn't it?  BUT!!!  As Ed said, glad it's found, glad you've got your plan in place.  Been there, done SRS to my holey brain!  You got this.  Hang tough.  Celeste

                • January 2, 2019 at 3:53 pm
                Nick C
                Participant

                  Thanks Celeste. You're right…it does get old. At least the are options yet available and they are right here at home. Losing 30 lbs hasn't helped…with no body fat, it gets cold here in the North Country!

                  Nick

                • January 3, 2019 at 3:55 am
                lkb
                Participant

                  Nick, I just had "one and done" SRS to a brain lesion last Thursday. Sorry to hear about the trial delay, but glad they found your met early. Wishing you a smooth Friday.

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