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Ultrasound w/ Fine Needle Aspiration

Forums General Melanoma Community Ultrasound w/ Fine Needle Aspiration

  • Post
    upsidedown16
    Participant

      On Aug 30th I was diagnosed with malignant melanoma. Long story very short, at the time I was living overseas but recently transferred back to the states for treatment because the hospital out there did not have adequate equipment or professionals for my case. I finally met with the surgical oncologist on Monday and before we proceeded with the wide excision and sentinal node biopsy, he proposed we go with an ultrasound and fine needle aspiration of the palpable lymph node in my groin because this would help guide the surgery options. 

      Today I had the ultrasound and it wasn't really painful but my anxiety was getting the best of me. I was shaking the whole time. Anyways, I guess I'm just even more worried now because of the comments the doctor said during the procedure such as "this is a funky shape for a lymph node", "they are clustered together", and "lymph nodes are usually round and these appear to be a little lumpy which means there's some time of process going on but that could be a process of anything". 

      I was told it would take about a week back to get results, ugh this is just so stressful. I guess I'm more so venting, but has anyone also going through this testing procedure? 

    Viewing 5 reply threads
    • Replies
        jennunicorn
        Participant

          I had one of those for an enlarged groin lymph node in March and tomorrow I am having 2 lymph nodes that have grown recently biopsied also using ultrasound guide (another in groin and one in armpit). In March the result was negative for melanoma. It was a very weird experience and I am not really looking forward to tomorrow's biopsies. For me, it hurt quite a bit once the needle was stabbing my lymph node. The doctor said some people feel it and some don't… guess I'm one that can feel it.

          Hopefully you get good results, but, if you don't, just know there's a lot of support here and good treatment options. 

          All the best,

          jennunicorn
          Participant

            I had one of those for an enlarged groin lymph node in March and tomorrow I am having 2 lymph nodes that have grown recently biopsied also using ultrasound guide (another in groin and one in armpit). In March the result was negative for melanoma. It was a very weird experience and I am not really looking forward to tomorrow's biopsies. For me, it hurt quite a bit once the needle was stabbing my lymph node. The doctor said some people feel it and some don't… guess I'm one that can feel it.

            Hopefully you get good results, but, if you don't, just know there's a lot of support here and good treatment options. 

            All the best,

              upsidedown16
              Participant

                I will say it was definitely weird but not too bad. I could feel the needle going in and out, which was buzzare lol! I wish they could give us results immediately, the waiting game is the worst. 

                upsidedown16
                Participant

                  I will say it was definitely weird but not too bad. I could feel the needle going in and out, which was buzzare lol! I wish they could give us results immediately, the waiting game is the worst. 

                  upsidedown16
                  Participant

                    I will say it was definitely weird but not too bad. I could feel the needle going in and out, which was buzzare lol! I wish they could give us results immediately, the waiting game is the worst. 

                  jennunicorn
                  Participant

                    I had one of those for an enlarged groin lymph node in March and tomorrow I am having 2 lymph nodes that have grown recently biopsied also using ultrasound guide (another in groin and one in armpit). In March the result was negative for melanoma. It was a very weird experience and I am not really looking forward to tomorrow's biopsies. For me, it hurt quite a bit once the needle was stabbing my lymph node. The doctor said some people feel it and some don't… guess I'm one that can feel it.

                    Hopefully you get good results, but, if you don't, just know there's a lot of support here and good treatment options. 

                    All the best,

                    debwray
                    Participant

                      Hi, 

                      Went through this in Nov 2015. 

                      Basically, they can feel a lymph node that might be involved.

                       They want to test it for melanoma via FNA as this is simple and if it is positive then a SNB becomes unnecessary and would potentially complicate any surgery to comp!etely remove all the inguinal l ymph nodes  if you opt for that. 

                      The ultrasound can show the shape and size of nodes. There is a deal of variability in size. Nodes that are positive tend to be firm and painless. The scan shows if the node is vascularized..giving a tumour a blood supply to feed from. 

