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Vem/cobi and dealing with the sun
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Vem/cobi and dealing with the sun

› Forums › General Melanoma Community › Vem/cobi and dealing with the sun

  • Post
    • August 15, 2017 at 5:13 am
    baesill
    Participant

      Hi everyone,

      So I'm about to start this combo and I feel really confused about the sun sensitivity thing. It sounds like I can't let sunlight hit my skin…ever….even with sunscreen. Do I just have to stay inside now? Is it possible to go swimming outside? Or can I take my kids to the park? 

      How do people adjust to this?

      thanks for the support everyone!

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    • Replies
        • August 16, 2017 at 2:57 am
        lindanat
        Participant

          I did the combo and tried to not let it disrupt normal activities.  Wear sunscreen.  I walked a lot outdoors during the treatments with no difficulty. 

          • August 16, 2017 at 3:28 am
          jennunicorn
          Participant

            Sun screen, sun protective clothing, hats, use them when outside, hang out in the shade when available, but no need to be a hermit. 

              • August 17, 2017 at 6:24 pm
              jrtufo
              Participant

                So glad to hear others NOT have problems with this combo.  I had to stop treatment after 8 days due to terrible fatigue followed by all over the body rash (not caused by the sun)  I'm on cyclosporine now with hopes that it will reverse these side effects.  I wish I had more options…

                • August 17, 2017 at 10:06 pm
                J.bun
                Participant

                  Have you tried Taf/Mek combo? I could not tolerate Zel/Cot … was only on it for about a week. If your rash does not clear and you get worse, go to the ER. 

                  Nonetheless, these combos work and have done wonders!

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