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What Now after Braf/MEK nowTumor on Humerus?
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What Now after Braf/MEK nowTumor on Humerus?

› Forums › General Melanoma Community › What Now after Braf/MEK nowTumor on Humerus?

  • Post
    • January 14, 2012 at 3:13 am
    mrsmarilyn
    Participant

      Hello- We have been rolling along wonderful on BRAF/MEK GSK trial since 02/2009.  HOWEVER, a rapidly growing mass has not occurred in shoulder and humerus.  So painful, we have to have surgery scheduled quickly.  Has anyone had such a mixed result – with 7 tumors that have shrank, and now all of a sudden this shoulder tumor is growing rapidly?  Has anyone had shoulder reconstructive surgery?  We will be going back to Nashville.  If we are disallowed from the currentl clinical trial of GSK/MEK – what now?

      Thanks – Love and Prayers to all.

      Hello- We have been rolling along wonderful on BRAF/MEK GSK trial since 02/2009.  HOWEVER, a rapidly growing mass has not occurred in shoulder and humerus.  So painful, we have to have surgery scheduled quickly.  Has anyone had such a mixed result – with 7 tumors that have shrank, and now all of a sudden this shoulder tumor is growing rapidly?  Has anyone had shoulder reconstructive surgery?  We will be going back to Nashville.  If we are disallowed from the currentl clinical trial of GSK/MEK – what now?

      Thanks – Love and Prayers to all.

      MrsMarilyn

    Viewing 2 reply threads
    • Replies
        • January 14, 2012 at 3:17 am
        mrsmarilyn
        Participant

          Correction to last post-growing mass has "now" occurred – typo said "not" – sorry  Mrs Marilyn

            • January 16, 2012 at 10:26 pm
            Suzan AB
            Participant
              I am so sorry hear your news, Mrs. Marilyn. This beast is such a bad actor. I am also on the gsk braf/mek trial
              Did you have bone involemrent before? The tumors in my spine have been the hardest to contain….for me it is like a rollercoster ride…
              Good luck with your surgery….healing prayers t you and yours
              Suzan AB
              • January 17, 2012 at 8:33 pm
              mrsmarilyn
              Participant

                Hi Suzan-Its my brother that I am helping out.  You are so right-it is a rollercoster ride.  Have you had surgery to remove tumor and they allowed you to stay in the trial or get back in?  Because he had 7 reductions, but his shoulder/humerous has a very large spot – if mel.  Biopsy is on Monday-but the Dr. says it looks like Mel  based on MRI.  He is so worried about losing his arm – and getting removed from the trial – which has worked like a miracle for 2 years. 

                Thanks for all the kind words.  Keep in touch!

                MrsMarilyn

                • January 17, 2012 at 8:33 pm
                mrsmarilyn
                Participant

                  Hi Suzan-Its my brother that I am helping out.  You are so right-it is a rollercoster ride.  Have you had surgery to remove tumor and they allowed you to stay in the trial or get back in?  Because he had 7 reductions, but his shoulder/humerous has a very large spot – if mel.  Biopsy is on Monday-but the Dr. says it looks like Mel  based on MRI.  He is so worried about losing his arm – and getting removed from the trial – which has worked like a miracle for 2 years. 

                  Thanks for all the kind words.  Keep in touch!

                  MrsMarilyn

                  • January 17, 2012 at 8:37 pm
                  mrsmarilyn
                  Participant

                    Well I should say worked like a miracle 7 out of 8 times.  He has had no bone involvement before.  I cant believe this, really.  maybe not mel.

                    Mrs. Marilyn

                    • January 17, 2012 at 8:37 pm
                    mrsmarilyn
                    Participant

                      Well I should say worked like a miracle 7 out of 8 times.  He has had no bone involvement before.  I cant believe this, really.  maybe not mel.

                      Mrs. Marilyn

                      • January 17, 2012 at 8:37 pm
                      mrsmarilyn
                      Participant

                        Well I should say worked like a miracle 7 out of 8 times.  He has had no bone involvement before.  I cant believe this, really.  maybe not mel.

                        Mrs. Marilyn

                        • January 17, 2012 at 8:33 pm
                        mrsmarilyn
                        Participant

                          Hi Suzan-Its my brother that I am helping out.  You are so right-it is a rollercoster ride.  Have you had surgery to remove tumor and they allowed you to stay in the trial or get back in?  Because he had 7 reductions, but his shoulder/humerous has a very large spot – if mel.  Biopsy is on Monday-but the Dr. says it looks like Mel  based on MRI.  He is so worried about losing his arm – and getting removed from the trial – which has worked like a miracle for 2 years. 

                          Thanks for all the kind words.  Keep in touch!

                          MrsMarilyn

                          • January 16, 2012 at 10:26 pm
                          Suzan AB
                          Participant
                            I am so sorry hear your news, Mrs. Marilyn. This beast is such a bad actor. I am also on the gsk braf/mek trial
                            Did you have bone involemrent before? The tumors in my spine have been the hardest to contain….for me it is like a rollercoster ride…
                            Good luck with your surgery….healing prayers t you and yours
                            Suzan AB
                            • January 16, 2012 at 10:26 pm
                            Suzan AB
                            Participant
                              I am so sorry hear your news, Mrs. Marilyn. This beast is such a bad actor. I am also on the gsk braf/mek trial
                              Did you have bone involemrent before? The tumors in my spine have been the hardest to contain….for me it is like a rollercoster ride…
                              Good luck with your surgery….healing prayers t you and yours
                              Suzan AB
                            • January 14, 2012 at 3:17 am
                            mrsmarilyn
                            Participant

                              Correction to last post-growing mass has "now" occurred – typo said "not" – sorry  Mrs Marilyn

                              • January 14, 2012 at 3:17 am
                              mrsmarilyn
                              Participant

                                Correction to last post-growing mass has "now" occurred – typo said "not" – sorry  Mrs Marilyn

                            Viewing 2 reply threads
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