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201Don
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201Don

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      • August 12, 2019 at 1:12 am
      201Don
      Participant
        Thanks for the info and the links! I can say that this past week was the worst week
        I have had since I started the infusions. I hope to get back in the saddle this week!
        Don
        • August 12, 2019 at 1:05 am
        201Don
        Participant
          Hi Tricia, I am used to feeling bad all the time so the fatigue and nausea are normal now. This past week this
          Pneumonitis really took me down. I was completely worthless all week. I can say that I am getting some improvement
          now. The chest pain has gone down and the hair trigger to cough has come in some. Still having the sweats and
          chills when I try to sleep, but any improvement is good.
          Don
          • August 11, 2019 at 12:06 am
          201Don
          Participant
            Hi Tricia, thanks for the reply. When you had it did it make you feel really sick? Did you begin to get
            some improvement quickly? I hope you get great news next week!
            Don
            • July 10, 2019 at 11:54 pm
            201Don
            Participant
              He removed about one fifth of the lung when he removed the “pea”. I didn’t experience the breathing issue at all until after the 3rd infusion. So the breathing was at a “0” until the 3rd infusion. It definitely seems to be related to the the infusions.
              Don
              • July 10, 2019 at 12:35 am
              201Don
              Participant
                Yeah…. he had a time but he kept trying. He could not hit “the pea” so he moved from middle of back to my side to try and hit
                it from there. It only took a few attempts from the side before the lung decided it had had enough and went down. They spent the next seven days
                trying to get the lung to stop leaking and stay up. They finally gave up and brought in the surgeon.
                • July 10, 2019 at 12:30 am
                201Don
                Participant
                  I haven’t had the coughing or wheezing just the feeling that my breathing is not up to snuff. It is a weird situation.
                  I am hoping it will fade some.
                  Don
                  • June 1, 2019 at 4:18 am
                  201Don
                  Participant
                    My numbness has been sporadic, sometimes in fingers sometimes in feet. They ran labs to check for B12 and I was on lower end of normal range.
                    So now I am taking 1000mcg of B12 per day. Maybe it will help with numbness and fatigue we will see.
                    • May 10, 2019 at 11:02 pm
                    201Don
                    Participant
                      Hi Jenn, did you notice it as being worse certain times of day? Mine seems to be
                      worse in the first half if the day. Also if I push through it and sustain work or
                      other activity for 8 or 9 hours, it completely wipes me out the next day.
                      • May 7, 2019 at 11:56 pm
                      201Don
                      Participant
                        Yes it is weird. Sleep does not seem to help and it does not go away.
                        • May 7, 2019 at 11:50 pm
                        201Don
                        Participant
                          Thanks for the reply. Mine seems to be at its worst early in the day. I usually feel the best early to late evening.
                          I am trying to learn to just push through and go,but it is tough when you feel exhausted. When the nausea kicks
                          in along with the fatigue it makes it tough.
                          Don
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