                      So , there are indicators from the view of the scan, the operator then takes fluid from the node to test for melanoma. They look at the cells under a microscope and the pathologist will comment on the appearance.. They are looking for spindle cells. The next tests are special stains of the aspirate … If it is positive for melanocytes via the mart 1 stain then this is positive for melanoma as these cells should not be in a lymph node. They may also test for S100 and comment on if the aspirate is bloody or clear.

                      At the end of the test the pathologist will comment and if it is mellanoma might say something like findings consistent with malignant melanoma.

                      I am very sorry if I am scaring you but I think you have already put some of the possible pieces of the picture together. I didn't want to believe my test results and had them explain how they were sure the result was positive . This was because I had just had a major surgery and had convinced myself that the timing meant the enlarged lymph nodes were related to that. Sadly this was not the case for me. Lymph nodes can be enlarged for a variety of reasons including infection but when melanoma is in the mix it must be taken seriously as a possible cause. Is your primary on the leg ? 

                      You will not know for certain until you get the lab results back.. But in order to take best advantage of that meeting  you might want to consider / research your likely options if it was positive.

                      There are choices.  Surgery to remove all the inguinal nodes.. as if one is palpable then the chances are there may be microscopic spread into the other draining nodes. But before surgery is planned you are likely to be offered a pet scan.. It is a combination of a ct scan superimposed with the scan of the uptake of radio active glucose. You need to fast before this test so that the cells that are using energy and growing are calling for glucose and fuel. This then gives your team more evidence of the likely spread. In my case ,it just showed the 3cm positive node. Because this node was large and high in the groin my 2nd opinion surgeon advised removal of pelviupelviucnodes too although not showing on pet scan. Pathology results showed one positive inguinal and one positive  pelvis although not detectable on pet scan results.Some of the other nodes were enlarged as they had developed a blood supply .

                      This made me stage 3. As usual I would recommend finding a melanoma specialist centre for treatment even if itmeans travel as they are likely tone more up to date and offer more expertise in the treatment and management of the disease. A centre running clinical trials might offer you newer treatments prior to Fda approval for this stage of disease  such as keytruda etc 

                      If your biopsy is negative, you will still have these issues to think about if the SNB is positive. I would research treatments for stage 3 melanoma so you are prepared in case you need the information  at a later date. Hope you don't…but until anything is confirmed or ruled out you are not under the time pressure that comes with knowing that something needs doing and the sooner the better . Not saying that the waiting isn't a time of anxiety and stress ..but maybe you canuse it to work out which questions you want to ask at your next appointment.I would also highlyhhighlyh recommend trying to distract yourself with doing things you enjoy in the meantime..a sort of two pronged approach..educate yourself for possible choices to come but try not to stress too much until things are confirmed. Whilst it is distressing to have your stage increased .. If that happens… Accurate staging means you get the most appropriate treatment for your actual stage of disease.

                      With the best of wishes

                      Deb

                      debwray
                      Participant

                        Hi, 

                        Went through this in Nov 2015. 

                        Basically, they can feel a lymph node that might be involved.

                         They want to test it for melanoma via FNA as this is simple and if it is positive then a SNB becomes unnecessary and would potentially complicate any surgery to comp!etely remove all the inguinal l ymph nodes  if you opt for that. 

                        The ultrasound can show the shape and size of nodes. There is a deal of variability in size. Nodes that are positive tend to be firm and painless. The scan shows if the node is vascularized..giving a tumour a blood supply to feed from. 

                        So , there are indicators from the view of the scan, the operator then takes fluid from the node to test for melanoma. They look at the cells under a microscope and the pathologist will comment on the appearance.. They are looking for spindle cells. The next tests are special stains of the aspirate … If it is positive for melanocytes via the mart 1 stain then this is positive for melanoma as these cells should not be in a lymph node. They may also test for S100 and comment on if the aspirate is bloody or clear.

                        At the end of the test the pathologist will comment and if it is mellanoma might say something like findings consistent with malignant melanoma.

