Yervoy (ipi) 10mg/kg Update After 3rd Infusion
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Yervoy (ipi) 10mg/kg Update After 3rd Infusion

› Forums › General Melanoma Community › Yervoy (ipi) 10mg/kg Update After 3rd Infusion

  • Post
    • February 10, 2016 at 6:30 pm
    jennunicorn
    Participant

      Had my 3rd infusion on January 25th. I continue to have very little side effects, yay! I know I am not out of the woods yet, but I am so glad that this is going a lot smoother than it could go. I continue to have fatigue, very manageable. I got a cold last week, so I am dealing with this annoying cough that is getting a little better every day, but still very annoying. The eczema flare ups on my hands has even gotten better. After the first infusion almost every morning I had to use my steroid cream to calm my hands down. Now, it is barely there. There was one morning last week that I had some diarrhea and worried that I was going to have to deal with that side effect. But, it only happened twice that morning and went back to normal, so must have been something I ate. I do hate that if something like that happens, I instantly worry that it's a side effect. 

      I hope everyone else on ipi is doing well too and have manageable side effects.

      Infusion 4 is next week, the 18th. Thankfully these weeks have been going by very quickly and I am looking forward to getting back to work full time and going on with my life, not worrying about my next infusion or whether what I am experiencing is a side effect that needs medical attention. 

      Wishing everyone out there the best in their journey. 

      -Jenn

    Viewing 8 reply threads
    • Replies
        • February 10, 2016 at 6:36 pm
        kjt
        Participant

          Thanksk for the update, Jenn!  I've enjoyed hearing your posts.  My mom recently just had her second infusion – she is doing the 3 mg – and like you, hasn't had a lot of side effects.  She does complaint of a rash from time to time, but i tell her that that is something that we can deal with! 🙂 

          Good luck with the last infusion and with the rest of your journey.

          • February 10, 2016 at 6:36 pm
          kjt
          Participant

            Thanksk for the update, Jenn!  I've enjoyed hearing your posts.  My mom recently just had her second infusion – she is doing the 3 mg – and like you, hasn't had a lot of side effects.  She does complaint of a rash from time to time, but i tell her that that is something that we can deal with! 🙂 

            Good luck with the last infusion and with the rest of your journey.

              • February 10, 2016 at 6:38 pm
              jennunicorn
              Participant

                Thank you! I hope it continues to be easy and manageable for your mom! 🙂

                • February 10, 2016 at 6:38 pm
                jennunicorn
                Participant

                  Thank you! I hope it continues to be easy and manageable for your mom! 🙂

                  • February 10, 2016 at 6:38 pm
                  jennunicorn
                  Participant

                    Thank you! I hope it continues to be easy and manageable for your mom! 🙂

                  • February 10, 2016 at 6:36 pm
                  kjt
                  Participant

                    Thanksk for the update, Jenn!  I've enjoyed hearing your posts.  My mom recently just had her second infusion – she is doing the 3 mg – and like you, hasn't had a lot of side effects.  She does complaint of a rash from time to time, but i tell her that that is something that we can deal with! 🙂 

                    Good luck with the last infusion and with the rest of your journey.

                    • February 10, 2016 at 9:43 pm
                    keepthefaith11
                    Participant
                      Jenn, I have been thinking about you wondering how things are going. So glad to hear you are still feeling well. My dad is starting teatment in a couple of days and it seems they are doing radiation in the armpit along with Yervoy. Found an amazing article of the power of probiotics while on Yervoy. Will find it and post. I know you are supplementing.
                      • February 10, 2016 at 9:43 pm
                      keepthefaith11
                      Participant
                        Jenn, I have been thinking about you wondering how things are going. So glad to hear you are still feeling well. My dad is starting teatment in a couple of days and it seems they are doing radiation in the armpit along with Yervoy. Found an amazing article of the power of probiotics while on Yervoy. Will find it and post. I know you are supplementing.
                          • February 10, 2016 at 10:56 pm
                          jennunicorn
                          Participant

                            Thank you! Yes, I have been taking a daily probiotic along with drinking Kevita probiotic drinks once in a while. Starting to make more smoothies and juices with immune boosting veggies and fruits too. Anything I can do to help my body fight!

                            Good luck to your dad, I hope it all goes smoothly for him as well!

                            • February 10, 2016 at 10:56 pm
                            jennunicorn
                            Participant

                              Thank you! Yes, I have been taking a daily probiotic along with drinking Kevita probiotic drinks once in a while. Starting to make more smoothies and juices with immune boosting veggies and fruits too. Anything I can do to help my body fight!

                              Good luck to your dad, I hope it all goes smoothly for him as well!

