MRF-Logo2019-Horizontal-RGB
s Mom
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

s Mom

Forum Replies Created

Viewing 1 reply thread
  • Replies
      • May 8, 2018 at 11:18 pm
      s Mom
      Participant

        Hi VinceMart.  My daughter started on Interferon with minimal side effects.  Disease progressed.  She did 3 rounds of Keytruda with minimal side effects and the cancer spread.  She started the Mek/Taf combo on April 19, 2018.  Started with flu like symptoms.  She has been in ICU since May 1.  High fever, low blood pressure, fluid retention.  She had to be on a ventilator.  Today, she is still in ICU and is trying to speak and has started physical therapy.  The doctors cannot find a reason that this has happened.  We were told that the minute a fever reaches 100.5 we need to call triage.  I wish the very best for you. This medicine scares me.  It was supposed to have amazing results.  We almost lost her.

        • March 19, 2018 at 11:56 pm
        s Mom
        Participant

          We are in California.  She is being treated at City of Hope in Duarte with a Melanoma Specialist.  When she started the Keytruda she had a single mass about a 50 cent piece size.  That mass is like the size of an egg and she has about 10 more of different sizes in her groin and upper thigh area spreading to the backside.  Celeste, all the information you have provided is very interesting.  Thank you

          • March 15, 2018 at 3:52 pm
          s Mom
          Participant

            Thank you Celeste.  She was on Interferon for 7 months. It did not work.  She had additional tumors in her groin and surgery.  She has been on Keytruda (3rd dose yesterday) and it is not working.  She has multiple tumors in her groin and there are tumors within the tumors.  The trial they suggest is Cavatak.  I will read the links and thank you!

        Viewing 1 reply thread
        About the MRF Patient Forum

        The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

        The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

        Popular Topics