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Belltown
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Belltown

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      • September 21, 2018 at 1:10 pm
      Belltown
      Participant

        Sending good thoughts from one of the "new folks." 

        • September 20, 2018 at 9:06 pm
        Belltown
        Participant

          Thank you everyone for the helpful and supportive responses so far.  And I do hope they keep coming.  My brother's doc app't is on Tues, 9/25, and I will be going with him.  I am already far better prepared for that app't than I was a mere two days ago, thanks to all of you.

          • September 20, 2018 at 1:56 pm
          Belltown
          Participant

            Hi MelanomaMike,  It was the PA who called my brother with the results of his last scan and she is the one that told him that his oncologist wants to take him off of the TAF/MEK and switch him to Yervoy/Opdivo.  To your point, this sent us all into "what the heck and why?" mode.  My brother meets with the onc next week, so we will get more then.  But, again to your point, I personally don't see much value in the PA mentioning the potential shift.  It just puts us all on edge until the meeting with the doctor.  In the meantime, I was hoping to get some info from people on this board who actually went from TAF/MEK to Yervoy/Opdivo.   FYI – My brother's scan was mostly encouraging.  4 of 5 mets on his liver continued to shrink.  One was slightly larger.  His last blood test results were beautiful and his LDH remains well below 200.  And, no, I am not in the medical field, but am versed in looking at numbers, their ranges and trends.  

            Thanks again.

             

            • September 19, 2018 at 3:49 pm
            Belltown
            Participant

              Thanks very much for the quick response, Jenn.  Do you happen to know what is the typical interval, or "rest period," between stopping the TAF/MEK and stariing the Yervoy/Opdivo?  

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