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azurliene

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      • November 2, 2011 at 2:24 am
      azurliene
      Participant

        Thank you both – I really appreciate advice, the link and the list of treatment suggestions. The "tumor board" came and said their recommendation for the remaining tumor is "inconclusive" they don't know whether to recommend a 2nd craniotomy or gamma/WBR – we go tomorrow to discuss again. They were also able to get in for a 2nd opinion with MD Anderson in TX on the 14th so trying to decide whether to wait or not and to do surgery or radiation… I'll feel much better once we are able to (hopefully) get rid of this tumor…

        thanks again

        Aften

        • November 2, 2011 at 2:24 am
        azurliene
        Participant

          Thank you both – I really appreciate advice, the link and the list of treatment suggestions. The "tumor board" came and said their recommendation for the remaining tumor is "inconclusive" they don't know whether to recommend a 2nd craniotomy or gamma/WBR – we go tomorrow to discuss again. They were also able to get in for a 2nd opinion with MD Anderson in TX on the 14th so trying to decide whether to wait or not and to do surgery or radiation… I'll feel much better once we are able to (hopefully) get rid of this tumor…

          thanks again

          Aften

          • November 2, 2011 at 2:24 am
          azurliene
          Participant

            Thank you both – I really appreciate advice, the link and the list of treatment suggestions. The "tumor board" came and said their recommendation for the remaining tumor is "inconclusive" they don't know whether to recommend a 2nd craniotomy or gamma/WBR – we go tomorrow to discuss again. They were also able to get in for a 2nd opinion with MD Anderson in TX on the 14th so trying to decide whether to wait or not and to do surgery or radiation… I'll feel much better once we are able to (hopefully) get rid of this tumor…

            thanks again

            Aften

            • November 1, 2011 at 1:16 am
            azurliene
            Participant

              anybody? 🙁

              • November 1, 2011 at 1:16 am
              azurliene
              Participant

                anybody? 🙁

                • November 1, 2011 at 1:16 am
                azurliene
                Participant

                  anybody? 🙁

                  • March 12, 2012 at 8:05 pm
                  azurliene
                  Participant

                    Karen,

                    Thank you so much for your reply – I printed this and showed it to my Dad as an example. I know everyone experiences different levels of side effects, but I wishhe would at least give the drug a shot. So happy to hear you have had success with it and SO great to hear you are maintaining NED status! Wishing you continued success and goof health – thanks again!

                    Aften

                    • March 12, 2012 at 8:05 pm
                    azurliene
                    Participant

                      Karen,

                      Thank you so much for your reply – I printed this and showed it to my Dad as an example. I know everyone experiences different levels of side effects, but I wishhe would at least give the drug a shot. So happy to hear you have had success with it and SO great to hear you are maintaining NED status! Wishing you continued success and goof health – thanks again!

                      Aften

                      • March 12, 2012 at 8:05 pm
                      azurliene
                      Participant

                        Karen,

                        Thank you so much for your reply – I printed this and showed it to my Dad as an example. I know everyone experiences different levels of side effects, but I wishhe would at least give the drug a shot. So happy to hear you have had success with it and SO great to hear you are maintaining NED status! Wishing you continued success and goof health – thanks again!

                        Aften

                        • March 5, 2012 at 1:42 pm
                        azurliene
                        Participant
                          Thank you all so much – re: those on the 5 day dosing schedule, does the nausea / fatigue go away almost immediately after the 5th dose? Thank you again so much – god bless
                          • March 5, 2012 at 1:42 pm
                          azurliene
                          Participant
                            Thank you all so much – re: those on the 5 day dosing schedule, does the nausea / fatigue go away almost immediately after the 5th dose? Thank you again so much – god bless
                            • March 5, 2012 at 1:42 pm
                            azurliene
                            Participant
                              Thank you all so much – re: those on the 5 day dosing schedule, does the nausea / fatigue go away almost immediately after the 5th dose? Thank you again so much – god bless
                              • October 31, 2011 at 7:50 pm
                              azurliene
                              Participant

                                Cristy,

                                 

                                Thank you so much for taking the time to reply and for the info – I am already finding this forum is my outlet…I get consumed by reading the stories info and profiles, but I am so thankful to have the outlet for additional support and to lern of more current information and options. The general web and statistics were eating me alive – so refreshing to read some positive …and hopeful stories…

                                 

                                Thanks again 

                                • October 31, 2011 at 7:50 pm
                                azurliene
                                Participant

                                  Cristy,

                                   

                                  Thank you so much for taking the time to reply and for the info – I am already finding this forum is my outlet…I get consumed by reading the stories info and profiles, but I am so thankful to have the outlet for additional support and to lern of more current information and options. The general web and statistics were eating me alive – so refreshing to read some positive …and hopeful stories…

                                   

                                  Thanks again 

                                  • October 31, 2011 at 7:50 pm
                                  azurliene
                                  Participant

                                    Cristy,

                                     

                                    Thank you so much for taking the time to reply and for the info – I am already finding this forum is my outlet…I get consumed by reading the stories info and profiles, but I am so thankful to have the outlet for additional support and to lern of more current information and options. The general web and statistics were eating me alive – so refreshing to read some positive …and hopeful stories…

                                     

                                    Thanks again 

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