It's been hard to come on here lately, my heart is still broken over the friends we have lost and those that are struggling currently.
I had a PET/CT scan this week and got some good news and some news that makes me feel a little funky.
So, the good news: the scan showed nothing new, yay!
The funky news: back in September when I had my recurrence and I had a needle biopsy on a groin lymph node and an armpit lymph node, the groin came back positive and the armpit came back negative. Initially we took that answer and started Ipi/Nivo. Since then I've had a couple of scans that showed the armpit lymph node staying enlarged and with a good amount of SUV uptake on PET.. so I had my suspicions that the armpit biopsy was a false negative and I've been stage 4 this whole time. This recent scan showed the armpit lymph node has shrunk in half and has half the amount of uptake. Groin has shrunk a ton and no uptake at all. I talked with my onc, and she confirmed that she also believes the armpit has melanoma and she has looked at me as stage 4 this whole time. I guess I never wanted to really confirm that with her, it's a hard pill to swallow knowing you've come to the end of the stages, even if it's a minimal amount.
But, I am glad things are going in the right direction. And, if this armpit lymph node stops responding, we can always surgically remove it.
Sending lots of positive vibes and love to everyone here going through their own war with this disease.
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