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yervoy and opdivo
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yervoy and opdivo

› Forums › General Melanoma Community › yervoy and opdivo

  • Post
    • November 19, 2015 at 12:17 am
    threeaces97
    Participant

      I'm stage 3c, and just recently completed a 4 month clinical trial.  PET scan show 4 new cancer filled lymph nodes.  Met with one surgeon today and another one tomorrow, along with m y oncologist.  Lymph nodes are in a tough location (upper axillary (armpit) and surgery could result in lymphedema and/or nerve damage to my right arm.  DR. is recommending a combination of Yervoy and opdivo IV TX over the next 12 weeks.  Looking for anyone that has gone through this.  Thanks    Mike

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    • Replies
        • November 29, 2015 at 12:26 am
        gregor913
        Participant
          It’s a personal choice. I’m having my surgery under my left armpit Tuesday and I’m having all 3 levels taken out. Some people say if there is micromets to keep them in and if there grossly cancer cells involved I’d take them out. I’ve also heard that doctors will follow up with radiation if there macro. Meaning the doctors can feel them. Lymphadema is a side effect that I might have. But people who have it done under armpit tend to do better. Mine were micro but I’m just going to do the standard protocol in the usa. What trial were you on?

          Greg

          • November 29, 2015 at 12:26 am
          gregor913
          Participant
            It’s a personal choice. I’m having my surgery under my left armpit Tuesday and I’m having all 3 levels taken out. Some people say if there is micromets to keep them in and if there grossly cancer cells involved I’d take them out. I’ve also heard that doctors will follow up with radiation if there macro. Meaning the doctors can feel them. Lymphadema is a side effect that I might have. But people who have it done under armpit tend to do better. Mine were micro but I’m just going to do the standard protocol in the usa. What trial were you on?

            Greg

              • December 1, 2015 at 3:44 pm
              threeaces97
              Participant

                Greg,  I just finished the CDX1401-301 and Poly/ICNC trial that lasted 4 months.  At the end, I got my CT scan and then the PET scan.  4 lymph nodes are macro and the Oncology team agrees to leave them in for now, as I start on the yervoy/opdivo on December 3rd.   3 hours of IV every 3 weeks for 12 weeks.  Best case scenario would be for the lymph nodes that are macro to reduce in size and/or dissappear (cancer cells gone from nodes) and I wouldn't require surgery.  I won't contemplate the next step until this one is complete and have a Feb/Mar PET scan.   All of my treatment is being done at main campus of the Cleveland Clinic.   I feel I have the Best of the best treating me.   Dr Ernstoff and Surgical Oncologist, Dr. Gastman (and the rest of the team).  Thanks

                • December 1, 2015 at 3:44 pm
                threeaces97
                Participant

                  Greg,  I just finished the CDX1401-301 and Poly/ICNC trial that lasted 4 months.  At the end, I got my CT scan and then the PET scan.  4 lymph nodes are macro and the Oncology team agrees to leave them in for now, as I start on the yervoy/opdivo on December 3rd.   3 hours of IV every 3 weeks for 12 weeks.  Best case scenario would be for the lymph nodes that are macro to reduce in size and/or dissappear (cancer cells gone from nodes) and I wouldn't require surgery.  I won't contemplate the next step until this one is complete and have a Feb/Mar PET scan.   All of my treatment is being done at main campus of the Cleveland Clinic.   I feel I have the Best of the best treating me.   Dr Ernstoff and Surgical Oncologist, Dr. Gastman (and the rest of the team).  Thanks

                  • December 1, 2015 at 3:44 pm
                  threeaces97
                  Participant

                    Greg,  I just finished the CDX1401-301 and Poly/ICNC trial that lasted 4 months.  At the end, I got my CT scan and then the PET scan.  4 lymph nodes are macro and the Oncology team agrees to leave them in for now, as I start on the yervoy/opdivo on December 3rd.   3 hours of IV every 3 weeks for 12 weeks.  Best case scenario would be for the lymph nodes that are macro to reduce in size and/or dissappear (cancer cells gone from nodes) and I wouldn't require surgery.  I won't contemplate the next step until this one is complete and have a Feb/Mar PET scan.   All of my treatment is being done at main campus of the Cleveland Clinic.   I feel I have the Best of the best treating me.   Dr Ernstoff and Surgical Oncologist, Dr. Gastman (and the rest of the team).  Thanks

                  • November 29, 2015 at 12:26 am
                  gregor913
                  Participant
                    It’s a personal choice. I’m having my surgery under my left armpit Tuesday and I’m having all 3 levels taken out. Some people say if there is micromets to keep them in and if there grossly cancer cells involved I’d take them out. I’ve also heard that doctors will follow up with radiation if there macro. Meaning the doctors can feel them. Lymphadema is a side effect that I might have. But people who have it done under armpit tend to do better. Mine were micro but I’m just going to do the standard protocol in the usa. What trial were you on?

                    Greg

                Viewing 2 reply threads
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