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acyr

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      • July 3, 2012 at 10:33 pm
      acyr
      Participant

        I remember getting Warren's story on this site many years ago and it was a very great comfort to me when there were no therapies or great trials on the norizon.  I think it inspired so many other patients I came to know as well.  He will be missed I am sure of that, but his story lives on and inspires us today.  Many thanks and be proud.

        Annette IIIB

        Melanoma Network of Canada

        http://www.melanomanetwork.ca

        • July 3, 2012 at 10:33 pm
        acyr
        Participant

          I remember getting Warren's story on this site many years ago and it was a very great comfort to me when there were no therapies or great trials on the norizon.  I think it inspired so many other patients I came to know as well.  He will be missed I am sure of that, but his story lives on and inspires us today.  Many thanks and be proud.

          Annette IIIB

          Melanoma Network of Canada

          http://www.melanomanetwork.ca

          • July 3, 2012 at 10:33 pm
          acyr
          Participant

            I remember getting Warren's story on this site many years ago and it was a very great comfort to me when there were no therapies or great trials on the norizon.  I think it inspired so many other patients I came to know as well.  He will be missed I am sure of that, but his story lives on and inspires us today.  Many thanks and be proud.

            Annette IIIB

            Melanoma Network of Canada

            http://www.melanomanetwork.ca

            • April 26, 2012 at 10:47 pm
            acyr
            Participant

              Hi Lisa,

              So sorry to read you are still dealing with this nasty disease.  It has benn a while since I have been on the site.  Hope you are able to enjoy your time in Florida and thinking of you often.

              Annette IIIB

              Melanoma Network of Canada

              • April 26, 2012 at 10:47 pm
              acyr
              Participant

                Hi Lisa,

                So sorry to read you are still dealing with this nasty disease.  It has benn a while since I have been on the site.  Hope you are able to enjoy your time in Florida and thinking of you often.

                Annette IIIB

                Melanoma Network of Canada

                • April 26, 2012 at 10:47 pm
                acyr
                Participant

                  Hi Lisa,

                  So sorry to read you are still dealing with this nasty disease.  It has benn a while since I have been on the site.  Hope you are able to enjoy your time in Florida and thinking of you often.

                  Annette IIIB

                  Melanoma Network of Canada

                  • October 2, 2011 at 8:42 pm
                  acyr
                  Participant

                    I am over the top happy for you!  This is the news we have been waiting for.  It will give to many others hope for some options Val.  I know it was tough, but the results look to be worth it.  I pray for your continued improvement and to finally kick this to the curb.  Big hugs.  I am sure Sharyn is doing a dance for you from up above.

                    Annette IIIB

                    • October 2, 2011 at 8:42 pm
                    acyr
                    Participant

                      I am over the top happy for you!  This is the news we have been waiting for.  It will give to many others hope for some options Val.  I know it was tough, but the results look to be worth it.  I pray for your continued improvement and to finally kick this to the curb.  Big hugs.  I am sure Sharyn is doing a dance for you from up above.

                      Annette IIIB

                      • September 25, 2011 at 4:09 pm
                      acyr
                      Participant

                        Hi Val,

                        So good to hear from you.  I can only imagine how rough this trial was – but I am very hopeful this will be the one that really works for you.  Hang in there and I am anxious to hear the scan results.  It is a long road, but we are all very keen to hear your success.  Big hugs,

                         

                        Annette  IIIB

                        Toronto

                        • April 29, 2012 at 2:12 pm
                        acyr
                        Participant

                          Hi Gene,

                          She is starting Ipi, but both her and husband are worried because of the tumour load that it may be too slow to act.  They were hoping there would be a clinical trial in the US or Canada that would control or irradicate the tumours in her liver, which are a big concern at the moment.  Any thoughts?

                          Annette IIIB

                          MNC

                          • April 29, 2012 at 2:12 pm
                          acyr
                          Participant

                            Hi Gene,

                            She is starting Ipi, but both her and husband are worried because of the tumour load that it may be too slow to act.  They were hoping there would be a clinical trial in the US or Canada that would control or irradicate the tumours in her liver, which are a big concern at the moment.  Any thoughts?

                            Annette IIIB

                            MNC

                            • April 29, 2012 at 2:12 pm
                            acyr
                            Participant

                              Hi Gene,

                              She is starting Ipi, but both her and husband are worried because of the tumour load that it may be too slow to act.  They were hoping there would be a clinical trial in the US or Canada that would control or irradicate the tumours in her liver, which are a big concern at the moment.  Any thoughts?

                              Annette IIIB

                              MNC

                              • April 27, 2012 at 5:06 pm
                              acyr
                              Participant

                                Thanks so much Lynn.  I know they had some trials by Delcath a couple of years ago and it seemed patients were having some good responses, but don't know if the results are out there yet or if the drug has been submitted to FDA for approval.

                                If anyone has any other suggestions, I welcome those too!  Thanks again Lynn.  I will pass this on.

                                • April 27, 2012 at 5:06 pm
                                acyr
                                Participant

                                  Thanks so much Lynn.  I know they had some trials by Delcath a couple of years ago and it seemed patients were having some good responses, but don't know if the results are out there yet or if the drug has been submitted to FDA for approval.

                                  If anyone has any other suggestions, I welcome those too!  Thanks again Lynn.  I will pass this on.

                                  • April 27, 2012 at 5:06 pm
                                  acyr
                                  Participant

                                    Thanks so much Lynn.  I know they had some trials by Delcath a couple of years ago and it seemed patients were having some good responses, but don't know if the results are out there yet or if the drug has been submitted to FDA for approval.

                                    If anyone has any other suggestions, I welcome those too!  Thanks again Lynn.  I will pass this on.

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