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Ashley

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      Ashley
      Participant

        Thanks Celeste for your response.  I'm just not sure I believe that the PD-1's are able to work in the brain. The trial my dad has been on has reduced tumors everywhere in his body (37% so far), however we now have a new brain met… nothing new anywhere else for the past 8 months.  Maybe I'm just a pesimist but given the new met in the brain, i'm really concerned that we're always going to have to be worried about the brain even though he's considered a responder on the trial.

        Ashley
        Participant

          Thanks Celeste for your response.  I'm just not sure I believe that the PD-1's are able to work in the brain. The trial my dad has been on has reduced tumors everywhere in his body (37% so far), however we now have a new brain met… nothing new anywhere else for the past 8 months.  Maybe I'm just a pesimist but given the new met in the brain, i'm really concerned that we're always going to have to be worried about the brain even though he's considered a responder on the trial.

          Ashley
          Participant

            Thanks Celeste for your response.  I'm just not sure I believe that the PD-1's are able to work in the brain. The trial my dad has been on has reduced tumors everywhere in his body (37% so far), however we now have a new brain met… nothing new anywhere else for the past 8 months.  Maybe I'm just a pesimist but given the new met in the brain, i'm really concerned that we're always going to have to be worried about the brain even though he's considered a responder on the trial.

            Ashley
            Participant

              Thanks Ed!

              Ashley
              Participant

                Thanks Ed!

                Ashley
                Participant

                  Thanks Ed!

                  Ashley
                  Participant

                    Thanks, he's on Opdivo… So I'm guessing that doesn't cross the bbb…

                    Ashley
                    Participant

                      Thanks, he's on Opdivo… So I'm guessing that doesn't cross the bbb…

                      Ashley
                      Participant

                        Thanks, he's on Opdivo… So I'm guessing that doesn't cross the bbb…

                        Ashley
                        Participant

                          I thoroughly agree with this response.  As upsetting as this is, its not BMS's fault.  We as US citizens require all of our drugs to be safe.  Because of this, the FDA has rules they set forth to getting drugs approved, which includes trials, etc.  Trials have pre-determined criteria before patients start them, which the FDA reviews.  If the companies deviate from these protocols there is a risk that their drug will not be approved, and patients will therefore never get a chance to go on the drug that the company is making.  I'm so sorry for what you are going through, but its unfortunately the rules set forth by our government not BMS.

                          Ashley
                          Participant

                            I thoroughly agree with this response.  As upsetting as this is, its not BMS's fault.  We as US citizens require all of our drugs to be safe.  Because of this, the FDA has rules they set forth to getting drugs approved, which includes trials, etc.  Trials have pre-determined criteria before patients start them, which the FDA reviews.  If the companies deviate from these protocols there is a risk that their drug will not be approved, and patients will therefore never get a chance to go on the drug that the company is making.  I'm so sorry for what you are going through, but its unfortunately the rules set forth by our government not BMS.

                            Ashley
                            Participant

                              I thoroughly agree with this response.  As upsetting as this is, its not BMS's fault.  We as US citizens require all of our drugs to be safe.  Because of this, the FDA has rules they set forth to getting drugs approved, which includes trials, etc.  Trials have pre-determined criteria before patients start them, which the FDA reviews.  If the companies deviate from these protocols there is a risk that their drug will not be approved, and patients will therefore never get a chance to go on the drug that the company is making.  I'm so sorry for what you are going through, but its unfortunately the rules set forth by our government not BMS.

                              Ashley
                              Participant

                                Thanks Celeste!

                                Ashley
                                Participant

                                  Thanks Celeste!

                                  Ashley
                                  Participant

                                    Thanks Celeste!

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