                              • February 12, 2016 at 12:54 am
                              keepthefaith11
                              Participant
                                Good for you! I make smoothies every morning with greens ,blueberries, seeds and nuts etc. Also a lunch smoothie with 8 raw veggies along with ginger, turmeric, reishi and whatever leftovers I have around. Raw garlic, mixing either olive oil, coconut oil and grapeseed oil. Diet is KEY! My dad is starting Yervoy tomorrow. Nice to get the ball rolling.
                                • February 12, 2016 at 12:54 am
                                keepthefaith11
                                Participant
                                  Good for you! I make smoothies every morning with greens ,blueberries, seeds and nuts etc. Also a lunch smoothie with 8 raw veggies along with ginger, turmeric, reishi and whatever leftovers I have around. Raw garlic, mixing either olive oil, coconut oil and grapeseed oil. Diet is KEY! My dad is starting Yervoy tomorrow. Nice to get the ball rolling.
                                  • February 12, 2016 at 12:54 am
                                  keepthefaith11
                                  Participant
                                    Good for you! I make smoothies every morning with greens ,blueberries, seeds and nuts etc. Also a lunch smoothie with 8 raw veggies along with ginger, turmeric, reishi and whatever leftovers I have around. Raw garlic, mixing either olive oil, coconut oil and grapeseed oil. Diet is KEY! My dad is starting Yervoy tomorrow. Nice to get the ball rolling.
                                    • February 10, 2016 at 10:56 pm
                                    jennunicorn
                                    Participant

                                      Thank you! Yes, I have been taking a daily probiotic along with drinking Kevita probiotic drinks once in a while. Starting to make more smoothies and juices with immune boosting veggies and fruits too. Anything I can do to help my body fight!

                                      Good luck to your dad, I hope it all goes smoothly for him as well!

                                    • February 10, 2016 at 9:43 pm
                                    keepthefaith11
                                    Participant
                                      Jenn, I have been thinking about you wondering how things are going. So glad to hear you are still feeling well. My dad is starting teatment in a couple of days and it seems they are doing radiation in the armpit along with Yervoy. Found an amazing article of the power of probiotics while on Yervoy. Will find it and post. I know you are supplementing.
                                      • February 10, 2016 at 9:45 pm
                                      keepthefaith11
                                      Participant
                                        • February 10, 2016 at 9:45 pm
                                        keepthefaith11
                                        Participant
                                            • February 11, 2016 at 6:54 pm
                                            DZnDef
                                            Participant

                                              Thanks for the article link.  I read a similar one in the Atlantic.   Quite a while back I wrote on here about how my moles "acted up" while I was on CIPRO for an extended period 10 years ago.  The connection was so obvious to me at the time that I did an Internet search on "antibiotics and moles".  Nothing turned up.   Now, reading articles like this one I have to wonder if wide-spread antibiotic use isn't somehow contributing to the development of some cancers by destroying gut bacteria that we need.  It's a puzzle.

                                              • February 11, 2016 at 6:54 pm
                                              DZnDef
                                              Participant

                                                Thanks for the article link.  I read a similar one in the Atlantic.   Quite a while back I wrote on here about how my moles "acted up" while I was on CIPRO for an extended period 10 years ago.  The connection was so obvious to me at the time that I did an Internet search on "antibiotics and moles".  Nothing turned up.   Now, reading articles like this one I have to wonder if wide-spread antibiotic use isn't somehow contributing to the development of some cancers by destroying gut bacteria that we need.  It's a puzzle.

                                                • February 12, 2016 at 12:48 am
                                                keepthefaith11
                                                Participant
                                                  Maggie, I think you are on to something. Not just overuse of antibiotics but crappy food in general. People’s gut bacteria is completely off balance as are all other nutrients. My father has been somewhat on a healthy diet since my mother’s Stage 3 breast cancer 14 years ago, but no where NEAR what I would have prefered. I am a firm believer one of the reasons my mom has done so well is her diet and supplementation. My dad is now listening and making major changes as well.
                                                  • February 12, 2016 at 12:48 am
                                                  keepthefaith11
                                                  Participant
                                                    Maggie, I think you are on to something. Not just overuse of antibiotics but crappy food in general. People’s gut bacteria is completely off balance as are all other nutrients. My father has been somewhat on a healthy diet since my mother’s Stage 3 breast cancer 14 years ago, but no where NEAR what I would have prefered. I am a firm believer one of the reasons my mom has done so well is her diet and supplementation. My dad is now listening and making major changes as well.
                                                    • February 12, 2016 at 12:48 am
                                                    keepthefaith11
                                                    Participant
                                                      Maggie, I think you are on to something. Not just overuse of antibiotics but crappy food in general. People’s gut bacteria is completely off balance as are all other nutrients. My father has been somewhat on a healthy diet since my mother’s Stage 3 breast cancer 14 years ago, but no where NEAR what I would have prefered. I am a firm believer one of the reasons my mom has done so well is her diet and supplementation. My dad is now listening and making major changes as well.
                                                      • February 11, 2016 at 6:54 pm
                                                      DZnDef
                                                      Participant

                                                        Thanks for the article link.  I read a similar one in the Atlantic.   Quite a while back I wrote on here about how my moles "acted up" while I was on CIPRO for an extended period 10 years ago.  The connection was so obvious to me at the time that I did an Internet search on "antibiotics and moles".  Nothing turned up.   Now, reading articles like this one I have to wonder if wide-spread antibiotic use isn't somehow contributing to the development of some cancers by destroying gut bacteria that we need.  It's a puzzle.

                                                      • February 10, 2016 at 9:45 pm
                                                      keepthefaith11
                                                      Participant
                                                    Viewing 8 reply threads
                                                    • You must be logged in to reply to this topic.
                                                    About the MRF Patient Forum

                                                    The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                                    The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.