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Tuesday must be scan result day
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Tuesday must be scan result day

› Forums › General Melanoma Community › Tuesday must be scan result day

  • Post
    • July 22, 2015 at 4:47 am
    _Paul_
    Participant

      Because I got mine today as well. Pretty good results I think. This was a 6 month scan and the bottom line was that there was no progression. And in fact the new tumor I had growing in my shoulder is no longer visible.

      All the tumors in my liver and lungs are still there, but they are all 1cm diameter or smaller. And the one tumor that was zapped with SRS and expanded (consistent with inflammation from the radiation and scar tissue) has now begin to shrink (consistent with a decrease in inflammation).

      I would love to be NED, but I will take no progression!

      – Paul

    Viewing 23 reply threads
    • Replies
        • July 22, 2015 at 9:46 am
        Mat
        Participant

          Paul, glad to hear.  We're at similar points in our Keytruda treatments (just had my 9th infusion on Monday) and we're having similar results, i.e., I also had more stability than shrinkage at my last scans (at around week 14) and my remaining tumors are primarily in my liver and are relatively small (less than 3cm).  NED would be insanely great, but like you, I've come to accept (and be grateful for) stability.

            • July 24, 2015 at 2:46 pm
            _Paul_
            Participant

              Amen Mat. No progression is much better than uncontrolled growth. Given that mean survival time (pre-immunotherapy statistics) is 7 months and I'm at 10 (and you are 2 years out!) I don't mind at all!

              • July 24, 2015 at 2:46 pm
              _Paul_
              Participant

                Amen Mat. No progression is much better than uncontrolled growth. Given that mean survival time (pre-immunotherapy statistics) is 7 months and I'm at 10 (and you are 2 years out!) I don't mind at all!

                • July 24, 2015 at 2:46 pm
                _Paul_
                Participant

                  Amen Mat. No progression is much better than uncontrolled growth. Given that mean survival time (pre-immunotherapy statistics) is 7 months and I'm at 10 (and you are 2 years out!) I don't mind at all!

                • July 22, 2015 at 9:46 am
                Mat
                Participant

                  Paul, glad to hear.  We're at similar points in our Keytruda treatments (just had my 9th infusion on Monday) and we're having similar results, i.e., I also had more stability than shrinkage at my last scans (at around week 14) and my remaining tumors are primarily in my liver and are relatively small (less than 3cm).  NED would be insanely great, but like you, I've come to accept (and be grateful for) stability.

                  • July 22, 2015 at 9:46 am
                  Mat
                  Participant

                    Paul, glad to hear.  We're at similar points in our Keytruda treatments (just had my 9th infusion on Monday) and we're having similar results, i.e., I also had more stability than shrinkage at my last scans (at around week 14) and my remaining tumors are primarily in my liver and are relatively small (less than 3cm).  NED would be insanely great, but like you, I've come to accept (and be grateful for) stability.

                    • July 22, 2015 at 12:41 pm
                    Bubbles
                    Participant

                      Congrats guys!

                      Will keep fingers crossed that all tumors do the disappearing act next scan round! Celeste

                        • July 24, 2015 at 2:48 pm
                        _Paul_
                        Participant

                          Thanks Celeste! It would be fantastic if your wish comes true!

                          • July 24, 2015 at 2:48 pm
                          _Paul_
                          Participant

                            Thanks Celeste! It would be fantastic if your wish comes true!

                            • July 24, 2015 at 2:48 pm
                            _Paul_
                            Participant

                              Thanks Celeste! It would be fantastic if your wish comes true!

                            • July 22, 2015 at 12:41 pm
                            Bubbles
                            Participant

                              Congrats guys!

                              Will keep fingers crossed that all tumors do the disappearing act next scan round! Celeste

                              • July 22, 2015 at 12:41 pm
                              Bubbles
                              Participant

                                Congrats guys!

                                Will keep fingers crossed that all tumors do the disappearing act next scan round! Celeste

                                • July 22, 2015 at 1:41 pm
                                dentholla
                                Participant

                                  Great news, thanks for sharing

                                    • July 24, 2015 at 2:49 pm
                                    _Paul_
                                    Participant

                                      Of course! Thank you.

                                      • July 24, 2015 at 2:49 pm
                                      _Paul_
                                      Participant

                                        Of course! Thank you.

                                        • July 24, 2015 at 2:49 pm
                                        _Paul_
                                        Participant

                                          Of course! Thank you.

