MRF-Logo2019-Horizontal-RGB
Two Years with NED
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Two Years with NED

› Forums › Cutaneous Melanoma Community › Two Years with NED

  • Post
    • May 19, 2011 at 6:55 pm
    dian in spokane
    Participant

      Today is the second anniversary of my last surgery. I have a long and crooked history of melanoma (which is in my patnet) starting in 1983. I advanced to stage IV in 2008 after 5 years of being NED at stage III. Last year I participated in a 6 month clinical vaccine trial, which I completed in December and I am hoping it will help KEEP me NED for a few more years!

      I feel very fortunate that I've not had to deal with some of the worst issues of advanced melanoma. I've had no organ involvement, and my subcutaneous tumors have been isolated and treated surgically.

      Today is the second anniversary of my last surgery. I have a long and crooked history of melanoma (which is in my patnet) starting in 1983. I advanced to stage IV in 2008 after 5 years of being NED at stage III. Last year I participated in a 6 month clinical vaccine trial, which I completed in December and I am hoping it will help KEEP me NED for a few more years!

      I feel very fortunate that I've not had to deal with some of the worst issues of advanced melanoma. I've had no organ involvement, and my subcutaneous tumors have been isolated and treated surgically.

      I have a PET/CT scan scheduled for early monday morning, so keep your fingers crossed for me!

      I always like to make note of these NEDversaries here, where people understand me.

      cheers!

      dian in spokane

    Viewing 29 reply threads
    • Replies
        • May 19, 2011 at 7:16 pm
        Janner
        Participant

          WE LOVE NED!

          Fingers crossed here!

          Janner

          • May 19, 2011 at 7:16 pm
          Janner
          Participant

            WE LOVE NED!

            Fingers crossed here!

            Janner

              • May 19, 2011 at 7:48 pm
              Vermont_Donna
              Participant

                Dear Dian,

                  Wishing you a clear scan and peace of mind. Thanks for updating us about your melanoma journey. You are an inspiration to all of us here on the MPIP board!!

                Vermont_Donna, stage 3a

                • May 19, 2011 at 7:48 pm
                Vermont_Donna
                Participant

                  Dear Dian,

                    Wishing you a clear scan and peace of mind. Thanks for updating us about your melanoma journey. You are an inspiration to all of us here on the MPIP board!!

                  Vermont_Donna, stage 3a

                • May 19, 2011 at 7:24 pm
                lhaley
                Participant

                  I hope you and Ned are best friends for many, many years to come!! 

                  Linda

                  • May 19, 2011 at 7:24 pm
                  lhaley
                  Participant

                    I hope you and Ned are best friends for many, many years to come!! 

                    Linda

                    • May 19, 2011 at 7:34 pm
                    jag
                    Participant

                      Congratulations Dian!!!

                      many more to come.

                      John

                      • May 19, 2011 at 7:34 pm
                      jag
                      Participant

                        Congratulations Dian!!!

                        many more to come.

                        John

                        • May 19, 2011 at 7:53 pm
                        TracyLee
                        Participant

                          Woo hoo!

                          Today is my one year surgery anniversary (I've had five).

                          I told my husband this morning, in years to come it will be a "gee, this was the beginning, but I'M STILL HERE" anniversary for us. 

                          Prayers and wishes for your clean PET/CT on Monday.

                          • May 19, 2011 at 7:53 pm
                          TracyLee
                          Participant

                            Woo hoo!

                            Today is my one year surgery anniversary (I've had five).

                            I told my husband this morning, in years to come it will be a "gee, this was the beginning, but I'M STILL HERE" anniversary for us. 

                            Prayers and wishes for your clean PET/CT on Monday.

                            • May 19, 2011 at 7:53 pm
                            akls
                            Participant

                              Dian,

                              Congrats on being NED for two years!!  Sending you good thoughts on your upcoming scans.

                               

                              Amy S. in Michigan

                              • May 19, 2011 at 7:53 pm
                              akls
                              Participant

                                Dian,

                                Congrats on being NED for two years!!  Sending you good thoughts on your upcoming scans.

                                 

                                Amy S. in Michigan

                                • May 19, 2011 at 8:18 pm
                                Harry in Fair Oaks
                                Participant

                                  I hope you and NED are friends for a long long time.  I was Stage IV NED for almost 11-years, but I must have done or said something to offend him.  Come back NED!

                                  Best wishes,

                                  Harry

                                  • May 19, 2011 at 8:18 pm
                                  Harry in Fair Oaks
                                  Participant

                                    I hope you and NED are friends for a long long time.  I was Stage IV NED for almost 11-years, but I must have done or said something to offend him.  Come back NED!

                                    Best wishes,

                                    Harry

                                    • May 19, 2011 at 8:47 pm
                                    jackiewin
                                    Participant

                                      Good luck with the scans Monday.  I'm hoping to hear a lifetime of NED from you.

                                       

                                      Hugs,

                                       

                                      Jackie W

                                      • May 19, 2011 at 8:47 pm
                                      jackiewin
                                      Participant

                                        Good luck with the scans Monday.  I'm hoping to hear a lifetime of NED from you.

                                         

                                        Hugs,

                                         

                                        Jackie W

                                        • May 19, 2011 at 8:47 pm
                                        jackiewin
                                        Participant

                                          Good luck with the scans Monday.  I'm hoping to hear a lifetime of NED from you.

