Forum Replies Created
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- May 23, 2014 at 6:48 pm
Thanks CarolA – Good to hear that you are NED!!! Thanks so much for sharing your story. This helps and I am glad to finally connect with some of the MSLT-II participants.
If you don't mind me asking, were your recurrences in other lymph nodes or other moles (spots) that showed up?
Based on your story would you reccommend the CLND to begin with?
Thanks so much!!!
1friend…
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- May 23, 2014 at 6:48 pm
Thanks CarolA – Good to hear that you are NED!!! Thanks so much for sharing your story. This helps and I am glad to finally connect with some of the MSLT-II participants.
If you don't mind me asking, were your recurrences in other lymph nodes or other moles (spots) that showed up?
Based on your story would you reccommend the CLND to begin with?
Thanks so much!!!
1friend…
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- May 23, 2014 at 6:48 pm
Thanks CarolA – Good to hear that you are NED!!! Thanks so much for sharing your story. This helps and I am glad to finally connect with some of the MSLT-II participants.
If you don't mind me asking, were your recurrences in other lymph nodes or other moles (spots) that showed up?
Based on your story would you reccommend the CLND to begin with?
Thanks so much!!!
1friend…
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- May 22, 2014 at 7:31 pm
Prd10 – I am so glad you responded. Finally, someone who is actually enrolled in the trial. Thank you so much for sharing your story. This definitely helps us. As you said, I too believe you are still a head of the game and beating this.
Did you ever have to or are you currently taking Interferon? I was just wondering what treatment if any (besides the CLND) is standard if it does come back in the nodes.
Thank you so much!!!
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- May 22, 2014 at 7:31 pm
Prd10 – I am so glad you responded. Finally, someone who is actually enrolled in the trial. Thank you so much for sharing your story. This definitely helps us. As you said, I too believe you are still a head of the game and beating this.
Did you ever have to or are you currently taking Interferon? I was just wondering what treatment if any (besides the CLND) is standard if it does come back in the nodes.
Thank you so much!!!
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- May 22, 2014 at 7:31 pm
Prd10 – I am so glad you responded. Finally, someone who is actually enrolled in the trial. Thank you so much for sharing your story. This definitely helps us. As you said, I too believe you are still a head of the game and beating this.
Did you ever have to or are you currently taking Interferon? I was just wondering what treatment if any (besides the CLND) is standard if it does come back in the nodes.
Thank you so much!!!
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- May 22, 2014 at 4:48 pm
We are seeing Dr. Janice Cormier. She is a surgical oncologist. We never saw a medical oncologist. We went straight to the surgeon and she recommends (even with just one cell) that we have the dissectioon.
She is willing to monitor with Ultra-sound if we opt out of surgery, but recommends the dissection. She says this gives her the best chance of no reocurrence. Tough decision for sure.
I know the MSLT-II clinical trial is not complete, but you would think that those enrolled would be talking by now. It opened in 2004 0r 2005, so somebody is almost 10 years out by now.
Best of luck to you.
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- May 22, 2014 at 4:48 pm
We are seeing Dr. Janice Cormier. She is a surgical oncologist. We never saw a medical oncologist. We went straight to the surgeon and she recommends (even with just one cell) that we have the dissectioon.
She is willing to monitor with Ultra-sound if we opt out of surgery, but recommends the dissection. She says this gives her the best chance of no reocurrence. Tough decision for sure.
I know the MSLT-II clinical trial is not complete, but you would think that those enrolled would be talking by now. It opened in 2004 0r 2005, so somebody is almost 10 years out by now.
Best of luck to you.
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- May 22, 2014 at 4:48 pm
We are seeing Dr. Janice Cormier. She is a surgical oncologist. We never saw a medical oncologist. We went straight to the surgeon and she recommends (even with just one cell) that we have the dissectioon.
She is willing to monitor with Ultra-sound if we opt out of surgery, but recommends the dissection. She says this gives her the best chance of no reocurrence. Tough decision for sure.
I know the MSLT-II clinical trial is not complete, but you would think that those enrolled would be talking by now. It opened in 2004 0r 2005, so somebody is almost 10 years out by now.
Best of luck to you.
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