alpineartist

Hello. Thank you for posting this. I'm new to the board. My sister (IIIA, diag. Sept 2012) is eligible for this trial and will likely enroll. Has anyone else here enrolled? If so, what has been your experience so far? 
I understand that placebo is part of the protocol. With such an insidious disease, it would seem that no one should receive placebo but all should be treated in some way. Can anyone explain this to me? And if on placebo, she's been told that it won't be for the duration of the trial. Is this true?

Anything more that we can learn about this trial would be a huge help. Thank you all and God bless!

Kay

Hello. Thank you for posting this. I'm new to the board. My sister (IIIA, diag. Sept 2012) is eligible for this trial and will likely enroll. Has anyone else here enrolled? If so, what has been your experience so far? 
I understand that placebo is part of the protocol. With such an insidious disease, it would seem that no one should receive placebo but all should be treated in some way. Can anyone explain this to me? And if on placebo, she's been told that it won't be for the duration of the trial. Is this true?

Anything more that we can learn about this trial would be a huge help. Thank you all and God bless!

Kay

Hello. Thank you for posting this. I'm new to the board. My sister (IIIA, diag. Sept 2012) is eligible for this trial and will likely enroll. Has anyone else here enrolled? If so, what has been your experience so far? 
I understand that placebo is part of the protocol. With such an insidious disease, it would seem that no one should receive placebo but all should be treated in some way. Can anyone explain this to me? And if on placebo, she's been told that it won't be for the duration of the trial. Is this true?

Anything more that we can learn about this trial would be a huge help. Thank you all and God bless!

Kay

Thank you very much for your prompt reply. I understand things better now. And yes, we're very grateful that all this is happening now compared to just a short time ago when choices were so few (though I wasn't aware that it was that recently that those choices were made available.) -Also grateful that we live relatively close to one of the finest cancer treatment centers that there is. And we're excited at the chance for sis to be among the very persons who may offer hope to thousands more in the future.
I'll let sis know that she can ask about "cross-over" options with this trial. 

And again, if anyone has any more information on this, we'd be very grateful if you'd share.

Thanks again,

Kay

Thank you very much for your prompt reply. I understand things better now. And yes, we're very grateful that all this is happening now compared to just a short time ago when choices were so few (though I wasn't aware that it was that recently that those choices were made available.) -Also grateful that we live relatively close to one of the finest cancer treatment centers that there is. And we're excited at the chance for sis to be among the very persons who may offer hope to thousands more in the future.
I'll let sis know that she can ask about "cross-over" options with this trial. 

And again, if anyone has any more information on this, we'd be very grateful if you'd share.

Thanks again,

Kay

Thank you very much for your prompt reply. I understand things better now. And yes, we're very grateful that all this is happening now compared to just a short time ago when choices were so few (though I wasn't aware that it was that recently that those choices were made available.) -Also grateful that we live relatively close to one of the finest cancer treatment centers that there is. And we're excited at the chance for sis to be among the very persons who may offer hope to thousands more in the future.
I'll let sis know that she can ask about "cross-over" options with this trial. 

And again, if anyone has any more information on this, we'd be very grateful if you'd share.

Thanks again,

Kay