                                           

                                          Hugs,

                                           

                                          Jackie W

                                          • May 19, 2011 at 8:47 pm
                                          jackiewin
                                          Participant

                                            Good luck with the scans Monday.  I'm hoping to hear a lifetime of NED from you.

                                             

                                            Hugs,

                                             

                                            Jackie W

                                            • May 19, 2011 at 8:48 pm
                                            jackiewin
                                            Participant

                                              Good luck with the scans Monday.  I'm hoping to hear a lifetime of NED from you.

                                               

                                              Hugs,

                                               

                                              Jackie W

                                              • May 19, 2011 at 8:48 pm
                                              jackiewin
                                              Participant

                                                Good luck with the scans Monday.  I'm hoping to hear a lifetime of NED from you.

                                                 

                                                Hugs,

                                                 

                                                Jackie W

                                                • May 20, 2011 at 1:01 am
                                                Jerry from Cape Cod
                                                Participant

                                                  Dian

                                                  Fingers crossed, eyes crossed, toes crossed, legs crossed, arms crossed

                                                  Hugs and all that stuff

                                                  Jerry from Cape Cod

                                                   

                                                  • May 20, 2011 at 1:01 am
                                                  Jerry from Cape Cod
                                                  Participant

                                                    Dian

                                                    Fingers crossed, eyes crossed, toes crossed, legs crossed, arms crossed

                                                    Hugs and all that stuff

                                                    Jerry from Cape Cod

                                                     

                                                    • May 20, 2011 at 1:08 am
                                                    King
                                                    Participant

                                                      Dian,

                                                       

                                                      I'm hoping that you will be NED for more than just a few years…..many more years.  My fingers and toes are crossed for great results on your upcoming scan.  Enjoy the weekend and keep us posted.

                                                       

                                                      Stay Strong

                                                      Kathie

                                                      • May 20, 2011 at 1:08 am
                                                      King
                                                      Participant

                                                        Dian,

                                                         

                                                        I'm hoping that you will be NED for more than just a few years…..many more years.  My fingers and toes are crossed for great results on your upcoming scan.  Enjoy the weekend and keep us posted.

                                                         

                                                        Stay Strong

                                                        Kathie

                                                        • May 20, 2011 at 2:13 am
                                                        BethA in VA
                                                        Participant

                                                          Wow…so happy to hear this.  It is always nice to see good, promising news listed.  Enjoy being NED, forever!!   Beth 3/B  

                                                          • May 20, 2011 at 2:13 am
                                                          BethA in VA
                                                          Participant

                                                            Wow…so happy to hear this.  It is always nice to see good, promising news listed.  Enjoy being NED, forever!!   Beth 3/B  

                                                            • May 20, 2011 at 4:26 pm
                                                            Bonnie Lea
                                                            Participant

                                                              Oh Dian:

                                                               

                                                              congratulations, and yes only the bestus luck on Monday.  And all through this you have kept your fiddle playing and travelling with Cigar Bob.  

                                                              YEAHHHHHHH

                                                              • May 20, 2011 at 4:26 pm
                                                              Bonnie Lea
                                                              Participant

                                                                Oh Dian:

                                                                 

                                                                congratulations, and yes only the bestus luck on Monday.  And all through this you have kept your fiddle playing and travelling with Cigar Bob.  

                                                                YEAHHHHHHH

                                                                • May 21, 2011 at 2:44 pm
                                                                mrsmarilyn
                                                                Participant

                                                                  congratulations! Thanks for the update on you and NED. You are a perfect pair with many more years together!

                                                                  Best wishes and enjoy the summer with NED!

                                                                  Mrs Marilyn

                                                                  sister of Gary stage IV

                                                                  • May 21, 2011 at 2:44 pm
                                                                  mrsmarilyn
                                                                  Participant

                                                                    congratulations! Thanks for the update on you and NED. You are a perfect pair with many more years together!

                                                                    Best wishes and enjoy the summer with NED!

                                                                    Mrs Marilyn

                                                                    sister of Gary stage IV

                                                                    • May 22, 2011 at 4:40 am
                                                                    Suzan AB
                                                                    Participant

                                                                      WhooHoo Dian, Congrats on your love with NED.  I want to date the guy too!!!  LOL!

                                                                      Good luck on Monday!  My best to you and yours

                                                                      Suzan AB

                                                                      Stage right!

                                                                        • May 22, 2011 at 12:55 pm
                                                                        nicoli
                                                                        Participant

                                                                          I've been flirting with NED (no evidence of disease) myself.

                                                                          Just have to check out one spot on my scalp and NED and Nicki will be arm in arm!

                                                                          Don'tcha love love?

                                                                          Nicki, Stage 3b

                                                                          • May 22, 2011 at 12:55 pm
                                                                          nicoli
                                                                          Participant

                                                                            I've been flirting with NED (no evidence of disease) myself.

                                                                            Just have to check out one spot on my scalp and NED and Nicki will be arm in arm!

                                                                            Don'tcha love love?

                                                                            Nicki, Stage 3b

                                                                          • May 22, 2011 at 4:40 am
                                                                          Suzan AB
                                                                          Participant

                                                                            WhooHoo Dian, Congrats on your love with NED.  I want to date the guy too!!!  LOL!

                                                                            Good luck on Monday!  My best to you and yours

                                                                            Suzan AB

                                                                            Stage right!

                                                                        Viewing 29 reply threads

                                                                        Tagged: 

                                                                        • You must be logged in to reply to this topic.
                                                                        About the MRF Patient Forum

                                                                        The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                                                        The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                                                                        Popular Topics