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billb50256

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      billb50256
      Participant

        I posted on this topic in another thread from this site, but at the risk of repeating, I am Stage IV melanoma in lymph nodes and shoulder, including metastises to the bone. I am on the BRAF-MEK trial at MDAnderson. First 2 month cycle showed all tumors shrunk between 10% and 50%. Virtually no side effects, except for fatigue, neck rashes, and ringing in my ears. Compared to other treatment, the results have been fantastic and the side effects minimal. Second cycle up at the end of March and I'll head to Houston for three days of tests, scans, etc. The trial has given me a ton of hope, and the folks at MDAnderson are the absolute best. Good luck…there are amazing things coming!

        billb50256
        Participant

          I posted on this topic in another thread from this site, but at the risk of repeating, I am Stage IV melanoma in lymph nodes and shoulder, including metastises to the bone. I am on the BRAF-MEK trial at MDAnderson. First 2 month cycle showed all tumors shrunk between 10% and 50%. Virtually no side effects, except for fatigue, neck rashes, and ringing in my ears. Compared to other treatment, the results have been fantastic and the side effects minimal. Second cycle up at the end of March and I'll head to Houston for three days of tests, scans, etc. The trial has given me a ton of hope, and the folks at MDAnderson are the absolute best. Good luck…there are amazing things coming!

          billb50256
          Participant

            Stage IV, with Unknown Primary, tumors in lymph nodes, and shoulder. Neck dissection, Interferon…..currently on the BRAF-MEK trial at MDAnderson. First two month cycle showed all tumors shrunk, anywhere from 10 to 50%. I have had virtually no side effects. Fatigue (could also be blamed on the 3 pain meds), a little bit of neck rash, occasional ringing in the ears. So far, so good. My second cycle is up in late March and I'll get another set of scans. Bottom line, the treatment appears to be helping and the side effects not a problem. When you compare the side effects with other treatments, it's a miracle.

            billb50256
            Participant

              Stage IV, with Unknown Primary, tumors in lymph nodes, and shoulder. Neck dissection, Interferon…..currently on the BRAF-MEK trial at MDAnderson. First two month cycle showed all tumors shrunk, anywhere from 10 to 50%. I have had virtually no side effects. Fatigue (could also be blamed on the 3 pain meds), a little bit of neck rash, occasional ringing in the ears. So far, so good. My second cycle is up in late March and I'll get another set of scans. Bottom line, the treatment appears to be helping and the side effects not a problem. When you compare the side effects with other treatments, it's a miracle.

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