                        I am very sorry if I am scaring you but I think you have already put some of the possible pieces of the picture together. I didn't want to believe my test results and had them explain how they were sure the result was positive . This was because I had just had a major surgery and had convinced myself that the timing meant the enlarged lymph nodes were related to that. Sadly this was not the case for me. Lymph nodes can be enlarged for a variety of reasons including infection but when melanoma is in the mix it must be taken seriously as a possible cause. Is your primary on the leg ? 

                        You will not know for certain until you get the lab results back.. But in order to take best advantage of that meeting  you might want to consider / research your likely options if it was positive.

                        There are choices.  Surgery to remove all the inguinal nodes.. as if one is palpable then the chances are there may be microscopic spread into the other draining nodes. But before surgery is planned you are likely to be offered a pet scan.. It is a combination of a ct scan superimposed with the scan of the uptake of radio active glucose. You need to fast before this test so that the cells that are using energy and growing are calling for glucose and fuel. This then gives your team more evidence of the likely spread. In my case ,it just showed the 3cm positive node. Because this node was large and high in the groin my 2nd opinion surgeon advised removal of pelviupelviucnodes too although not showing on pet scan. Pathology results showed one positive inguinal and one positive  pelvis although not detectable on pet scan results.Some of the other nodes were enlarged as they had developed a blood supply .

                        This made me stage 3. As usual I would recommend finding a melanoma specialist centre for treatment even if itmeans travel as they are likely tone more up to date and offer more expertise in the treatment and management of the disease. A centre running clinical trials might offer you newer treatments prior to Fda approval for this stage of disease  such as keytruda etc 

                        If your biopsy is negative, you will still have these issues to think about if the SNB is positive. I would research treatments for stage 3 melanoma so you are prepared in case you need the information  at a later date. Hope you don't…but until anything is confirmed or ruled out you are not under the time pressure that comes with knowing that something needs doing and the sooner the better . Not saying that the waiting isn't a time of anxiety and stress ..but maybe you canuse it to work out which questions you want to ask at your next appointment.I would also highlyhhighlyh recommend trying to distract yourself with doing things you enjoy in the meantime..a sort of two pronged approach..educate yourself for possible choices to come but try not to stress too much until things are confirmed. Whilst it is distressing to have your stage increased .. If that happens… Accurate staging means you get the most appropriate treatment for your actual stage of disease.

                        With the best of wishes

                        Deb

                        debwray
                        Participant

                          Hi, 

                          Went through this in Nov 2015. 

                          Basically, they can feel a lymph node that might be involved.

                           They want to test it for melanoma via FNA as this is simple and if it is positive then a SNB becomes unnecessary and would potentially complicate any surgery to comp!etely remove all the inguinal l ymph nodes  if you opt for that. 

                          The ultrasound can show the shape and size of nodes. There is a deal of variability in size. Nodes that are positive tend to be firm and painless. The scan shows if the node is vascularized..giving a tumour a blood supply to feed from. 

                          So , there are indicators from the view of the scan, the operator then takes fluid from the node to test for melanoma. They look at the cells under a microscope and the pathologist will comment on the appearance.. They are looking for spindle cells. The next tests are special stains of the aspirate … If it is positive for melanocytes via the mart 1 stain then this is positive for melanoma as these cells should not be in a lymph node. They may also test for S100 and comment on if the aspirate is bloody or clear.

                          At the end of the test the pathologist will comment and if it is mellanoma might say something like findings consistent with malignant melanoma.

                          I am very sorry if I am scaring you but I think you have already put some of the possible pieces of the picture together. I didn't want to believe my test results and had them explain how they were sure the result was positive . This was because I had just had a major surgery and had convinced myself that the timing meant the enlarged lymph nodes were related to that. Sadly this was not the case for me. Lymph nodes can be enlarged for a variety of reasons including infection but when melanoma is in the mix it must be taken seriously as a possible cause. Is your primary on the leg ? 

