The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

410451

Forum Replies Created

Viewing 1 reply thread
  • Replies
      410451
      Participant

        Thank you Celeste.  I've spent many hours over the last couple of weeks reading the history of your journey with melanoma.   You have such a great amount of courage and your story is so inspirational.  Congrats on remaining NED for so many years!   I've never enjoyed working out or excercising but after reading your story, you've even motivitated me to get moving a bit more:)

         

         

        410451
        Participant

          Thank you Celeste.  I've spent many hours over the last couple of weeks reading the history of your journey with melanoma.   You have such a great amount of courage and your story is so inspirational.  Congrats on remaining NED for so many years!   I've never enjoyed working out or excercising but after reading your story, you've even motivitated me to get moving a bit more:)

           

           

          410451
          Participant

            Thank you Celeste.  I've spent many hours over the last couple of weeks reading the history of your journey with melanoma.   You have such a great amount of courage and your story is so inspirational.  Congrats on remaining NED for so many years!   I've never enjoyed working out or excercising but after reading your story, you've even motivitated me to get moving a bit more:)

             

             

            410451
            Participant

              Artie – thanks for the reply.  You are correct and it wasn't stage iv until the lung diagnosis.  He does not see a melanoma specialist.  I suggested this several months ago but he wasn't interested.  He lives in a small town in a rural area and has an hour drive to the closest cancer center.  He doesn't want to travel any further than the hour (frustrating for a daughter:().  We lost my mother to colon cancer 6 years ago at the age of 62.  LIving through that and seeing that living longer isn't always the right choice (quality vs quantity).  My dad was also diagnosed with aggressive prostrate cancer the year my mother passed away.  He did radiation for that and has remained clear.

              His cancer did test positive for the BRAF gene.  The doctor discussed the tafinlar mekenist combo pills as an option.  But, she told him they would change his quality of life.  And, that a lot of people can't even continue on them due to the side effects.  And, then once you fail on those pills, you move to the next option.  The doctor was honest with Dad about the side effects which are good but it also has him scared of treatments..especially when he's feeling good.

              Thank you for sharing your success story and I'm so glad the treatments are working for you.  It seems like the real advances to melanoma over the last few years are so promising. Maybe Dad will decide he wants to fight it but I think he's scared and doesn't want the cancer drugs do to him what happened to my mom. 

              Thank you,

              Melissa

               

               

              410451
              Participant

                Artie – thanks for the reply.  You are correct and it wasn't stage iv until the lung diagnosis.  He does not see a melanoma specialist.  I suggested this several months ago but he wasn't interested.  He lives in a small town in a rural area and has an hour drive to the closest cancer center.  He doesn't want to travel any further than the hour (frustrating for a daughter:().  We lost my mother to colon cancer 6 years ago at the age of 62.  LIving through that and seeing that living longer isn't always the right choice (quality vs quantity).  My dad was also diagnosed with aggressive prostrate cancer the year my mother passed away.  He did radiation for that and has remained clear.

                His cancer did test positive for the BRAF gene.  The doctor discussed the tafinlar mekenist combo pills as an option.  But, she told him they would change his quality of life.  And, that a lot of people can't even continue on them due to the side effects.  And, then once you fail on those pills, you move to the next option.  The doctor was honest with Dad about the side effects which are good but it also has him scared of treatments..especially when he's feeling good.

                Thank you for sharing your success story and I'm so glad the treatments are working for you.  It seems like the real advances to melanoma over the last few years are so promising. Maybe Dad will decide he wants to fight it but I think he's scared and doesn't want the cancer drugs do to him what happened to my mom. 

                Thank you,

                Melissa

                 

                 

                410451
                Participant

                  Artie – thanks for the reply.  You are correct and it wasn't stage iv until the lung diagnosis.  He does not see a melanoma specialist.  I suggested this several months ago but he wasn't interested.  He lives in a small town in a rural area and has an hour drive to the closest cancer center.  He doesn't want to travel any further than the hour (frustrating for a daughter:().  We lost my mother to colon cancer 6 years ago at the age of 62.  LIving through that and seeing that living longer isn't always the right choice (quality vs quantity).  My dad was also diagnosed with aggressive prostrate cancer the year my mother passed away.  He did radiation for that and has remained clear.

                  His cancer did test positive for the BRAF gene.  The doctor discussed the tafinlar mekenist combo pills as an option.  But, she told him they would change his quality of life.  And, that a lot of people can't even continue on them due to the side effects.  And, then once you fail on those pills, you move to the next option.  The doctor was honest with Dad about the side effects which are good but it also has him scared of treatments..especially when he's feeling good.

                  Thank you for sharing your success story and I'm so glad the treatments are working for you.  It seems like the real advances to melanoma over the last few years are so promising. Maybe Dad will decide he wants to fight it but I think he's scared and doesn't want the cancer drugs do to him what happened to my mom. 

                  Thank you,

                  Melissa

                   

                   

                  410451
                  Participant

                    Thank you for taking the time to respond.  I totally agree…cancer sucks and it's so hard now to see both my parents faced with it.  It's reassuring for me to read that if he chooses to not have any treatment now there are success stories for people once it has progressed to Stage IV.  Best of luck to your father and I hope Yervoy and Keytruda provides fantastic results!

                    410451
                    Participant

                      Thank you for taking the time to respond.  I totally agree…cancer sucks and it's so hard now to see both my parents faced with it.  It's reassuring for me to read that if he chooses to not have any treatment now there are success stories for people once it has progressed to Stage IV.  Best of luck to your father and I hope Yervoy and Keytruda provides fantastic results!

                      410451
                      Participant

                        Thank you for taking the time to respond.  I totally agree…cancer sucks and it's so hard now to see both my parents faced with it.  It's reassuring for me to read that if he chooses to not have any treatment now there are success stories for people once it has progressed to Stage IV.  Best of luck to your father and I hope Yervoy and Keytruda provides fantastic results!

                        410451
                        Participant

                          Ginger – I'm sorry for all you've been through this year but it's reassuring to hear that Yervoy seems to be working so well for you!  I appreciate you sharing your story and providing some hope on new treatments.  Best of luck!

                          Thank you!

                          410451
                          Participant

                            Ginger – I'm sorry for all you've been through this year but it's reassuring to hear that Yervoy seems to be working so well for you!  I appreciate you sharing your story and providing some hope on new treatments.  Best of luck!

                            Thank you!

                            410451
                            Participant

                              Ginger – I'm sorry for all you've been through this year but it's reassuring to hear that Yervoy seems to be working so well for you!  I appreciate you sharing your story and providing some hope on new treatments.  Best of luck!

                              Thank you!

                              410451
                              Participant

                                Janner – thank you so much for your very thorough response.  I'm sorry you also had to go through this with your dad.  However, it's nice to hear his story that he fought it for 8 years while focusing on quality of life. Most of your comments help validate my thoughts on treatment options.

                                Thanks again!

                                410451
                                Participant

                                  Janner – thank you so much for your very thorough response.  I'm sorry you also had to go through this with your dad.  However, it's nice to hear his story that he fought it for 8 years while focusing on quality of life. Most of your comments help validate my thoughts on treatment options.

                                  Thanks again!

                                  410451
                                  Participant

                                    Janner – thank you so much for your very thorough response.  I'm sorry you also had to go through this with your dad.  However, it's nice to hear his story that he fought it for 8 years while focusing on quality of life. Most of your comments help validate my thoughts on treatment options.

                                    Thanks again!

                                Viewing 1 reply thread
                                About the MRF Patient Forum

                                The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                                Popular Topics