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Yervoy side effects
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Yervoy side effects

› Forums › General Melanoma Community › Yervoy side effects

  • Post
    • March 9, 2015 at 3:49 pm
    Mom2Addy
    Participant

      My husband is due to get his second infusion tomorrow. Did others find that the side effects worsened or change as you progress through the regimen? We're you able to keep working? Thank you!

    Viewing 11 reply threads
    • Replies
        • March 9, 2015 at 4:05 pm
        arthurjedi007
        Participant

          I didn't have any side affects until after the third infusion and they were minor. I had already quit working long before that due to the zommeta then zelboraf then the disease. I've heard if a person can continue working it is better.

          Artie

          • March 9, 2015 at 4:05 pm
          arthurjedi007
          Participant

            I didn't have any side affects until after the third infusion and they were minor. I had already quit working long before that due to the zommeta then zelboraf then the disease. I've heard if a person can continue working it is better.

            Artie

            • March 9, 2015 at 4:05 pm
            arthurjedi007
            Participant

              I didn't have any side affects until after the third infusion and they were minor. I had already quit working long before that due to the zommeta then zelboraf then the disease. I've heard if a person can continue working it is better.

              Artie

              • March 9, 2015 at 4:28 pm
              Julie in SoCal
              Participant

                Hi Addy's Mom,

                Yes, the side effects do get worse after each infusion.  Mine didn't really start until after my third.  I was mostly able to work, but I have a sit down job where I can control (mostly) my own schedule (I have a great boss!).  

                Julie

                • March 9, 2015 at 4:28 pm
                Julie in SoCal
                Participant

                  Hi Addy's Mom,

                  Yes, the side effects do get worse after each infusion.  Mine didn't really start until after my third.  I was mostly able to work, but I have a sit down job where I can control (mostly) my own schedule (I have a great boss!).  

                  Julie

                  • March 9, 2015 at 4:28 pm
                  Julie in SoCal
                  Participant

                    Hi Addy's Mom,

                    Yes, the side effects do get worse after each infusion.  Mine didn't really start until after my third.  I was mostly able to work, but I have a sit down job where I can control (mostly) my own schedule (I have a great boss!).  

                    Julie

                    • March 9, 2015 at 9:58 pm
                    Mat
                    Participant

                      Yes, side effects can be cumulative (i.e., worse and/or changing) and, yes, you can keep working.  The key is to stay in touch with your onc (hopefully a melanoma specialist), particularly for GI issues and headaches.  You can search prior posts for losts of info on ipi side effects.

                      • March 9, 2015 at 9:58 pm
                      Mat
                      Participant

                        Yes, side effects can be cumulative (i.e., worse and/or changing) and, yes, you can keep working.  The key is to stay in touch with your onc (hopefully a melanoma specialist), particularly for GI issues and headaches.  You can search prior posts for losts of info on ipi side effects.

                        • March 9, 2015 at 9:58 pm
                        Mat
                        Participant

                          Yes, side effects can be cumulative (i.e., worse and/or changing) and, yes, you can keep working.  The key is to stay in touch with your onc (hopefully a melanoma specialist), particularly for GI issues and headaches.  You can search prior posts for losts of info on ipi side effects.

                          • March 19, 2015 at 1:22 am
                          mrsaxde
                          Participant

                            I made it through the four infusions with the only side effect being the itchy rash, for which I was given prednisone.

                            About a week after my last infusion, I became quite ill, with GI issues. Gas, diarrhea, abdominal cramping. I was up out of bed, in pain, literally every night for about 3 weeks, before it started to subside. I couldn't eat much of anything. I was hungry, but everything I ate gave me abdominal pain and gas.

                            Eventually it started to subside, and after about 5 weeks I began to return to normal. I lost about 15 pounds. In my case, not a bad thing, it put me within about 5-10 pounds of my optimum weight. But it was not a good way to get there.

                            Things are back to normal with me now. Good luck to your husband.

                            • March 19, 2015 at 1:22 am
                            mrsaxde
                            Participant

                              I made it through the four infusions with the only side effect being the itchy rash, for which I was given prednisone.

                              About a week after my last infusion, I became quite ill, with GI issues. Gas, diarrhea, abdominal cramping. I was up out of bed, in pain, literally every night for about 3 weeks, before it started to subside. I couldn't eat much of anything. I was hungry, but everything I ate gave me abdominal pain and gas.

                              Eventually it started to subside, and after about 5 weeks I began to return to normal. I lost about 15 pounds. In my case, not a bad thing, it put me within about 5-10 pounds of my optimum weight. But it was not a good way to get there.

                              Things are back to normal with me now. Good luck to your husband.

                                • March 21, 2015 at 4:48 pm
                                Saturn
                                Participant

                                  AFter reading your notes I wll have to question my oncologist if this drug is something I should

                                  take now.  I am stage 3 currently receiving radiation on neck area under ear.  What stage are you.

                                  The Yervoy web sight states  'cancer that is metastatic or unrsectable).  She said I will have a scan

                                  after my radiation completes. Previous one have been negative.  I will ask her if we should wait until it.

                                     But if my doctor says I should have the drug and I declined I would lose that doctor.

                                  Sam

                                  • March 22, 2015 at 8:25 pm
                                  _Paul_
                                  Participant

                                    Sam, is your doctor a melanoma specialist? If at all possible you should have one. 

                                    • March 22, 2015 at 8:25 pm
                                    _Paul_
                                    Participant

                                      Sam, is your doctor a melanoma specialist? If at all possible you should have one. 

                                      • March 22, 2015 at 8:25 pm
                                      _Paul_
                                      Participant

                                        Sam, is your doctor a melanoma specialist? If at all possible you should have one. 

                                        • March 21, 2015 at 4:48 pm
                                        Saturn
                                        Participant

                                          AFter reading your notes I wll have to question my oncologist if this drug is something I should

                                          take now.  I am stage 3 currently receiving radiation on neck area under ear.  What stage are you.

                                          The Yervoy web sight states  'cancer that is metastatic or unrsectable).  She said I will have a scan

                                          after my radiation completes. Previous one have been negative.  I will ask her if we should wait until it.

                                             But if my doctor says I should have the drug and I declined I would lose that doctor.

                                          Sam

                                          • March 21, 2015 at 4:48 pm
                                          Saturn
                                          Participant

                                            AFter reading your notes I wll have to question my oncologist if this drug is something I should

                                            take now.  I am stage 3 currently receiving radiation on neck area under ear.  What stage are you.

                                            The Yervoy web sight states  'cancer that is metastatic or unrsectable).  She said I will have a scan

                                            after my radiation completes. Previous one have been negative.  I will ask her if we should wait until it.

                                               But if my doctor says I should have the drug and I declined I would lose that doctor.

                                            Sam

                                          • March 19, 2015 at 1:22 am
                                          mrsaxde
                                          Participant

                                            I made it through the four infusions with the only side effect being the itchy rash, for which I was given prednisone.

                                            About a week after my last infusion, I became quite ill, with GI issues. Gas, diarrhea, abdominal cramping. I was up out of bed, in pain, literally every night for about 3 weeks, before it started to subside. I couldn't eat much of anything. I was hungry, but everything I ate gave me abdominal pain and gas.

                                            Eventually it started to subside, and after about 5 weeks I began to return to normal. I lost about 15 pounds. In my case, not a bad thing, it put me within about 5-10 pounds of my optimum weight. But it was not a good way to get there.

                                            Things are back to normal with me now. Good luck to your husband.

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