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arborbnb

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      arborbnb
      Participant

        Thanks Linda – yes that was amazing about Keiran … absolute miracle.  I am the person responsible for getting the BCCA to fund IFN for Stage 3 Mel…. was a huge fight.  I can't believe that there doesn't seem to be anything out there more targetted 10 years later as the side effects can be daunting.

        Thanks for the clinical trials link and I will forward it to my daughter in Toronto.  She has a grade 2 diffuse astro and there is very little out there to keep it grade 2.  They wait until it is an anaplastic or Glioblastoma before they seem to be interested and by that time things are dire.  She is well but is a 40 year old Mom living one MRI to the next.  Not exactly what I planned for her.

        arborbnb
        Participant

          Thanks Linda – yes that was amazing about Keiran … absolute miracle.  I am the person responsible for getting the BCCA to fund IFN for Stage 3 Mel…. was a huge fight.  I can't believe that there doesn't seem to be anything out there more targetted 10 years later as the side effects can be daunting.

          Thanks for the clinical trials link and I will forward it to my daughter in Toronto.  She has a grade 2 diffuse astro and there is very little out there to keep it grade 2.  They wait until it is an anaplastic or Glioblastoma before they seem to be interested and by that time things are dire.  She is well but is a 40 year old Mom living one MRI to the next.  Not exactly what I planned for her.

          arborbnb
          Participant

            Hi Barb:  We are in Prince George, BC.  At the time of Peter's Stage 3 dx the BC Cancer Agency had no approved ( ie paid for) treatment for Stage 3 Melanoma.  We changed that with a lot of lobbying and had to pay for Peter's Interferon treatment.  The Interferon was administered her in Prince George and the radiation in Vancouver.  Things have changed a lot since then.  We have lost many fellow INF patients and it ;appears that approximately 25% of the population are "responders" to IFN and there is no way to know who is and who isn't.  Our daughter lives in Toronto and goes to the Cancer treatment center at Sunnybrooke ( non- melanoma issue).

            arborbnb
            Participant

              Hi Barb:  We are in Prince George, BC.  At the time of Peter's Stage 3 dx the BC Cancer Agency had no approved ( ie paid for) treatment for Stage 3 Melanoma.  We changed that with a lot of lobbying and had to pay for Peter's Interferon treatment.  The Interferon was administered her in Prince George and the radiation in Vancouver.  Things have changed a lot since then.  We have lost many fellow INF patients and it ;appears that approximately 25% of the population are "responders" to IFN and there is no way to know who is and who isn't.  Our daughter lives in Toronto and goes to the Cancer treatment center at Sunnybrooke ( non- melanoma issue).

              arborbnb
              Participant

                Hi Barb:  We are in Prince George, BC.  At the time of Peter's Stage 3 dx the BC Cancer Agency had no approved ( ie paid for) treatment for Stage 3 Melanoma.  We changed that with a lot of lobbying and had to pay for Peter's Interferon treatment.  The Interferon was administered her in Prince George and the radiation in Vancouver.  Things have changed a lot since then.  We have lost many fellow INF patients and it ;appears that approximately 25% of the population are "responders" to IFN and there is no way to know who is and who isn't.  Our daughter lives in Toronto and goes to the Cancer treatment center at Sunnybrooke ( non- melanoma issue).

                arborbnb
                Participant

                  Another Interferon success story!  Glad to hear you are well too.  Did you have long term neuropathy from the IFN too – that is Peter's major complaint.

                   

                  Julie

                  arborbnb
                  Participant

                    Another Interferon success story!  Glad to hear you are well too.  Did you have long term neuropathy from the IFN too – that is Peter's major complaint.

                     

                    Julie

                    arborbnb
                    Participant

                      Another Interferon success story!  Glad to hear you are well too.  Did you have long term neuropathy from the IFN too – that is Peter's major complaint.

                       

                      Julie

                      arborbnb
                      Participant

                        Of course I remember you an very glad that you are still doing well.  I have lost touch with Rejean but of course think of her and Patrick often

                        arborbnb
                        Participant

                          Of course I remember you an very glad that you are still doing well.  I have lost touch with Rejean but of course think of her and Patrick often

                          arborbnb
                          Participant

                            Of course I remember you an very glad that you are still doing well.  I have lost touch with Rejean but of course think of her and Patrick often

                            arborbnb
                            Participant

                              You must know Joan Robinson?

                              arborbnb
                              Participant

                                You must know Joan Robinson?

                                arborbnb
                                Participant

                                  You must know Joan Robinson?

                                  arborbnb
                                  Participant

                                    You must know Joan Robinson?

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