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ALWAYS READY NEVER PREPARED

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      • September 12, 2017 at 7:08 pm
      ALWAYS READY NEVER PREPARED
      Participant

        That is awesome news! What a great Christmas present that would make:) Thank you for your post. My husband is stage iv, and on the opdivo/yervoy. He has had two treatments, however his third we chose to use just the opdivo because he was so weak. He has the miserable side effects, and I am glad you mentioned the gas issue….that is what he is dealing with right now. We are praying that the tumors start shrinking to give him some relief. His abdomen is filled with them, crushing his bladder, kidney's and stomach. Keep posting, looking forward to hearing good things. Stay NEDcool

        • September 8, 2017 at 3:54 am
        ALWAYS READY NEVER PREPARED
        Participant

          Hello, my husband has 5 huge tumors in his abdomen area. Currently he is taking opdivo/yervoy, going for 3rd infusion tomorrow. So far he has had trouble with one kidney needing a nephrotomy and the other kidney is now not producing as it is being crushed, along with his bladder. He has edema in his legs and a constant stomach pain. We are praying they start shrinking soon to give him some relief. The tumors have not infiltrated any of his organs, blood, lungs, bones or brain. He did use the mek/taflinar which worked fast but not long. Even though he has gone through some unpleasant side effects, he is still able to continue treatments. We were told they would get bigger initially due to the fighting cells penetrating the tumors. Keeping the faith. Prayers for you and your husband.

          • September 12, 2017 at 7:00 pm
          ALWAYS READY NEVER PREPARED
          Participant

            Hi Sharon,

            His thyroid has since been checked and shows no issues. His urologist says that as long as his other kidney is functioning, there is no need to do anything with the other, for now. He had to go back into the hospital because he was so weak, although he has lost much weight, at 6'2 and me being 5'2", I could not lift him. He has been there for a few days and he feels better. He will be going into a nursing home for 2 weeks to help him build his strength and hoping start walking with just a cane. Unfortunately, he became so fatigued and depressed that he did not try to walk or do anything. He would lay all day in the recliner only getting up to use the toilet and to go to bed. I will say a prayer that you will find the mental strength to keep you moving forward until you regain your physical strength. God Bless, Sandra

            • September 7, 2017 at 7:47 pm
            ALWAYS READY NEVER PREPARED
            Participant

              Hi, no they did not test his thyroid. They did get the calcium corrected, but while he was in the hospital his left kidney stopped working. He has a nephrotomy in his right kidney do to tumor compression. We were told as long as he had something coming out of the right side, to just monitor the other side.  He is super tired, very weak and wasting away so fast. We went to Tampa, FL from Knoxville, TN to a specialist when we first started out. To cut back on stress from travel, we decided to stay close to home for treatment. Probably was a mistake. He has his next Opdivo/Yervoy infusion tomorrow. He has lost 100 lbs since June. He has another urologist appointment next week to see if they may need to tube his left kidney. I am so frustrated. I know my husband is one in millions with cancer, I just feel that there is no real concern about fixing anything, I am sent home with him and I can either watch things get worse or research and demand. Sorry for the rant. I regret not going with a specialist in TN. The only one is in Nashville which is a 2.5 hour drive. I have no right to complain, but the thought of starting over again with another doctor is overwhelming.

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