Alestrada88
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Alestrada88

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      • August 30, 2016 at 7:33 pm
      Alestrada88
      Participant

        I did not mean to post this anonymous! Idk how I did that. My original staging was 1b, after the SNB staging is unclear, my oncologist said I'm either a 1B OR 3A, I have a second opinion in 2 weeks 

        • August 30, 2016 at 7:33 pm
        Alestrada88
        Participant

          I did not mean to post this anonymous! Idk how I did that. My original staging was 1b, after the SNB staging is unclear, my oncologist said I'm either a 1B OR 3A, I have a second opinion in 2 weeks 

          • August 30, 2016 at 7:33 pm
          Alestrada88
          Participant

            I did not mean to post this anonymous! Idk how I did that. My original staging was 1b, after the SNB staging is unclear, my oncologist said I'm either a 1B OR 3A, I have a second opinion in 2 weeks 

            • August 21, 2016 at 4:32 pm
            Alestrada88
            Participant

              So at first the dr said I was a stage 2. Then right before surgery he said a stage 1B, the depth is 1.3mm non ulcerated, <1 mitosis. Every thing that I've researched says that is stage 1B. The SNB is where it gets confusing. The pathologist said the 8 cells (I mean 8 cells out of probably millions seems so minute) appeared to be benign. The onc dr also said he's 99% sure I don't need the CLND but that's all he can recommend to me. It just seems like he doesn't really know what to do or tell me. 

              I am so anxious for a second opinion. I have an appointment with my PCP who will have to order the referral. Shooting for MD Anderson but we will see what happens. 

              Thanks for your response!

              • August 21, 2016 at 4:32 pm
              Alestrada88
              Participant

                So at first the dr said I was a stage 2. Then right before surgery he said a stage 1B, the depth is 1.3mm non ulcerated, <1 mitosis. Every thing that I've researched says that is stage 1B. The SNB is where it gets confusing. The pathologist said the 8 cells (I mean 8 cells out of probably millions seems so minute) appeared to be benign. The onc dr also said he's 99% sure I don't need the CLND but that's all he can recommend to me. It just seems like he doesn't really know what to do or tell me. 

                I am so anxious for a second opinion. I have an appointment with my PCP who will have to order the referral. Shooting for MD Anderson but we will see what happens. 

                Thanks for your response!

                • August 21, 2016 at 4:32 pm
                Alestrada88
                Participant

                  So at first the dr said I was a stage 2. Then right before surgery he said a stage 1B, the depth is 1.3mm non ulcerated, <1 mitosis. Every thing that I've researched says that is stage 1B. The SNB is where it gets confusing. The pathologist said the 8 cells (I mean 8 cells out of probably millions seems so minute) appeared to be benign. The onc dr also said he's 99% sure I don't need the CLND but that's all he can recommend to me. It just seems like he doesn't really know what to do or tell me. 

                  I am so anxious for a second opinion. I have an appointment with my PCP who will have to order the referral. Shooting for MD Anderson but we will see what happens. 

                  Thanks for your response!

                  • August 20, 2016 at 11:38 am
                  Alestrada88
                  Participant

                    Thank you!!! I'm dealing with military doctors as my husband is in the air force so I will call and see about getting a referral to md Anderson! I think given my "complicated" diagnosis I should be able to get a second opinion from a better educated dr! Thanks!!!!!

                    • August 20, 2016 at 11:38 am
                    Alestrada88
                    Participant

                      Thank you!!! I'm dealing with military doctors as my husband is in the air force so I will call and see about getting a referral to md Anderson! I think given my "complicated" diagnosis I should be able to get a second opinion from a better educated dr! Thanks!!!!!

                      • August 20, 2016 at 11:38 am
                      Alestrada88
                      Participant

                        Thank you!!! I'm dealing with military doctors as my husband is in the air force so I will call and see about getting a referral to md Anderson! I think given my "complicated" diagnosis I should be able to get a second opinion from a better educated dr! Thanks!!!!!

                        • August 20, 2016 at 11:37 am
                        Alestrada88
                        Participant

                          Yes he is wanting to do a right groin lymph node dissection, but can't even tell me if my nodes are positive so that's why I'm getting a second opinion. I am going to ask for a PET scan this week I have a full body check and I think that would be good to have on file!

                          thanks so much for the response!!! 

                          • August 20, 2016 at 11:37 am
                          Alestrada88
                          Participant

                            Yes he is wanting to do a right groin lymph node dissection, but can't even tell me if my nodes are positive so that's why I'm getting a second opinion. I am going to ask for a PET scan this week I have a full body check and I think that would be good to have on file!

                            thanks so much for the response!!! 

                            • August 20, 2016 at 11:37 am
                            Alestrada88
                            Participant

                              Yes he is wanting to do a right groin lymph node dissection, but can't even tell me if my nodes are positive so that's why I'm getting a second opinion. I am going to ask for a PET scan this week I have a full body check and I think that would be good to have on file!

                              thanks so much for the response!!! 

                              • August 20, 2016 at 1:34 am
                              Alestrada88
                              Participant

                                Thank you so much for your response! Unfortunately, I'm dealing with military doctors and I think the studies are all very outdated so I've been researching as much on my own as I can. We are paying out of pocket for a second opinion and not doing any further surgery until then. 

                                Thanks again! My little family is the biggest blessing ever, if this is all that I can have and remain healthy then I'll be okay, but I need scientific proof of everything before I put more babies out of my mind. best wishes for you as well! ❤️

                                • August 20, 2016 at 1:34 am
                                Alestrada88
                                Participant

                                  Thank you so much for your response! Unfortunately, I'm dealing with military doctors and I think the studies are all very outdated so I've been researching as much on my own as I can. We are paying out of pocket for a second opinion and not doing any further surgery until then. 

                                  Thanks again! My little family is the biggest blessing ever, if this is all that I can have and remain healthy then I'll be okay, but I need scientific proof of everything before I put more babies out of my mind. best wishes for you as well! ❤️

                                  • August 20, 2016 at 1:34 am
                                  Alestrada88
                                  Participant

                                    Thank you so much for your response! Unfortunately, I'm dealing with military doctors and I think the studies are all very outdated so I've been researching as much on my own as I can. We are paying out of pocket for a second opinion and not doing any further surgery until then. 

                                    Thanks again! My little family is the biggest blessing ever, if this is all that I can have and remain healthy then I'll be okay, but I need scientific proof of everything before I put more babies out of my mind. best wishes for you as well! ❤️

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