The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Angsta39

Forum Replies Created

Viewing 5 reply threads
  • Replies
      Angsta39
      Participant

        TexasMama I don't know about spitzoid features but I know how it feels to be looking for answers and no one answers you at all. I do a LOT of reading of the posts on here and one that might help you was posted on 2/11/16 about Spitz tumors. One of the people who replied gave  great info on what they are that might help you with your question. Its about 3 posts down from yours. I hope the best for your child and your family. 

        Angsta39
        Participant

          TexasMama I don't know about spitzoid features but I know how it feels to be looking for answers and no one answers you at all. I do a LOT of reading of the posts on here and one that might help you was posted on 2/11/16 about Spitz tumors. One of the people who replied gave  great info on what they are that might help you with your question. Its about 3 posts down from yours. I hope the best for your child and your family. 

          Angsta39
          Participant

            TexasMama I don't know about spitzoid features but I know how it feels to be looking for answers and no one answers you at all. I do a LOT of reading of the posts on here and one that might help you was posted on 2/11/16 about Spitz tumors. One of the people who replied gave  great info on what they are that might help you with your question. Its about 3 posts down from yours. I hope the best for your child and your family. 

            Angsta39
            Participant

              Thank you to you all for your stories and what you each chose to do. This helps me very much. I thought Yervoy was only for Stage 4, but it gives me hope that my doctor may offer it to me. If I don't get offered it, I will probablly do the biochemo because the other options that she gave me before just don't seem like the right choice for me. Again, thank you so much for all of you answering my post. 

              Angsta39
              Participant

                Thank you to you all for your stories and what you each chose to do. This helps me very much. I thought Yervoy was only for Stage 4, but it gives me hope that my doctor may offer it to me. If I don't get offered it, I will probablly do the biochemo because the other options that she gave me before just don't seem like the right choice for me. Again, thank you so much for all of you answering my post. 

                Angsta39
                Participant

                  Thank you to you all for your stories and what you each chose to do. This helps me very much. I thought Yervoy was only for Stage 4, but it gives me hope that my doctor may offer it to me. If I don't get offered it, I will probablly do the biochemo because the other options that she gave me before just don't seem like the right choice for me. Again, thank you so much for all of you answering my post. 

                  Angsta39
                  Participant

                    Thanks for all of the replies. This is a big decison for me because I had choosen before not to do anything and just wait after my original surgery and now I have what looks like a horror film going on, on my leg since I have amelanortic melanoma. I literally look like I have cherrys growing on my leg. Its really gross and I hate looking at it. 

                    I honestly thing that the T-VEC injections are making my melanoma grow faster and that scares me. I have to make a decison on whether or not to keep doing them and whether or not I want to do the Opdivo. I'm beginnig to think that maybe I should just do nothing and hope that I get to live a long enough life to finally meet my grand daughter and see my son graduate from high school. 

                    You read all these blogs and articles about treatments and the side effects and you have to ask yourself, do I really want to put my body through all that and possibly die from the treatments and not the cancer? I'm really stuck in a place of do I do this or do I just say no and hope to live a happy life without any of the stuff that comes with treatments. 

                    Angsta39
                    Participant

                      Thanks for all of the replies. This is a big decison for me because I had choosen before not to do anything and just wait after my original surgery and now I have what looks like a horror film going on, on my leg since I have amelanortic melanoma. I literally look like I have cherrys growing on my leg. Its really gross and I hate looking at it. 

                      I honestly thing that the T-VEC injections are making my melanoma grow faster and that scares me. I have to make a decison on whether or not to keep doing them and whether or not I want to do the Opdivo. I'm beginnig to think that maybe I should just do nothing and hope that I get to live a long enough life to finally meet my grand daughter and see my son graduate from high school. 

                      You read all these blogs and articles about treatments and the side effects and you have to ask yourself, do I really want to put my body through all that and possibly die from the treatments and not the cancer? I'm really stuck in a place of do I do this or do I just say no and hope to live a happy life without any of the stuff that comes with treatments. 

                      Angsta39
                      Participant

                        Thanks for all of the replies. This is a big decison for me because I had choosen before not to do anything and just wait after my original surgery and now I have what looks like a horror film going on, on my leg since I have amelanortic melanoma. I literally look like I have cherrys growing on my leg. Its really gross and I hate looking at it. 

                        I honestly thing that the T-VEC injections are making my melanoma grow faster and that scares me. I have to make a decison on whether or not to keep doing them and whether or not I want to do the Opdivo. I'm beginnig to think that maybe I should just do nothing and hope that I get to live a long enough life to finally meet my grand daughter and see my son graduate from high school. 

                        You read all these blogs and articles about treatments and the side effects and you have to ask yourself, do I really want to put my body through all that and possibly die from the treatments and not the cancer? I'm really stuck in a place of do I do this or do I just say no and hope to live a happy life without any of the stuff that comes with treatments. 

                        Angsta39
                        Participant

                          I will let you know how it goes. I've already had a complete resection before the lesions came back, so this is what my doctors say the next step is for me. I will do the first treatment on the 23rd of February then again 3 weeks later. After that it's every 2 weeks. I have a restaging PET scan in April. Thanks for replying. 

                          Angsta39
                          Participant

                            I will let you know how it goes. I've already had a complete resection before the lesions came back, so this is what my doctors say the next step is for me. I will do the first treatment on the 23rd of February then again 3 weeks later. After that it's every 2 weeks. I have a restaging PET scan in April. Thanks for replying. 

                            Angsta39
                            Participant

                              I will let you know how it goes. I've already had a complete resection before the lesions came back, so this is what my doctors say the next step is for me. I will do the first treatment on the 23rd of February then again 3 weeks later. After that it's every 2 weeks. I have a restaging PET scan in April. Thanks for replying. 

                              Angsta39
                              Participant

                                Thank you Kathy. I will definatley watch for those treatments as you are correct that they are not approved for Stage IIIB right now. I have my next scans and Derm appointment in December. 

                                Angsta39
                                Participant

                                  Thank you Kathy. I will definatley watch for those treatments as you are correct that they are not approved for Stage IIIB right now. I have my next scans and Derm appointment in December. 

                                  Angsta39
                                  Participant

                                    Thank you Kathy. I will definatley watch for those treatments as you are correct that they are not approved for Stage IIIB right now. I have my next scans and Derm appointment in December. 

                                Viewing 5 reply threads
                                About the MRF Patient Forum

                                The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                                Popular Topics