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Updat

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  • Post
    • May 8, 2012 at 8:06 pm
    Lisa13
    Participant
      2 weeks ago, I found out the brain met from last november was starting to grow, but they didn’t know if was blood or met. So I decided to go to Florida and had a great time with my family. I also found out the brain hadn’t grown for 13 days, so in 2 weeks, I’ll know everything. This could be good things from ipi, which i’ll find out everything on Friday.

      I’ve never taken a steroid and still have high lymphocyte, so I don’t want to effect the immune system. However, I’ll have to take them as I’m experiencing things like a weak hand. I used to have other problems, but no longer have then. Does the steroid really make you feel better?

      Lisa

    Viewing 8 reply threads
    • Replies
        • May 8, 2012 at 8:13 pm
        justlittleoleme
        Participant

          The steroid brings with it many side effects.  My husband is on a huge dose so he has lots of side effects.  If you can avoid them, I would.

          He now has steroid induced diabetes that he uses insulin for.  He has swelling, folliculitis, increased thirst and hunger, steroid belly, weakness in legs, loss of strength…..you get the picture.

          • May 8, 2012 at 8:13 pm
          justlittleoleme
          Participant

            The steroid brings with it many side effects.  My husband is on a huge dose so he has lots of side effects.  If you can avoid them, I would.

            He now has steroid induced diabetes that he uses insulin for.  He has swelling, folliculitis, increased thirst and hunger, steroid belly, weakness in legs, loss of strength…..you get the picture.

            • May 8, 2012 at 8:13 pm
            justlittleoleme
            Participant

              The steroid brings with it many side effects.  My husband is on a huge dose so he has lots of side effects.  If you can avoid them, I would.

              He now has steroid induced diabetes that he uses insulin for.  He has swelling, folliculitis, increased thirst and hunger, steroid belly, weakness in legs, loss of strength…..you get the picture.

              • May 8, 2012 at 8:28 pm
              Linny
              Participant

                Hi Lisa,

                It's great to hear good news from you! I sure hope that the ipi is kicking butt for you. Sure looks that way and I pray the scans confirm it.

                If prednisone is the steroid your doc wants to put you on, it will come with side effects. I was on it for about 3 weeks for a non-melanoma condition and for me it caused bloating, thirst, sleeplessness, hot flashes, heart palpitations, and muscle weakness in the legs. Aside from the side effects, it worked pretty well in alleviating the condition it was prescribed for,

                • May 8, 2012 at 8:28 pm
                Linny
                Participant

                  Hi Lisa,

                  It's great to hear good news from you! I sure hope that the ipi is kicking butt for you. Sure looks that way and I pray the scans confirm it.

                  If prednisone is the steroid your doc wants to put you on, it will come with side effects. I was on it for about 3 weeks for a non-melanoma condition and for me it caused bloating, thirst, sleeplessness, hot flashes, heart palpitations, and muscle weakness in the legs. Aside from the side effects, it worked pretty well in alleviating the condition it was prescribed for,

                  • May 8, 2012 at 8:28 pm
                  Linny
                  Participant

                    Hi Lisa,

                    It's great to hear good news from you! I sure hope that the ipi is kicking butt for you. Sure looks that way and I pray the scans confirm it.

                    If prednisone is the steroid your doc wants to put you on, it will come with side effects. I was on it for about 3 weeks for a non-melanoma condition and for me it caused bloating, thirst, sleeplessness, hot flashes, heart palpitations, and muscle weakness in the legs. Aside from the side effects, it worked pretty well in alleviating the condition it was prescribed for,

                    • May 9, 2012 at 5:10 am
                    hope4cure1
                    Participant

                      Hey Lisa,

                      Just want you to know that I'm pulling for you.  You were so right to take a trip and enjoy your family.  That's what life really is.  You hold on to your strength and positive attitude.  You, young lady, are a champ!

                      Hope

                      • May 9, 2012 at 5:10 am
                      hope4cure1
                      Participant

                        Hey Lisa,

                        Just want you to know that I'm pulling for you.  You were so right to take a trip and enjoy your family.  That's what life really is.  You hold on to your strength and positive attitude.  You, young lady, are a champ!

                        Hope

                        • May 9, 2012 at 5:10 am
                        hope4cure1
                        Participant

                          Hey Lisa,

                          Just want you to know that I'm pulling for you.  You were so right to take a trip and enjoy your family.  That's what life really is.  You hold on to your strength and positive attitude.  You, young lady, are a champ!

                          Hope

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