Forum Replies Created
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- September 12, 2011 at 6:20 pm
Thanks Linda – yes that was amazing about Keiran … absolute miracle. I am the person responsible for getting the BCCA to fund IFN for Stage 3 Mel…. was a huge fight. I can't believe that there doesn't seem to be anything out there more targetted 10 years later as the side effects can be daunting.
Thanks for the clinical trials link and I will forward it to my daughter in Toronto. She has a grade 2 diffuse astro and there is very little out there to keep it grade 2. They wait until it is an anaplastic or Glioblastoma before they seem to be interested and by that time things are dire. She is well but is a 40 year old Mom living one MRI to the next. Not exactly what I planned for her.
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- September 12, 2011 at 6:20 pm
Thanks Linda – yes that was amazing about Keiran … absolute miracle. I am the person responsible for getting the BCCA to fund IFN for Stage 3 Mel…. was a huge fight. I can't believe that there doesn't seem to be anything out there more targetted 10 years later as the side effects can be daunting.
Thanks for the clinical trials link and I will forward it to my daughter in Toronto. She has a grade 2 diffuse astro and there is very little out there to keep it grade 2. They wait until it is an anaplastic or Glioblastoma before they seem to be interested and by that time things are dire. She is well but is a 40 year old Mom living one MRI to the next. Not exactly what I planned for her.
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- May 20, 2016 at 5:48 pm
Hi Barb: We are in Prince George, BC. At the time of Peter's Stage 3 dx the BC Cancer Agency had no approved ( ie paid for) treatment for Stage 3 Melanoma. We changed that with a lot of lobbying and had to pay for Peter's Interferon treatment. The Interferon was administered her in Prince George and the radiation in Vancouver. Things have changed a lot since then. We have lost many fellow INF patients and it ;appears that approximately 25% of the population are "responders" to IFN and there is no way to know who is and who isn't. Our daughter lives in Toronto and goes to the Cancer treatment center at Sunnybrooke ( non- melanoma issue).
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- May 20, 2016 at 5:48 pm
Hi Barb: We are in Prince George, BC. At the time of Peter's Stage 3 dx the BC Cancer Agency had no approved ( ie paid for) treatment for Stage 3 Melanoma. We changed that with a lot of lobbying and had to pay for Peter's Interferon treatment. The Interferon was administered her in Prince George and the radiation in Vancouver. Things have changed a lot since then. We have lost many fellow INF patients and it ;appears that approximately 25% of the population are "responders" to IFN and there is no way to know who is and who isn't. Our daughter lives in Toronto and goes to the Cancer treatment center at Sunnybrooke ( non- melanoma issue).
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- May 20, 2016 at 5:48 pm
Hi Barb: We are in Prince George, BC. At the time of Peter's Stage 3 dx the BC Cancer Agency had no approved ( ie paid for) treatment for Stage 3 Melanoma. We changed that with a lot of lobbying and had to pay for Peter's Interferon treatment. The Interferon was administered her in Prince George and the radiation in Vancouver. Things have changed a lot since then. We have lost many fellow INF patients and it ;appears that approximately 25% of the population are "responders" to IFN and there is no way to know who is and who isn't. Our daughter lives in Toronto and goes to the Cancer treatment center at Sunnybrooke ( non- melanoma issue).
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