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Whole Brain Radiation Assistance

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    • August 31, 2021 at 3:27 pm
    THMoore
    Participant
      <!–more–>I was just informed I will require whole Brain radiation.  Can anyone tell me their experience’s?  Or how you are doing.  I was scheduled for gamma knife but lesions grew to quickly. Please advise. Backed in a corner and scared.

      sincerely

      Trent

       

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        • August 31, 2021 at 5:40 pm
        Threefitty
        Participant
          I feel the pain of those altered expectations. I know my “melanoma lay-training” taught me to hope for gamma knife and correspondingly despair for WBR. (This a joke, BTW.)  I was “too many mets” from day one, so Gamma knife was not the primary tool. WBR was. It is still under consideration for any future round that is appropriate.

          Had it in March and still marching. “”stable”. I think it has taken several thousand off my nightly Jeopardy score. It’s noticeable to me my recall is not as it once was, but there’s also cancer, aging and the cannabis to consider….

          No pain or noticeable disorientation during treatment or afterwards. It’s scary to be on watch for anything neurological when you feel like crap, so I just didn’t do that that much. I felt I’d just wait until clear signs of problem emerged and that hasn’t happened yet. KNOCK KNOCK.

          It’s a great all purpose excuse afterwards – a little dishonest to use it too much though. Just have a spot where things like keys go, and only go, always. My hair came back an awesome silver tone. Much fuller looking. Bonus.

          Good luck.

          • September 1, 2021 at 6:08 pm
          THMoore
          Participant
            How big were your lesions and are you on any treatment.  We’re you on treatment before you were diagnosed.
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