MRF-Logo2019-Horizontal-RGB
Very thankful-now hopeful.
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Very thankful-now hopeful.

› Forums › General Melanoma Community › Very thankful-now hopeful.

  • Post
    • August 25, 2011 at 12:38 am
    glewis923
    Participant

      After i completed 7 SRS (Novalis TS) and WBR  4 mths. ago, then Yervoy i finished in mid-May;  I'M ALIVE !    still no telling which brain tumors are completely dead or what, but no "meaningful" new ones.  My speech sounds like Donald Duck – Drs. don't really know why except possible brain stem pressure or something…….BUT….my lung tumors have all shrunk a tad and definately seem to be stable- as brain too.

      After i completed 7 SRS (Novalis TS) and WBR  4 mths. ago, then Yervoy i finished in mid-May;  I'M ALIVE !    still no telling which brain tumors are completely dead or what, but no "meaningful" new ones.  My speech sounds like Donald Duck – Drs. don't really know why except possible brain stem pressure or something…….BUT….my lung tumors have all shrunk a tad and definately seem to be stable- as brain too.

      Next week I start the Roche Vermufumib (now whatever it's called-raf)  still PLX 4032.  I cannot praise my local small-town oncologist enough for helping me weed through things- ie.:  the "big" know-it-all hospitals/ Drs. who know /control all but tell you very little at times, but  control your destiny!   

      Anyway, Very HOPEFUL and grateful that I've been given a 3rd or 4th chance (lost count).   Wishing ALL of you the best.

      Love from Grady Lewis Family.

    Viewing 13 reply threads
    • Replies
        • August 25, 2011 at 1:16 am
        Jamietk
        Participant

          Glad to hear the good news. Congratulations. Thanks for sharing.

          • August 25, 2011 at 1:16 am
          Jamietk
          Participant

            Glad to hear the good news. Congratulations. Thanks for sharing.

            • August 25, 2011 at 1:24 am
            MariaH
            Participant

              So very very happy for you!  Hope you continue to keep posting good news!

              Maria

              • August 25, 2011 at 1:24 am
              MariaH
              Participant

                So very very happy for you!  Hope you continue to keep posting good news!

                Maria

                • August 25, 2011 at 2:21 am
                JuleFL
                Participant
                  Best wishes on your trial, Grady. My husband and I really liked his “small town oncologist”. A good doctor is good no matter where he or she is. Glad you found one.

                  Jule

                  • August 25, 2011 at 2:21 am
                  JuleFL
                  Participant
                    Best wishes on your trial, Grady. My husband and I really liked his “small town oncologist”. A good doctor is good no matter where he or she is. Glad you found one.

                    Jule

                    • August 25, 2011 at 3:07 am
                    washoegal
                    Participant

                      IPI and BRAF is a dynamite combo!  Hope it works for you.

                       

                      Mary

                      Stage 3

                      • August 25, 2011 at 3:07 am
                      washoegal
                      Participant

                        IPI and BRAF is a dynamite combo!  Hope it works for you.

                         

                        Mary

                        Stage 3

                        • August 25, 2011 at 3:26 am
                        jag
                        Participant

                          glad to hear you are still around low swamps, I always enjoy your posts.

                          God Bless,

                          John

                          • August 25, 2011 at 3:26 am
                          jag
                          Participant

                            glad to hear you are still around low swamps, I always enjoy your posts.

                            God Bless,

                            John

                            • August 25, 2011 at 4:46 am
                            JerryfromFauq
                            Participant

                              Sounds good.  Keep it goimg.

                              • August 25, 2011 at 4:46 am
                              JerryfromFauq
                              Participant

                                Sounds good.  Keep it goimg.

                                • August 25, 2011 at 4:52 am
                                FormerCaregiver
                                Participant

                                  Thanks for telling us about your encouraging news. We all need to have hope that things will get better, so it is really great to hear when anyone has things go well for them.

                                  Best wishes

                                  Frank from Australia

                                  • August 25, 2011 at 4:52 am
                                  FormerCaregiver
                                  Participant

                                    Thanks for telling us about your encouraging news. We all need to have hope that things will get better, so it is really great to hear when anyone has things go well for them.

                                    Best wishes

                                    Frank from Australia

                                      • August 25, 2011 at 10:13 pm
                                      boot2aboot
                                      Participant

                                        It's a crap shoot isn't it? which treatment/study will help each of us the best?  i hope you win.

                                        boots

                                        • August 25, 2011 at 10:13 pm
                                        boot2aboot
                                        Participant

                                          It's a crap shoot isn't it? which treatment/study will help each of us the best?  i hope you win.

                                          boots

                                          • August 26, 2011 at 12:02 pm
                                          Lisa13
                                          Participant

                                            Stable is good news and so is shrinking – I hope this continues for you 🙂

                                            Lisa – Stage 4 (lung mets)

                                            • August 26, 2011 at 12:02 pm
                                            Lisa13
                                            Participant

                                              Stable is good news and so is shrinking – I hope this continues for you 🙂

                                              Lisa – Stage 4 (lung mets)

                                        Viewing 13 reply threads
                                        • You must be logged in to reply to this topic.
                                        About the MRF Patient Forum

                                        The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                        The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                                        Popular Topics