                          You will not know for certain until you get the lab results back.. But in order to take best advantage of that meeting  you might want to consider / research your likely options if it was positive.

                          There are choices.  Surgery to remove all the inguinal nodes.. as if one is palpable then the chances are there may be microscopic spread into the other draining nodes. But before surgery is planned you are likely to be offered a pet scan.. It is a combination of a ct scan superimposed with the scan of the uptake of radio active glucose. You need to fast before this test so that the cells that are using energy and growing are calling for glucose and fuel. This then gives your team more evidence of the likely spread. In my case ,it just showed the 3cm positive node. Because this node was large and high in the groin my 2nd opinion surgeon advised removal of pelviupelviucnodes too although not showing on pet scan. Pathology results showed one positive inguinal and one positive  pelvis although not detectable on pet scan results.Some of the other nodes were enlarged as they had developed a blood supply .

                          This made me stage 3. As usual I would recommend finding a melanoma specialist centre for treatment even if itmeans travel as they are likely tone more up to date and offer more expertise in the treatment and management of the disease. A centre running clinical trials might offer you newer treatments prior to Fda approval for this stage of disease  such as keytruda etc 

                          If your biopsy is negative, you will still have these issues to think about if the SNB is positive. I would research treatments for stage 3 melanoma so you are prepared in case you need the information  at a later date. Hope you don't…but until anything is confirmed or ruled out you are not under the time pressure that comes with knowing that something needs doing and the sooner the better . Not saying that the waiting isn't a time of anxiety and stress ..but maybe you canuse it to work out which questions you want to ask at your next appointment.I would also highlyhhighlyh recommend trying to distract yourself with doing things you enjoy in the meantime..a sort of two pronged approach..educate yourself for possible choices to come but try not to stress too much until things are confirmed. Whilst it is distressing to have your stage increased .. If that happens… Accurate staging means you get the most appropriate treatment for your actual stage of disease.

                          With the best of wishes

                          Deb

                            upsidedown16
                            Participant

                              Deb,

                              Thank you for all the information! I have looked into melanoma research centers in the area who I could seek second opinions from but have not made contact with them. Would it be best to seek a second opinion before the wide excision depending on the results of the node aspiration or after the wide excision?

                              My primary is on my lower back, just above my bum so I guess that would be the trunk region? The surgical oncologist did say the area where my primary is located can be tricky to predict because it could drain into the armpit region or the groin. 

                              All of the uncertainties can be so difficult to deal with. I just wish I could make this all go away somehow ๐Ÿ™

                               

                              upsidedown16
                              Participant

                                Deb,

                                Thank you for all the information! I have looked into melanoma research centers in the area who I could seek second opinions from but have not made contact with them. Would it be best to seek a second opinion before the wide excision depending on the results of the node aspiration or after the wide excision?

                                My primary is on my lower back, just above my bum so I guess that would be the trunk region? The surgical oncologist did say the area where my primary is located can be tricky to predict because it could drain into the armpit region or the groin. 

                                All of the uncertainties can be so difficult to deal with. I just wish I could make this all go away somehow ๐Ÿ™

                                 

                                upsidedown16
                                Participant

                                  Deb,

                                  Thank you for all the information! I have looked into melanoma research centers in the area who I could seek second opinions from but have not made contact with them. Would it be best to seek a second opinion before the wide excision depending on the results of the node aspiration or after the wide excision?

                                  My primary is on my lower back, just above my bum so I guess that would be the trunk region? The surgical oncologist did say the area where my primary is located can be tricky to predict because it could drain into the armpit region or the groin. 

                                  All of the uncertainties can be so difficult to deal with. I just wish I could make this all go away somehow ๐Ÿ™

                                   

                                  debwray
                                  Participant

                                    Hi Fressia,

                                    Sorry for so many typos. Not very good at using a touch screen and that is all I have at the moment.

                                    If the primary is on your back then snb may still be on the menu as your doc says. It may drain to more than 1 nodal baisin. This test should be done by injecting dye into the primary and seeing where it drains to. Then they remove the sentinel node or nodes for biopsy and do the wide excision.