                                        • July 22, 2015 at 1:41 pm
                                        dentholla
                                        Participant

                                          Great news, thanks for sharing

                                          • July 22, 2015 at 1:41 pm
                                          dentholla
                                          Participant

                                            Great news, thanks for sharing

                                            • July 22, 2015 at 11:50 pm
                                            arthurjedi007
                                            Participant

                                              Congrats Paul. Sounds like great results.

                                              Artie

                                                • July 24, 2015 at 2:50 pm
                                                _Paul_
                                                Participant

                                                  Thanks Artie. I really hope you get into TIL or some other trial that once and for all kicks your cancer to the curb.

                                                  • July 24, 2015 at 2:50 pm
                                                  _Paul_
                                                  Participant

                                                    Thanks Artie. I really hope you get into TIL or some other trial that once and for all kicks your cancer to the curb.

                                                    • July 24, 2015 at 2:50 pm
                                                    _Paul_
                                                    Participant

                                                      Thanks Artie. I really hope you get into TIL or some other trial that once and for all kicks your cancer to the curb.

                                                    • July 22, 2015 at 11:50 pm
                                                    arthurjedi007
                                                    Participant

                                                      Congrats Paul. Sounds like great results.

                                                      Artie

                                                      • July 22, 2015 at 11:50 pm
                                                      arthurjedi007
                                                      Participant

                                                        Congrats Paul. Sounds like great results.

                                                        Artie

                                                        • July 23, 2015 at 1:43 am
                                                        Mom2Addy
                                                        Participant

                                                          That's wonderful! We will all take the little wins in this awful war!

                                                            • July 24, 2015 at 2:51 pm
                                                            _Paul_
                                                            Participant

                                                              I agree. Thank you!

                                                              • July 24, 2015 at 2:51 pm
                                                              _Paul_
                                                              Participant

                                                                I agree. Thank you!

                                                                • July 24, 2015 at 2:51 pm
                                                                _Paul_
                                                                Participant

                                                                  I agree. Thank you!

                                                                • July 23, 2015 at 1:43 am
                                                                Mom2Addy
                                                                Participant

                                                                  That's wonderful! We will all take the little wins in this awful war!

                                                                  • July 23, 2015 at 1:43 am
                                                                  Mom2Addy
                                                                  Participant

                                                                    That's wonderful! We will all take the little wins in this awful war!

                                                                    • July 23, 2015 at 8:07 am
                                                                    stars
                                                                    Participant

                                                                      Excellent news! Thanks for sharing your results. Not only is there no progression, but regression of one new tumor. Your body is responding!

                                                                        • July 24, 2015 at 2:53 pm
                                                                        _Paul_
                                                                        Participant

                                                                          That's true. That shoulder tumor was initially growing fast and now it's just gone. Woohoo!

                                                                          • July 24, 2015 at 2:53 pm
                                                                          _Paul_
                                                                          Participant

                                                                            That's true. That shoulder tumor was initially growing fast and now it's just gone. Woohoo!

                                                                            • July 24, 2015 at 2:53 pm
                                                                            _Paul_
                                                                            Participant

                                                                              That's true. That shoulder tumor was initially growing fast and now it's just gone. Woohoo!

                                                                            • July 23, 2015 at 8:07 am
                                                                            stars
                                                                            Participant

                                                                              Excellent news! Thanks for sharing your results. Not only is there no progression, but regression of one new tumor. Your body is responding!

                                                                              • July 23, 2015 at 8:07 am
                                                                              stars
                                                                              Participant

                                                                                Excellent news! Thanks for sharing your results. Not only is there no progression, but regression of one new tumor. Your body is responding!

                                                                                • July 23, 2015 at 3:10 pm
                                                                                dfeng
                                                                                Participant

                                                                                  best wishes!

                                                                                  • July 23, 2015 at 3:10 pm
                                                                                  dfeng
                                                                                  Participant

                                                                                    best wishes!

                                                                                      • July 24, 2015 at 2:54 pm
                                                                                      _Paul_
                                                                                      Participant

                                                                                        Thank you and I hope you get yours under control too!

                                                                                        • July 24, 2015 at 2:54 pm
                                                                                        _Paul_
                                                                                        Participant

                                                                                          Thank you and I hope you get yours under control too!

                                                                                          • July 24, 2015 at 2:54 pm
                                                                                          _Paul_
                                                                                          Participant

                                                                                            Thank you and I hope you get yours under control too!

