bexkell

Hi Christal, My husband was diagnosed in April of this year with mucosal melanoma in his gastrointestinal track. He started this trial in May. At his last scan his primary tumor was no longer detectable, and although he still has the swollen lymph nodes in his groin they believe there is no more melanoma in them. It appears to be fluid and necrotic tissue which makes sense to me, because that is where the "dead" cancer would drain from his primary site. 

His only side effects are fatigue and dry mouth. He had a very mild rash early in the trial. He says he is fatigeud but still rides his bike to work on nice days, and goes to crossfit 5 days a week. He's a beast. The dry mouth is very noticable. Sometimes he's hard to understand, but he's crushing this cancer so it feels like a small price to pay. Especially because we have a 6 year old son. 

My dad died of cutaneous melanoma in 2011 and I am a hospice RN. It is very exciting (and so very personal) to see the progress in melanoma treatment. My dad did 5 clinical trials in the 9 years after he was diagnosed. I miss him so much, but I am so grateful that he contributed to the science that is keeping my husband/ my sons dad here. 

I wish you all the best. I believe we are making history. 

"If the history of medicine is told through the stories of doctors, it is becaue their contributions stand in place of the more sustantive heroism of their patients." -Siddhatha Mukherjee

Becky

Hi Christal, My husband was diagnosed in April of this year with mucosal melanoma in his gastrointestinal track. He started this trial in May. At his last scan his primary tumor was no longer detectable, and although he still has the swollen lymph nodes in his groin they believe there is no more melanoma in them. It appears to be fluid and necrotic tissue which makes sense to me, because that is where the "dead" cancer would drain from his primary site. 

His only side effects are fatigue and dry mouth. He had a very mild rash early in the trial. He says he is fatigeud but still rides his bike to work on nice days, and goes to crossfit 5 days a week. He's a beast. The dry mouth is very noticable. Sometimes he's hard to understand, but he's crushing this cancer so it feels like a small price to pay. Especially because we have a 6 year old son. 

My dad died of cutaneous melanoma in 2011 and I am a hospice RN. It is very exciting (and so very personal) to see the progress in melanoma treatment. My dad did 5 clinical trials in the 9 years after he was diagnosed. I miss him so much, but I am so grateful that he contributed to the science that is keeping my husband/ my sons dad here. 

I wish you all the best. I believe we are making history. 

"If the history of medicine is told through the stories of doctors, it is becaue their contributions stand in place of the more sustantive heroism of their patients." -Siddhatha Mukherjee

Becky

Hi Christal, My husband was diagnosed in April of this year with mucosal melanoma in his gastrointestinal track. He started this trial in May. At his last scan his primary tumor was no longer detectable, and although he still has the swollen lymph nodes in his groin they believe there is no more melanoma in them. It appears to be fluid and necrotic tissue which makes sense to me, because that is where the "dead" cancer would drain from his primary site. 

His only side effects are fatigue and dry mouth. He had a very mild rash early in the trial. He says he is fatigeud but still rides his bike to work on nice days, and goes to crossfit 5 days a week. He's a beast. The dry mouth is very noticable. Sometimes he's hard to understand, but he's crushing this cancer so it feels like a small price to pay. Especially because we have a 6 year old son. 

My dad died of cutaneous melanoma in 2011 and I am a hospice RN. It is very exciting (and so very personal) to see the progress in melanoma treatment. My dad did 5 clinical trials in the 9 years after he was diagnosed. I miss him so much, but I am so grateful that he contributed to the science that is keeping my husband/ my sons dad here. 

I wish you all the best. I believe we are making history. 

"If the history of medicine is told through the stories of doctors, it is becaue their contributions stand in place of the more sustantive heroism of their patients." -Siddhatha Mukherjee

Becky