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update/ see last topic for orig diagnosis
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update/ see last topic for orig diagnosis

› Forums › General Melanoma Community › update/ see last topic for orig diagnosis

  • Post
    • May 30, 2016 at 7:10 pm
    takkat
    Participant

      Well, after the met in my lung was removed in october ipi was withdrawn and I never did it.

      Two weeks ago I had a sesure and was taken the surgery to have a tumor taken out of my head.

      I have another one that will be taken with radiation.

      This time I also have a tumor on my spleen so they are going to do imunotherapy.

      Does this seem like it is moving fast? I mean the met on my lung was their for years and growing slowly.

      And now a met on my spleen and brain.

       

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        • May 31, 2016 at 1:04 pm
        ed williams
        Participant

          Hi Takkat, sorry that you didn't stay NED!!!! I read your last post and you said that you had scans and were clean then later they found the lung Met. This would have changed things to stage 4 at that time, why didn't your Oncologist put you on one of the Pd-1 drugs at that time? With the way things are progressing I would go back to the advice that Bubbles(Celeste) gave you in your last post about getting at the melanoma while things are at a low tumor burden!!!  The combination of Ipi/Nivo would be a smart move at this point. Best Wishes!!!! Ed

          • May 31, 2016 at 1:04 pm
          ed williams
          Participant

            Hi Takkat, sorry that you didn't stay NED!!!! I read your last post and you said that you had scans and were clean then later they found the lung Met. This would have changed things to stage 4 at that time, why didn't your Oncologist put you on one of the Pd-1 drugs at that time? With the way things are progressing I would go back to the advice that Bubbles(Celeste) gave you in your last post about getting at the melanoma while things are at a low tumor burden!!!  The combination of Ipi/Nivo would be a smart move at this point. Best Wishes!!!! Ed

            • May 31, 2016 at 1:04 pm
            ed williams
            Participant

              Hi Takkat, sorry that you didn't stay NED!!!! I read your last post and you said that you had scans and were clean then later they found the lung Met. This would have changed things to stage 4 at that time, why didn't your Oncologist put you on one of the Pd-1 drugs at that time? With the way things are progressing I would go back to the advice that Bubbles(Celeste) gave you in your last post about getting at the melanoma while things are at a low tumor burden!!!  The combination of Ipi/Nivo would be a smart move at this point. Best Wishes!!!! Ed

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