› Forums › General Melanoma Community › Update On My Treatment
- This topic has 10 replies, 9 voices, and was last updated 7 years, 6 months ago by
Sharon93065.
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- February 23, 2018 at 3:39 am
Hello Family, long see no time! {no im not dislexic lol} I hope everyone here is "stable" at the least, like i am, "stable" for the most part, as some of you already know me {im fairly new here & do not write much} iv been fighting Melanoma since my 1st diagnosis back in 2008 {stage 3b} with 6 surgeries so far {1 on average every 2yrs or less all inwich where in left leg {Primary} including Lympnode groin area} ya know the drill alotta of you's, , do a surgery move on, another bug pops up, dig it out, move on….Last year in June around the time of surgery #6, a CT revealed "1" tumor in each lung, surgery was offered, i didnt jump on it right away, i "slept" on it for about a month, called the surgeon back to say lets do it, he said fine, ordered "another" CT Scan huh, the tumors have doubled in size {right was like 2.4cm, left was like 1.2cm plus a few more sprouted in each lung as well, like "MM" in size {forget actual sizes} so, surgery was cancled, Did lung biopsy, confirmed Melanoma, Immunal Therapy was brought up & i jumped on the Pembrolizumab band wagon {Keytruda} on November 22nd {2017} i believe, and today i have had 5 infusions so far and just had my first CT scan to check its progress, results was bitter sweet, some tumors disapeared, some shrank, some did nothing at all, some got bigger & i "concieved "2 new" little baby ones!, so ya, bitter sweet. Plan B if my next 2 infusions do not show progress, we will start Opdivo & Yervoy as a combo. Somethings gotta work, my "Key" or "Solution" is out there & im ready for whatevers to come. My Thyroid acted up after infusion #4, T4 was low, my TSH was 45.31{way high apparently} so, Oncologist alowed a short break inbetween #4 and #5 bags of Pembro……
So, as i do for you, pray for me {the ones that do anyways}, were gunna need it cuz some Melanoma bugs are VERY strong & relentless, evasive & cunning & we have a few of those bastards in us. Warrior On, and keep yer Boots on cuz it's on like Vietnam…I love you guys, ill try and write more…yer pal, Mike..
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- February 23, 2018 at 6:00 am
Definitely thinking of you Mike!! and wondering what the heavy artillery double whammy of ipi/nivo might do to help you kick butt. Hang in there – you are still winning this one!!! Best wishes and thoughts always!
Barb
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- February 23, 2018 at 2:19 pm
Good news Mike! Keep up the positive thoughts! Whatever got bigger could very well be pseudo-progression. Especially because some have shrunk. I made it through 10 bags of Pembro (Feb. '17- Aug. '17) and then I couldn't handle the joint pain. My original 2 lung nodules (about 10 mm.) resolved. But then in Nov. '17 a scan showed a HUGE 34mm. nodule. A needle biopsy showed it was benign! A CT scan last week showed the mass is shrinking! I have read some cases of pseud-progression 6 mos. into treatment.
Hopefully you will be back to just Mike!
Prayers always! God is great!
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- February 24, 2018 at 1:14 am
Dave, great news! Glad to hear. ~ Carol
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- February 23, 2018 at 10:11 pm
Limitless prayers, thoughts, vibes, crossed-fingers/toes coming your way Mike! It truly seems to be a long term battle with treatment and the previous comments suggest it could also be "pseuo" growth. I'm hoping only good things on your next update. stay tough!
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- February 24, 2018 at 1:17 am
Mike,
Keep up your great attitude! Fingers crossed that this is pseudo-progression. Thinking of you and very glad that you posted an update so we all know what's up. ~ Carol
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- February 24, 2018 at 4:00 am
Thank you SisterOfPatient! Thank You DaveNB!!, Thank You CancerSpouse!!, and Thank You to Jbronicki!! I look in the mirror & see a living "Mike" with very little medical problems {besides the Melanoma & recent Thyroid flare up cuz of the Pembro} i can walk, talk, eat, i work {part time for now} im doing ok, i play it day by day & act as if nothing is wrong, kinda like robbing a liquor store then walking down the street, then a cop drives by as i wave to him, nothing bad is happening cuz it shines out my being, my soul, there for the cop drives on by because I "Believe" Nothing Bad Is Happening….lol {terrible termonology…love ya guys, Mike..
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- February 24, 2018 at 1:24 pm
a little slow on my response, but I echo everyone's congrats and your stength to continue on and fight the SOB. A true warrior…. Gives me continued hope for my future knowing there are so many of "us" out there and fighting the fight For me, after drain comes out (Feb 27) then onto Opdivo by it's self.
Tx
Dessie
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- February 24, 2018 at 2:52 pm
Hey Mike,
Sorry for the wishy washy results. We know that immunotherapy can be slow in its positive effects. We know that pseudoprogression is real. So! I'm hoping that the infiltration of a zillion killer t cells have gotten rid of some of your lesions and made others show up/look bigger on scans through that process!!! Back in the dark ages of melanoma, a fellow with a response like yours was kicked off our trial for "progression". Poor guy got no more meds (nivo…at a very low dose in our case). But, on rescanning him a bit later as the docs cast about for some alternative treatment…the tumors were gone. And they stayed gone!!
Fingers crossed that on your next scan your lesions will be gone! BUT, if not, there ARE other viable treatment options for you!!! Hang in there. Celeste
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- February 26, 2018 at 1:28 am
Brother Mike! Sorry, I've been off the grid for a few days preparing for my next Houston (MD Anderson) run since I'll be down there about a week this time.
I have to agree with the others here that pseudoprogression might be what is showing up on scans. Nonetheless your treatmetn sounds like they are on it with a contingency plan (like all good Warriors have). You know we are in your corner and now that you I have synced up our Pembro schedules we might even be at "the juice bar" at the same time on this next round.
You are already in my prayers brother, and that will continue!
Warrior On!
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- February 27, 2018 at 7:54 pm
Yes Mike, some of us do pray. And i just know that the Opdivo/Yervoy combo will shrink those beasts.
God Bless you in your journey, i have new posting at top. Sharon (4th petscan a nd MRI results, title)
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