                                                                                          • July 23, 2015 at 3:10 pm
                                                                                          dfeng
                                                                                          Participant

                                                                                            best wishes!

                                                                                            • July 25, 2015 at 12:06 pm
                                                                                            BrianP
                                                                                            Participant

                                                                                              Congrats Paul.  When I started my trial nearly 2 years ago I had pretty good 3 month scans but then like you at 6 month I was "just" stable.  Remember kinda being a little bumed about it as I just so badly wanted to be NED and put cancer in the rear view mirror.  I remember reading a quote by TJ Sharpe in his blog which said something along the lines that a tie is a win in this game.  That stuck with me.  After nearly 18 months of being stable it probably doesn't feel quite as good as being NED but if feels pretty darn great. 

                                                                                              Brian

                                                                                                • July 25, 2015 at 12:46 pm
                                                                                                ed williams
                                                                                                Participant

                                                                                                  Brian, I think we need our own " acronym".  Let's throw out NED and replace it with "NTD"  for No Tumor Development". This is my first attempt at creating an acronym, so I am open to suggestion from other more creative minds. Glad to hear you are " NTD" Paul, keep up the good fight guys.  

                                                                                                  • July 25, 2015 at 12:46 pm
                                                                                                  ed williams
                                                                                                  Participant

                                                                                                    Brian, I think we need our own " acronym".  Let's throw out NED and replace it with "NTD"  for No Tumor Development". This is my first attempt at creating an acronym, so I am open to suggestion from other more creative minds. Glad to hear you are " NTD" Paul, keep up the good fight guys.  

                                                                                                    • July 25, 2015 at 12:46 pm
                                                                                                    ed williams
                                                                                                    Participant

                                                                                                      Brian, I think we need our own " acronym".  Let's throw out NED and replace it with "NTD"  for No Tumor Development". This is my first attempt at creating an acronym, so I am open to suggestion from other more creative minds. Glad to hear you are " NTD" Paul, keep up the good fight guys.  

                                                                                                      • July 26, 2015 at 3:26 am
                                                                                                      Squash
                                                                                                      Participant

                                                                                                        Stable is still good.

                                                                                                        Heck what if you were stable for 10 years i am sure you would take it.

                                                                                                        Even people who are pronounced NED proably have melanoma lurking somewhere. It is just that it doest show up on any conventional scans or tests.

                                                                                                         

                                                                                                        • July 26, 2015 at 3:26 am
                                                                                                        Squash
                                                                                                        Participant

                                                                                                          Stable is still good.

                                                                                                          Heck what if you were stable for 10 years i am sure you would take it.

                                                                                                          Even people who are pronounced NED proably have melanoma lurking somewhere. It is just that it doest show up on any conventional scans or tests.

                                                                                                           

                                                                                                          • July 26, 2015 at 3:26 am
                                                                                                          Squash
                                                                                                          Participant

                                                                                                            Stable is still good.

                                                                                                            Heck what if you were stable for 10 years i am sure you would take it.

                                                                                                            Even people who are pronounced NED proably have melanoma lurking somewhere. It is just that it doest show up on any conventional scans or tests.

                                                                                                             

                                                                                                          • July 25, 2015 at 12:06 pm
                                                                                                          BrianP
                                                                                                          Participant

                                                                                                            Congrats Paul.  When I started my trial nearly 2 years ago I had pretty good 3 month scans but then like you at 6 month I was "just" stable.  Remember kinda being a little bumed about it as I just so badly wanted to be NED and put cancer in the rear view mirror.  I remember reading a quote by TJ Sharpe in his blog which said something along the lines that a tie is a win in this game.  That stuck with me.  After nearly 18 months of being stable it probably doesn't feel quite as good as being NED but if feels pretty darn great. 

                                                                                                            Brian

                                                                                                            • July 25, 2015 at 12:06 pm
                                                                                                            BrianP
                                                                                                            Participant

                                                                                                              Congrats Paul.  When I started my trial nearly 2 years ago I had pretty good 3 month scans but then like you at 6 month I was "just" stable.  Remember kinda being a little bumed about it as I just so badly wanted to be NED and put cancer in the rear view mirror.  I remember reading a quote by TJ Sharpe in his blog which said something along the lines that a tie is a win in this game.  That stuck with me.  After nearly 18 months of being stable it probably doesn't feel quite as good as being NED but if feels pretty darn great. 

                                                                                                              Brian

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