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yervoy

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  • Post
    • May 30, 2014 at 6:11 pm
    DUSTILANE
    Participant

      my husband has finished his yervoy treatment.  he is now having lots of confusion, short term memory loss, behaviorial changes and cannot complete his sentences.

       

      has anyone else had this problem?

    Viewing 8 reply threads
    • Replies
        • May 30, 2014 at 6:17 pm
        Ginger8888
        Participant

          I don't start Yervoy for a couple more weeks but i'd call the Dr right away…Prayers everything turns out ok..

          • May 30, 2014 at 6:17 pm
          Ginger8888
          Participant

            I don't start Yervoy for a couple more weeks but i'd call the Dr right away…Prayers everything turns out ok..

            • May 30, 2014 at 6:17 pm
            Ginger8888
            Participant

              I don't start Yervoy for a couple more weeks but i'd call the Dr right away…Prayers everything turns out ok..

              • May 30, 2014 at 6:48 pm
              odonoghue80
              Participant

                Dustilane,

                I'm sorry to hear that. Have you notified your oncologist of those issues? Have you ever had a brain MRI? Or any brain mets treated before? I ended up having necrosis from radiation to the brain that affected my speech. I don't want to scare you but I'd notify your oncologist.

                Good luck,

                Shane

                • May 30, 2014 at 6:48 pm
                odonoghue80
                Participant

                  Dustilane,

                  I'm sorry to hear that. Have you notified your oncologist of those issues? Have you ever had a brain MRI? Or any brain mets treated before? I ended up having necrosis from radiation to the brain that affected my speech. I don't want to scare you but I'd notify your oncologist.

                  Good luck,

                  Shane

                  • May 30, 2014 at 6:48 pm
                  odonoghue80
                  Participant

                    Dustilane,

                    I'm sorry to hear that. Have you notified your oncologist of those issues? Have you ever had a brain MRI? Or any brain mets treated before? I ended up having necrosis from radiation to the brain that affected my speech. I don't want to scare you but I'd notify your oncologist.

                    Good luck,

                    Shane

                    • May 30, 2014 at 10:39 pm
                    POW
                    Participant

                      These are significant neurological symptoms. You should take your husband to the emergency room immediately. 

                      My brother had brain tumors. Whenever they got to a certain size or when they started to bleed he had symptoms such as you describe. His oncologist told us to always take my brother to the ER when such symptoms happened because: 1) the ER at his hospital had their own MRI machine so patients didn't have to wait, 2) such symptoms could lead to a brain seizure so it's best to be in an ER for immediate treatment, and 3) it's much easier to get a patient admitted from the ER than by the oncologist trying to get him admitted.

                      My brother had 3 or 4 episodes such as you describe. He had one a few days after his first Yervoy infusion. His oncologist wondered if the Yervoy-activated immune cells were entering the brain and causing swelling around the tumors. 

                      In any case, don't risk your husband having a brain seizure. Take him to the ER and then call your oncologist. Left untreated, brain seizures can cause death or permanent disabilty. 

                      • May 30, 2014 at 10:39 pm
                      POW
                      Participant

                        These are significant neurological symptoms. You should take your husband to the emergency room immediately. 

                        My brother had brain tumors. Whenever they got to a certain size or when they started to bleed he had symptoms such as you describe. His oncologist told us to always take my brother to the ER when such symptoms happened because: 1) the ER at his hospital had their own MRI machine so patients didn't have to wait, 2) such symptoms could lead to a brain seizure so it's best to be in an ER for immediate treatment, and 3) it's much easier to get a patient admitted from the ER than by the oncologist trying to get him admitted.

                        My brother had 3 or 4 episodes such as you describe. He had one a few days after his first Yervoy infusion. His oncologist wondered if the Yervoy-activated immune cells were entering the brain and causing swelling around the tumors. 

                        In any case, don't risk your husband having a brain seizure. Take him to the ER and then call your oncologist. Left untreated, brain seizures can cause death or permanent disabilty. 

                          • May 31, 2014 at 3:59 pm
                          DUSTILANE
                          Participant

                            He has had several brain MRI's.  They are all clear. We just got back from MDA.  The doctors seem to think it may be some of the midication  he is on.  They have made some changes to his medication but I was just wondering if it could be a side effect of the Yervoy treatment.

                             

                             

                            • May 31, 2014 at 3:59 pm
                            DUSTILANE
                            Participant

                              He has had several brain MRI's.  They are all clear. We just got back from MDA.  The doctors seem to think it may be some of the midication  he is on.  They have made some changes to his medication but I was just wondering if it could be a side effect of the Yervoy treatment.

                               

                               

                              • June 2, 2014 at 7:13 pm
                              jogo
                              Participant

                                Has your husband been taking any medications to deal with Yervoy side affects.  Large doses of prednisone can affect behavior.  He may have stopped taking any a while ago but for some the song may be gone but the melody lingers on.  Both my husband and i have been on massive doses of prednisone for different reasons,  His, asthma; mine, yervoy.  Fortunately not at the same time.  So we're still married to each other (and alive).    . 

                                • June 2, 2014 at 7:13 pm
                                jogo
                                Participant

                                  Has your husband been taking any medications to deal with Yervoy side affects.  Large doses of prednisone can affect behavior.  He may have stopped taking any a while ago but for some the song may be gone but the melody lingers on.  Both my husband and i have been on massive doses of prednisone for different reasons,  His, asthma; mine, yervoy.  Fortunately not at the same time.  So we're still married to each other (and alive).    . 

                                  • June 2, 2014 at 7:13 pm
                                  jogo
                                  Participant

                                    Has your husband been taking any medications to deal with Yervoy side affects.  Large doses of prednisone can affect behavior.  He may have stopped taking any a while ago but for some the song may be gone but the melody lingers on.  Both my husband and i have been on massive doses of prednisone for different reasons,  His, asthma; mine, yervoy.  Fortunately not at the same time.  So we're still married to each other (and alive).    . 

                                    • May 31, 2014 at 3:59 pm
                                    DUSTILANE
                                    Participant

                                      He has had several brain MRI's.  They are all clear. We just got back from MDA.  The doctors seem to think it may be some of the midication  he is on.  They have made some changes to his medication but I was just wondering if it could be a side effect of the Yervoy treatment.

                                       

                                       

                                    • May 30, 2014 at 10:39 pm
                                    POW
                                    Participant

                                      These are significant neurological symptoms. You should take your husband to the emergency room immediately. 

                                      My brother had brain tumors. Whenever they got to a certain size or when they started to bleed he had symptoms such as you describe. His oncologist told us to always take my brother to the ER when such symptoms happened because: 1) the ER at his hospital had their own MRI machine so patients didn't have to wait, 2) such symptoms could lead to a brain seizure so it's best to be in an ER for immediate treatment, and 3) it's much easier to get a patient admitted from the ER than by the oncologist trying to get him admitted.

                                      My brother had 3 or 4 episodes such as you describe. He had one a few days after his first Yervoy infusion. His oncologist wondered if the Yervoy-activated immune cells were entering the brain and causing swelling around the tumors. 

                                      In any case, don't risk your husband having a brain seizure. Take him to the ER and then call your oncologist. Left untreated, brain seizures can cause death or permanent disabilty. 

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