berrygerry-358

Hello Heidi and Mary,  I too was diagnosed with mucosal melanoma in Feb. of  2014.  I had gone to the gyno because I thought that my bladder had dropped.  She thought I had a carunckle and ordered surgery before the biopsy.  A uralogist performed the surgery and everyone was surprised when the diagnosis came back Mucosal Melonoma!  They didn't know what to do with me.  My daughter searched the internet and found a doctor who specialized in melanoma at a cancer hospital and had seen patients with mucosal melanoma.  We are very small in numbers.  I had a second surgery to clear the margins of the first surgery and then 30 sessions of radiation.  I did not have any lymph nodes checked at the time of the first surgery but subsequent PET/CT scans have shown no recurrence.  My scans are now six months apart from every three months and I feel fine.  I go to Dana Farber Cancer Institute in Boston.  

Hello Heidi and Mary,  I too was diagnosed with mucosal melanoma in Feb. of  2014.  I had gone to the gyno because I thought that my bladder had dropped.  She thought I had a carunckle and ordered surgery before the biopsy.  A uralogist performed the surgery and everyone was surprised when the diagnosis came back Mucosal Melonoma!  They didn't know what to do with me.  My daughter searched the internet and found a doctor who specialized in melanoma at a cancer hospital and had seen patients with mucosal melanoma.  We are very small in numbers.  I had a second surgery to clear the margins of the first surgery and then 30 sessions of radiation.  I did not have any lymph nodes checked at the time of the first surgery but subsequent PET/CT scans have shown no recurrence.  My scans are now six months apart from every three months and I feel fine.  I go to Dana Farber Cancer Institute in Boston.  

Hello Heidi and Mary,  I too was diagnosed with mucosal melanoma in Feb. of  2014.  I had gone to the gyno because I thought that my bladder had dropped.  She thought I had a carunckle and ordered surgery before the biopsy.  A uralogist performed the surgery and everyone was surprised when the diagnosis came back Mucosal Melonoma!  They didn't know what to do with me.  My daughter searched the internet and found a doctor who specialized in melanoma at a cancer hospital and had seen patients with mucosal melanoma.  We are very small in numbers.  I had a second surgery to clear the margins of the first surgery and then 30 sessions of radiation.  I did not have any lymph nodes checked at the time of the first surgery but subsequent PET/CT scans have shown no recurrence.  My scans are now six months apart from every three months and I feel fine.  I go to Dana Farber Cancer Institute in Boston.