                                    If your inguinal node comes back positive then I would first see what your original doc advises re scans surgery etc. What are the next steps in their opinion. It might be that it takes a little while to set up 2nd opinion appointments and if you get scans done meantime they can be taken along to the specialist centre. Have you got copies of your original pathology report ? If not can it be requested ? Also get a copy of the FNA report to take along to any second opinion appointment.

                                    In the meantime I would see if you can get an appointment set up at a research centre. I'm in the UK so don't have a handle on insurance requirements etc. If you shout out on the board for recommendations for someone good in your area there will be people who can help.

                                    The second opinion is good as often alternatives present and whilst that throws in another level of uncertainty it helps to clarify decisions and reasoning. Where things are as important as this it is good to cross check and access expertise. The ride might be bumpy but you can work through this and getting the best advice  gives you confidence . Might be worth watching the stage 3 treatment webinar from Catherine Poole and MIF _Melanoma  International Foundation on You tube. Not good at links but sure you can find it on Google.

                                    Best wishes

                                    Deb

                                    debwray
                                    Participant

                                      Hi Fressia,

                                      Sorry for so many typos. Not very good at using a touch screen and that is all I have at the moment.

                                      If the primary is on your back then snb may still be on the menu as your doc says. It may drain to more than 1 nodal baisin. This test should be done by injecting dye into the primary and seeing where it drains to. Then they remove the sentinel node or nodes for biopsy and do the wide excision.

                                      If your inguinal node comes back positive then I would first see what your original doc advises re scans surgery etc. What are the next steps in their opinion. It might be that it takes a little while to set up 2nd opinion appointments and if you get scans done meantime they can be taken along to the specialist centre. Have you got copies of your original pathology report ? If not can it be requested ? Also get a copy of the FNA report to take along to any second opinion appointment.

                                      In the meantime I would see if you can get an appointment set up at a research centre. I'm in the UK so don't have a handle on insurance requirements etc. If you shout out on the board for recommendations for someone good in your area there will be people who can help.

                                      The second opinion is good as often alternatives present and whilst that throws in another level of uncertainty it helps to clarify decisions and reasoning. Where things are as important as this it is good to cross check and access expertise. The ride might be bumpy but you can work through this and getting the best advice  gives you confidence . Might be worth watching the stage 3 treatment webinar from Catherine Poole and MIF _Melanoma  International Foundation on You tube. Not good at links but sure you can find it on Google.

                                      Best wishes

                                      Deb

                                      debwray
                                      Participant

                                        Hi Fressia,

                                        Sorry for so many typos. Not very good at using a touch screen and that is all I have at the moment.

                                        If the primary is on your back then snb may still be on the menu as your doc says. It may drain to more than 1 nodal baisin. This test should be done by injecting dye into the primary and seeing where it drains to. Then they remove the sentinel node or nodes for biopsy and do the wide excision.

                                        If your inguinal node comes back positive then I would first see what your original doc advises re scans surgery etc. What are the next steps in their opinion. It might be that it takes a little while to set up 2nd opinion appointments and if you get scans done meantime they can be taken along to the specialist centre. Have you got copies of your original pathology report ? If not can it be requested ? Also get a copy of the FNA report to take along to any second opinion appointment.

                                        In the meantime I would see if you can get an appointment set up at a research centre. I'm in the UK so don't have a handle on insurance requirements etc. If you shout out on the board for recommendations for someone good in your area there will be people who can help.

                                        The second opinion is good as often alternatives present and whilst that throws in another level of uncertainty it helps to clarify decisions and reasoning. Where things are as important as this it is good to cross check and access expertise. The ride might be bumpy but you can work through this and getting the best advice  gives you confidence . Might be worth watching the stage 3 treatment webinar from Catherine Poole and MIF _Melanoma  International Foundation on You tube. Not good at links but sure you can find it on Google.

                                        Best wishes

                                        Deb

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