MRF-Logo2019-Horizontal-RGB
Update
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Update

› Forums › General Melanoma Community › Update

  • Post
    • June 4, 2017 at 12:24 am
    Nick C
    Participant

      Just wanted to update where I am in my treatment. After being upgraded ( or is it down graded) to Stage IV in August 2015, I elected to continue observation. At the end of October, I had a node removed (golf ball size) that came back cancerous. A follow-up scan showed progression. After going thru all my options, I started on pembro the first of the year. I had a scan last week.The scan showed that all except one spot had been "resolved" or not found. The one that is still there has gotten smaller. There was signs of one new spot of uncertain significance (which we look at in three months). And today is my birthday.

      Although I wanted to share some good news, I feel a little guilty in doing so. I know that there those on here that are much worse shape than me…some fighting for their lives and some that didn't make it.

      I think about what my surgeon said…If you are going get melanoma, this is a good time to get it. Five to six years ago there was very liitle they could do. Hopefully,  the reserchers will be able to glean info from our individual treatments to be able to put togehter the pieces to find key in destroying mel.

      You all are in my thoughts and prayers. Stay strong!

    Viewing 12 reply threads
    • Replies
        • June 4, 2017 at 1:00 am
        SABKLYN
        Participant

          My opinion Nick is in light of all the bad news, having someone who has had great response is welcome!  Wishing you continued good health

          • June 4, 2017 at 1:03 am
          Shannon B
          Participant

            That's great Nick! And happy birthday! My husband had been NED for 10 1/2 years and now is Stage IV so I am looking for any good stories!

            Thanks,

            Shannon

            • June 4, 2017 at 1:47 am
            jennunicorn
            Participant

              Thank you for giving us some good news here Nick, hope you're having a very happy birthday and that you'll have a ton more birthdays to come!

              • June 4, 2017 at 2:41 am
              maperny
              Participant

                Happy Birthday, Nick!  Excellent news!

                maria

                • June 4, 2017 at 3:53 am
                Marksa2570
                Participant

                  Good news gives hope and hope is much needed!    Glad it is working for you and happy b-day!      

                  • June 4, 2017 at 12:06 pm
                  ed williams
                  Participant

                    Thanks for posting Nick C, may be this will be the start of many happy posts!!! We sure could use that around here. I know that guilty feeling well, of not wanting to share on the forum how good things are going for you personally, when so many others are struggling. I am 40 months into my trial (check Mate 067) and continue to get stable lung scans and biweekly treatments. Best Wishes!!!Ed

                    • June 4, 2017 at 2:00 pm
                    Patrisa
                    Participant

                      Congratulations Nick, on your birthday and on excellent news!!! We sure need it, we are beyond happy for all our warriors who are doing great!

                      For your birthday I wish you to continue to do great and one big NED status in near future!

                      Be well,

                      Patrisa

                      • June 4, 2017 at 2:32 pm
                      AliCat61
                      Participant

                        Nick that is great news! Happy birthday! Don't ever feel guilty for sharing good news. It gives the rest of us hope! Thank you for sharing!

                        • June 4, 2017 at 9:42 pm
                        Bubbles
                        Participant

                          Happy Birthday, indeed!!!  Good news is always good, Nick!  Thanks for sharing.  Enjoy!  c

                          • June 5, 2017 at 4:37 am
                          RitysMom
                          Participant

                            Thank you for sharing your good news! It gives me hope!

                            • June 5, 2017 at 11:39 am
                            jbronicki
                            Participant

                              I completely understand the guilt part, but PLEASE always share great news like that!  It's wonderful to read and so happy for you.  To many more birthdays!

                              • June 6, 2017 at 11:06 pm
                              Nick C
                              Participant

                                Thank you all for the kind words. 

                                • June 7, 2017 at 4:56 am
                                betsyl
                                Participant

                                  This is good to hear. I'm very happy for you.

                                  -Betsy

                              Viewing 12 reply threads
                              • You must be logged in to reply to this topic.
                              About the MRF Patient Forum

                              The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                              The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.