MRF-Logo2019-Horizontal-RGB
Abbygx2589
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Abbygx2589

Forum Replies Created

Viewing 8 reply threads
1 2
  • Replies
      • September 16, 2019 at 1:31 pm
      Abbygx2589
      Participant
        Thank you Mike and your wife for helping stray kitties. Even if it is tough, it is a good deed!
        • September 30, 2018 at 8:26 pm
        Abbygx2589
        Participant

          Hi Mike! 

          Sorry about your sinus pain, but on the bright side better from a sinus infection than a brain tumor!! I looked at your post regarding your scan results- all stable except for the lung! And no new spots! I am glad you are getting a second opinion for your plan on treatment and that nothing new showed up!

          • September 25, 2018 at 2:26 pm
          Abbygx2589
          Participant

            I am happy to report that my dad is now over 2 years stable with stage 4 with brain mets! Ipi/nivo for two years (trial ended this spring) and radiation for some of the brain mets. He just got scans results this morning! Happy to share the hope

            • September 25, 2018 at 2:24 pm
            Abbygx2589
            Participant

              good to hear!!

              • September 14, 2018 at 11:43 pm
              Abbygx2589
              Participant

                That is good to hear. Thank you!

                • August 29, 2018 at 5:55 pm
                Abbygx2589
                Participant

                  My father had SRS on two small and one large spot and did not experience any seizures. Hope this helps!

                  • May 10, 2018 at 12:58 am
                  Abbygx2589
                  Participant

                    When my dad needed more imaging, the doctor met with him and told him that he needs to do more imaging to get a better picture. I think it is very possible that the technician just needed to get better images.

                    Hoping for the best for you!

                    • May 10, 2018 at 12:58 am
                    Abbygx2589
                    Participant

                      When my dad needed more imaging, the doctor met with him and told him that he needs to do more imaging to get a better picture. I think it is very possible that the technician just needed to get better images.

                      Hoping for the best for you!

                      • April 18, 2018 at 10:53 pm
                      Abbygx2589
                      Participant

                        Glad to hear it! I will also be there with family and friends to support the event and my dad (stage 4)!

                        • September 11, 2018 at 9:52 pm
                        Abbygx2589
                        Participant

                          Thank you for updating us all. Celeste, we are all praying for you!! You mean a lot to everyone on this board.

                          • June 28, 2018 at 11:33 pm
                          Abbygx2589
                          Participant

                            Thank you for responding! I will check out the data from ASCO. My father (and us his family) feel like you do and don’t want to stop but his clinical trial is over (ipi/nivo for brain mets) and his doctor is pushing him to stop. For some reason they said he can only do a large dose monthly if he chooses. I am worried about side effects.. but also scared for him to stop. Do you take it biweekly??

                             

                            • June 28, 2018 at 11:29 pm
                            Abbygx2589
                            Participant

                              That’s good to hear! Wishing you the best! Did you have a pet scan? 

                              • June 28, 2018 at 11:27 pm
                              Abbygx2589
                              Participant

                                I agree about the pet scan to give us a better idea about the lung. For some reason this doctor just thinks it’s neen good enough and doesn’t want one….

                                Thank you for sharing your story. It is nice to hear someone else went off treatment with visible spots in the brain. I was afraid my dad was the only one! I totally understand the feeling of “it’s been good for so long, when will it stop?” But hopefully it won’t! We are lucky to be in that comfort zone 🙂 

                                 

                                • May 11, 2018 at 10:20 am
                                Abbygx2589
                                Participant

                                  Good luck to you Mike! I think the combo is a great idea!!

                                  • April 21, 2018 at 12:28 am
                                  Abbygx2589
                                  Participant

                                    Hope to see you there!!

                                Viewing 8 reply threads
                                1 2
                                About the MRF Patient Forum

                                The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                                Popular Topics